Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Hi, My name is Jenni. I am wife to and mama to Hannah 5, 3, and Jonathon 18 months. My husband has RA. He was diagnosed at age 5 with JRA and it progressed from there. He is going to be 37 now..so he has had this for a looong time. He refuses to take medication because he had some very painful experiences as a child with injectins and many other fruitless experiences at the hospital. He told his mom when he was a teen that it was enough and she let him make that choice. A few years ago he agreed to try methotrexate until he discovered that it could cause sterility and other serious side affects...it was only a few weeks that he was on it. I am really worried about him. He is on disability but he has a home business and also works part time at a library at the local Ivy Tech. We have been blessed in that respect. However, I feel so helpless watching him suffer. He doesn't complain but I can see how the pain affects him by the way that he moves, etc. Last night he was in so much pain he started crying and just lost it..just wimpering how he couldn't take the pain anymore and how his hips were hurting him so badly. I don't know what to do. He drinks a lot to try to deal with the pain but that is the extent of how he will medicate himself. I just don't know how to handle this. I am only 23 and I am so scared that he is going to get much worse in our lifetime together. I have been online and seen horrible pictures and read things that make my stomach turn when I think of it happening to my husband. Anyways, I hope to learn more here so that I can better support my husband. He doesnt have much spare time so I am usually the one online looking for things. Anyways, glad to be a part of this group; I know that I will learn much from you all. Sincerely, Jenni Quote Link to comment Share on other sites More sharing options...
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