Guest guest Posted July 7, 1999 Report Share Posted July 7, 1999 My name is , I am 23 years old, and this summer it will be four years that I have been suffering from V.V. I was misdiagnosed a million times...one doctor insisted it was most likely herpes...even though I was a virgin and the test came back negative. For years, I lived with the pain, not knowing what it was, or what I did to get it. I was embarrased and miserable. However, I only had occasional bad flare-ups, probably 60% of the time I was pain free. However, for the past year or so, the symptons have increasingly gotten worse. I do not remember a pain free day in over 6 months. I cry myself to sleep because night time is the worst. I got married 2 months ago, any my husband and I could only have sex three times on our honeymoon because of the pain. I am so upset that I am causing him pain, too. My Dr. has me trying a low oxalate diet, which I haven't seen any relief from. I also use an estrogen cream, but it only helps for a little while. Plus, I get embarrased at the pharmacy when I have to get overrides from the insurance company to allow for my more than twice-a-month refills I need(it's supposed to be a 30 day supply). When I discovered these mailing lists, I almost cried, I was so happy. I have been searching for a way to connect with fellow sufferers for so long. Please tell me of anything I can do to make this better. I have read about your ideas about the Vicks and the over-the-counter creams, and I will try those. I mostly need help with what this does to me emotionally, though. It has taken over my life. There is the pain, and then everything else. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
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