Re: Some Thoughts/Prednisone

[Guest guest]

In a message dated 7/17/2004 7:04:19 PM Pacific Daylight Time,

ANJILLAH@... writes:

I cannot get off of the prednisone even though

I

am only taking 5 MG. If I try to come off, (and I have tried) I can't walk

at all and have severe pain.

If this is not more dangerous then any pain meds I don't know what is.

,

If you don't mind me asking, what other meds are you taking with the

Prednisone? And what I'm most interested in is did you feel better right away

after

you started the Prednisone (if you can remember, I know you said you've been

taking the Prednisone for 15 years)??

Abby

[Guest guest]

from gemini6849, I have been on prednisone for approx. 7years now. It has

affected my bones, skin, and weight. I have not been able to go below 10mg per

day since I have started. I am now taking Prenisone, Methatrexate Inj., Humira

Inj. Disalsid 750mg tables (3 tablets twice a day). I have noticed since I

started the Humira that I am have more movement and less pain. I hope to start

decreasing my Prednisone by next week. My goal is to go completely off of

Prednisone. I have to take Fosamax 70mg due to the lose of bone. Prednisone is

not as

nice to the body as some may think. I also have moon face along with the

starting of a " Buffalo Hump " between my shoulders. I am praying to get rid of

this

monster as soon as possible. I have gained a total of 50 lbs while on this

medication. If you have had to take prednisone, what are your experiences and

how long does it take to get back to normal on weight and MOON FACE?

[Guest guest]

Hello there:

I started the prednisone a long time ago. Actually it was about 18 years ago

when I first got my kidney transplant that I started taking it. I don't

remember how it made me feel because I was put on it for my transplant and not

RA.

I didn't have RA back then, I only got it 7 years ago. I was put on the

prednisone when I was in ICU after my transplant so it wasn't used to help pain

it was used to prevent rejection of my new kidney. I wish I could do something

to change all the things it has done to me. I feel sorry for those of you

who say it helps you. Someday it will effect you all the way it has effected

me. I also have a hump on my back, moon face, and weigh over 200 lbs.

I used to be 104 when I first went on it.

I was never a big eater. If you are on it, be careful because it sneaks up

on you.

Sincerely,

[Guest guest]

Dear gemini6849,

I'm happy to hear that Humira has made a noticeable difference in the

way you've been feeling. Sorry that you've had so many adverse effects

from the prednisone.

I haven't used prednisone, so I won't be able to give you any insight

based on personal experience, but I'm sure others here will try to help

you out.

Good luck!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] Some Thoughts/Prednisone

> from gemini6849, I have been on prednisone for approx. 7years now. It

has

> affected my bones, skin, and weight. I have not been able to go below

10mg per

> day since I have started. I am now taking Prenisone, Methatrexate

Inj., Humira

> Inj. Disalsid 750mg tables (3 tablets twice a day). I have noticed

since I

> started the Humira that I am have more movement and less pain. I hope

to start

> decreasing my Prednisone by next week. My goal is to go completely off

of

> Prednisone. I have to take Fosamax 70mg due to the lose of bone.

Prednisone is not as

> nice to the body as some may think. I also have moon face along with

the

> starting of a " Buffalo Hump " between my shoulders. I am praying to get

rid of this

> monster as soon as possible. I have gained a total of 50 lbs while on

this

> medication. If you have had to take prednisone, what are your

experiences and

> how long does it take to get back to normal on weight and MOON FACE?

[Guest guest]

Hello,

I am new here, but my doc put me on it for a 21 day period and it

worked so he took me off of it and put me on something else. Because

it is really bad for the body.

Hugs

Cheryle

> from gemini6849, I have been on prednisone for approx. 7years now.

It has

> affected my bones, skin, and weight. I have not been able to go

below 10mg per

> day since I have started. I am now taking Prenisone, Methatrexate

Inj., Humira

> Inj. Disalsid 750mg tables (3 tablets twice a day). I have noticed

since I

> started the Humira that I am have more movement and less pain. I

hope to start

> decreasing my Prednisone by next week. My goal is to go completely

off of

> Prednisone. I have to take Fosamax 70mg due to the lose of bone.

Prednisone is not as

> nice to the body as some may think. I also have moon face along

with the

> starting of a " Buffalo Hump " between my shoulders. I am praying to

get rid of this

> monster as soon as possible. I have gained a total of 50 lbs while

on this

> medication. If you have had to take prednisone, what are your

experiences and

> how long does it take to get back to normal on weight and MOON FACE?

>

>

>

[Guest guest]

,

I'm sorry you had such problems from prednisone. For me, it's been just the

opposite; it's almost a miracle drug.

Now, I will tell you that my Dr. says I have a strange body! lolol

I've been taking pred for 30 years. No negative side effects. I get a moon

face when I first take it, then it goes away. I don't get hungry when I'm

taking it - no weight gain from it. I don't get angry or irritable. My bone

density screening results have been a -1 for over 10 years.

I do take calcium, vitamin D, HRT, Fosamax and glucosamine chondritin.

I don't have that hump on my back. The only problem I have is that I can't

take it on a regular basis because I'll start bleeding internally, so I have to

limit it to when I have bad flares. So I take it for about 6-7 days, starting

at 40 mg. ad day, and start reducing it on the 3rd day. And I have no

" withdrawal " effects when I go off.

It may be that not taking it on a continual basis, but taking the calcium,

Fosamax, etc. regularly, not just when I'm taking pred, is what has kept it from

causing the problems that so many others have with it.

And it's a good thing I can take it, because I can't take anything else in

the NSAID, cox-2, DMARD categories. It's pred or nothing.

As I said, I have a strange body!

Dix

Re: [ ] Some Thoughts/Prednisone

Hello there:

I started the prednisone a long time ago. Actually it was about 18 years ago

when I first got my kidney transplant that I started taking it. I don't

remember how it made me feel because I was put on it for my transplant and not

RA.

I didn't have RA back then, I only got it 7 years ago. I was put on the

prednisone when I was in ICU after my transplant so it wasn't used to help

pain

it was used to prevent rejection of my new kidney. I wish I could do

something

to change all the things it has done to me. I feel sorry for those of you

who say it helps you. Someday it will effect you all the way it has effected

me. I also have a hump on my back, moon face, and weigh over 200 lbs.

I used to be 104 when I first went on it.

I was never a big eater. If you are on it, be careful because it sneaks up

on you.

Sincerely,