Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi , Well my GP wants nothiing to do with the case. That's why he referred me to the rheumy, and she wouldn't discuss it with the other doctor either. I understand their concern at using something off label, but everything we take for this disease is off label! About Mayo, we've had several people go there, with the result that they really don't know what to do either, and they are not doing any studies either. Sounds like we're at a dead end, unless I can magically contract RA! Thanks anyway, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi , Well my GP wants nothiing to do with the case. That's why he referred me to the rheumy, and she wouldn't discuss it with the other doctor either. I understand their concern at using something off label, but everything we take for this disease is off label! About Mayo, we've had several people go there, with the result that they really don't know what to do either, and they are not doing any studies either. Sounds like we're at a dead end, unless I can magically contract RA! Thanks anyway, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 , I'm an hour and a half southeast of Indy, but I have been to IU--was examined by 70 doctors in a conference there. They don't know what to do either. So far only one person has tried the Remicade/MTX treatment, and her results have been very good, that's why I would like to try it. Someone somewhere has to be the guinea pig to see if it works on DD alone. My insurance company didn't balk at treatment with Interferon, and I don't think they would now, but they have to be approached. And, as I told , Mayo pretty much just threw up their hands when others with the disease went there. But thanks for all the positive answers! Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 , I'm an hour and a half southeast of Indy, but I have been to IU--was examined by 70 doctors in a conference there. They don't know what to do either. So far only one person has tried the Remicade/MTX treatment, and her results have been very good, that's why I would like to try it. Someone somewhere has to be the guinea pig to see if it works on DD alone. My insurance company didn't balk at treatment with Interferon, and I don't think they would now, but they have to be approached. And, as I told , Mayo pretty much just threw up their hands when others with the disease went there. But thanks for all the positive answers! Judi Quote Link to comment Share on other sites More sharing options...
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