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Re: I can't believe it!

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Sara,

I know what you're talking about. After seeing a gynecologist who didn't have a

clue about what I had, he finally gave up and sent me to the Lansing, MI pain

clinic. They didn't have a f... clue either. I went

through epidurals (3 in 3 weeks, great when you're working), and a stupid

psychologist who measured how relaxed I was by putting sensors on my shoulders.

So I went through all this (of course talking to the nurse

for 30 minutes, and to the doctor for 30 seconds) to have them tell me that

maybe I should exercise, and that'll make everything better!

Luckily, it seems I am finally on the right track now (have VVS, moved from

Michigan to Virginia, see Dr. Marinoff in DC, and Dr. Glazer in NY). Crossing my

fingers that I will finally be able to have sex for the

first time in months, if not a year.

Hang in there,

nne

PS: by the way, it really helps to get your frustration out, so don't think

twice about emailing the list!

Sara Coren wrote:

>

>

> Ladies listen to this:

>

> I am shocked and appauled! The supposedly " top-notch " pain center here

> in San Francisco has refused to treat me for my medical condition

> because the assholes think this is in my head! How many of us have to

> be out there suffering before these men realize that this is a real

> condition and that we are in pain that is not primarily psychological.

> Of course, psychological consquences do follow years of dealing with

> constant pain! Who do they think I am, Superwoman? Should I not be fed

> up and depressed that I am always in pain? I don't just sit at home

> feeling sorry for myself even though I have every right too. I work

> everyday and do the best I can to remain as upbeat as possible.

>

> I am going to contact a lawyer and sue the pants off these guys!!! I am

> that angry! I was wondering if anybody would help me if I need any

> testimonials from other women with the same thing? I think that if this

> case goes big it may be a step towards finding a cure for us all. The

> public and medical community needs to be more educated about this and

> research needs to go full-force into this. I just don't feel that

> enough is being done for any of us! Anway, I hope to hear from you guys

> soon.

>

> Regards,

>

> Sara

>

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