Guest guest Posted March 4, 1999 Report Share Posted March 4, 1999 Laurie, About your irritation on the Payton website comment about length of hospital stay for surgery, I was just in the Hospital of the University of Pennsylvania (HUP)this past Monday for transplant evaluation with the transplant team. The transplant coordinator nurse who gave the initial presentation to the small group of us said that the hospital stay is " usually 9 to 14 days. Could be longer in certain instances. " HUP has a printed booklet explaining the whole process (printed in 3/98) which states that " An average stay in the hospital after a liver transplant is two to four weeks, but your stay could be longer. " So it doesn't look like the quote on Payton's site is that far off. I think a good distinction that could be/should be made in these averages is the condition of the transplant patient before the transplant. Some are in intensive care units of hospitals with end-stage liver disease prior to transplant while others are called in from home. According to the nurse that gave our presentation, the former is about 20% and the latter is about 80%. Seems to me that the " average stays " for these two different segments would be different, throwing off any " total average. " And from what I'm reading, PSCers would most likely be in the 80% called from home category. Maybe this'll clear up your concern a little and ease your irritation. As with much information about this particular condition, there ain't much certainty about much of anything!!! Bill > Re: no subject > > > & Group: > Thanks, , for sharing the website for Walter > Payton's web page. > Maybe I'm too touchy on the subject as transplant is getting > closer for me, but it really irritates me how every article > and newscast I've seen on PSC gets a critical fact wrong. > In Payton's web page the article on PSC, whoever put that > info. in there really goofed up -- " 7 to 12 days " in the hospital. > Yeah, right. What irritates me about it is now that I've finally > told people I have this and that my time is coming closer they are > paying attention to what they hear on the news and assume it is > correct. So when they hear I'll only be in the hospital 7-12 days > it makes it sound like a simple procedure and that there is nothing > to it, which couldn't be further from the truth. The center I will > be going to has stated 28 days on average--anywhere from 4-6 weeks > is the " norm. " If the public is going to be educated about our > disease, I wish they were educated correctly. > > Hope everyone is doing well. > > Laurie > > ------------------------------------------------------------------------ > eGroup of the Day: > Aframjews - a discussion group about African American Jews > http://offers./click/236/0 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 1999 Report Share Posted March 5, 1999 Bill-- I appreciate the info. What I'm going by is 3 transplant centers, all of whom list averages of length of stay right at 28 days. I wonder if Pittsburgh and the center quoted for Payton's web page has better averages? After all, Pittsburgh is the " creme de la creme " (sp?). I wonder how a person could order the booklet of which you speak. Any ideas? Thanks again for the info. Laurie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 1999 Report Share Posted March 12, 1999 Group - how do I get to PSC Web Page that started? Thanks, Liz ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 1999 Report Share Posted March 12, 1999 you can find the web page by going to http://fly.to.pscs Love, ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 1999 Report Share Posted March 12, 1999 O.K. I tried the url and it said " unknown host " What now? Peggy McG ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 1999 Report Share Posted March 13, 1999 H. - Good idea - both web pages. Why not?? Laurie ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 1999 Report Share Posted May 6, 1999 Hi, -Brown, Welcome to this group. I think you'll find us a friendly bunch. I, too, have frequent ERCP's to dilate the strictures..My next one is scheduled May 28. What part of the country do you live in? I'm in New Hampshire. -Brown Griswold wrote: > Hi my name is -Brown and I just got this e-mail address off the web. I > have PSC, I was diagnosed two years ago, and I'm just having some ERCP's > done right now to dilate some of the strictures. I'm really interested in > becoming part of the support group, so please e-mail me back with any > information about it. Thanks so much-- -Brown > > ------------------------------------------------------------------------ > Too much effort to find the stock info you want each day? StockMaster > lets you enter a company name and quickly shows you a daily quote, > chart, and news all on one page. Free! http://clickhere./click/71 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 1999 Report Share Posted September 15, 1999 Yes, Dianne was able to subscribe..I added her to the list. She posted a message a few days ago I believe (maybe even sooner). I believe her name is Dianne Howell. Please step forward <GRIN> Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2012 Report Share Posted August 30, 2012 ------------------------------------------------------------------------ eGroups.com home: /group/ptmanager - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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