June--ankle replacement vs fusion

[Guest guest]

Hi June,

Thanks for the compliment.. By the looks of the very little interest from the

group regarding the Prosorba Column, I guess I will reman a pioneer in this

treatment. I must say it surprises me as it is the only treatment that removes

the RA antibodies which attack us and does not require taking ANY medication! I

imagine it is not well known yet I guess

Have you ever had surgery on your ankle yet, ie :fusion? I ask as I had a

subtalar arthrodesis of the left ankle 1996, but unfortunately the fusion put

stress on the surrounding bones which then caused the need of a second fusion

mid foot (triple arthrodesis)BUTTTTT now my toes have dislocated from the stress

of the second fusion...so if it were me, I would definitely look into the ankle

replacement instead of the fusion. In fact my right foot has sprung a posterior

tibial tendon (just like the left foot did!)and I am looking into joint

replacement for this one....Fusions are tough !

So what is the status of the spine surgery? and what is with the high cost to

park for medical care?no valet parking or handicapped parking next to an

entrance? That is terrible...

Joanne

[Guest guest]

I don't think there is little interest in the Prosorba.. I am very interested,

and have digested everything you wrote and plan on talking to my dr about it at

my next visit. I am wondering, how come you felt bad the couple of days after?

I used to give plasma when I was in the Army cause I was poor and it never made

me feel yucky...

Semalee

Re: [ ] June--ankle replacement vs fusion

Hi June,

Thanks for the compliment.. By the looks of the very little interest from the

group regarding the Prosorba Column, I guess I will reman a pioneer in this

treatment. I must say it surprises me as it is the only treatment that removes

the RA antibodies which attack us and does not require taking ANY medication! I

imagine it is not well known yet I guess

Have you ever had surgery on your ankle yet, ie :fusion? I ask as I had a

subtalar arthrodesis of the left ankle 1996, but unfortunately the fusion put

stress on the surrounding bones which then caused the need of a second fusion

mid foot (triple arthrodesis)BUTTTTT now my toes have dislocated from the stress

of the second fusion...so if it were me, I would definitely look into the ankle

replacement instead of the fusion. In fact my right foot has sprung a posterior

tibial tendon (just like the left foot did!)and I am looking into joint

replacement for this one....Fusions are tough !

So what is the status of the spine surgery? and what is with the high cost to

park for medical care?no valet parking or handicapped parking next to an

entrance? That is terrible...

Joanne

[Guest guest]

Joanne, if it is possible, I will definitely go for the ankle replacement if it

is an option offered to me and it sounded like it is. My left ankle was fused 10

years ago by way of staples so that the only movement I don't have is from side

to side. I have been very happy with the fusion and on recent x-rays the staples

are still in place. At the moment it is my left knee that is causing me the most

pain but no decision can be made until I get this next scan on Dec. 1 to see

the arteries behind the bowel. Then, of course, none of this can happen until

the neuro guy gets the results of a cat scan I am scheduled for on my spine next

week. I am beginning to feel like my wheels are spinning but getting nowhere

LOL.

In Toronto, land is scarce and very valuable so no matter where you go downtown,

you pay a price for parking. Most people use the subway or Go train to get

downtown but it is not an option for me.

I am seeing my rheumy on Nov. 27 and hopefully I will also have a chance to talk

to Ed Keystone and I plan on telling them about your experience with the

Prosorba Column. I don't think it is a matter of lack of interest that is

happening, I just think there is so little information out there that people

don't understand enough about it. Now that you are finished the treatments, do

you take any meds?

Hugs

June

[Guest guest]

Hi June,

No, I only take 5 mg of prednisone and pain meds at present...time will tell.

I am happy to hear about the ankle replacement. I didn't know that you could

have a joint replacement following a fusion...if it is the case here, I plan to

look into it as I have had 2 fusions in my left foot and something is wrong..the

skin is pulling inward and it hurts! I too have 5 staples and 2

screws....anyway I truly understand about spinning your wheels.

The surgeon told me that the knee is sometimes negatively affected by the

fusions on the foot.. Our gait changes and we put more stress on the knee and

hip and back...any chance the fusion made the foot worse?

We can't seem to win can we? fix something and it makes another joint go. So

tell me what is the plan with your back?

I forgot to tell you that the best time to reach me is after dinner...

Joanne

[Guest guest]

Hi June,

No, I only take 5 mg of prednisone and pain meds at present...time will tell.

I am happy to hear about the ankle replacement. I didn't know that you could

have a joint replacement following a fusion...if it is the case here, I plan to

look into it as I have had 2 fusions in my left foot and something is wrong..the

skin is pulling inward and it hurts! I too have 5 staples and 2

screws....anyway I truly understand about spinning your wheels.

The surgeon told me that the knee is sometimes negatively affected by the

fusions on the foot.. Our gait changes and we put more stress on the knee and

hip and back...any chance the fusion made the foot worse?

We can't seem to win can we? fix something and it makes another joint go. So

tell me what is the plan with your back?

I forgot to tell you that the best time to reach me is after dinner...

Joanne