Hi Everybody,

[Guest guest]

I just wanted to say Happy Holidays to all of you out there. I have been getting

Christmas card just about everyday now,mine went out a little late because I ran

out of stamps had to pay the bills first you know how it is.I went to the post

office to get stamps and there was more cards in the mail,so I just wanted to

say thanks and will be looking for the rest of them to arrive soon,even if they

get here late it is the thought that counts right?Happy Holidays from The

's here in Tippecanoe,Indiana.

[Guest guest]

, I feel the fatigue and lack of energy is definitely related to Prednisone. I feel the same way whe I take it. Make sure you are taking a good Probiotic supplement with it if you can. Prednisone can cause yeast overgrowth in the body which is famous for causing fatigue. I seldom take Prednison unless I absolutely have to. I am a teacher and I just can't deal with the lack of energy I experience while on Prednisone. Good luck to you. Jane <soniarobins@...> wrote: Yes I have a slight hearing problem I’m sure. Ask anyone in my family and they’ll tell you. I’ve had polyps since my first surgery in 1979 and have had about six surgeries so far but the medication I’m on at present is a huge help plus I’m on daily prednisone. A problem I have though is that I’m terribly tired a lot of the time and have no energy. From: samters [mailto:samters ] On Behalf Of Jane MarinoSent: Wednesday, 28 November 2007 3:39 PMsamters Subject: Re: Hi everybody, I really am in need of understanding here. I have just come from my ENT tonight. I had an audiology exam because I've been aware for awhile that I am having issues with my hearing. It turns out that I do have significant hearing loss that is due to a structural problem with my eardrums. Apparently, my eardrums are inverted, pulling in the opposite way they should. My doctor says that this is a common problem with someone who has had a lifetime of polyps and polyp surgeries. Has anyone else experienced such an issue with their hearing? Does it improve as the sinuses improve? JaneDrouin Anne <anne_drouin > wrote: Dear Indeed your surgery story sounds very familiar. For the ears, I was able to cure my own problem with an otologist who injects kenacort into my eardrum through the drains I have in place. She rarely does that although she has a long experience with ear issues here in Switzerland at the otology department of the university hospital of Geneva. Other ENT often raise eyebrows as they are not

familiar with this practice. It stoppes my becoming deaf very rapidly after more than 2 years of nearly hearing nothing and before I was just about to undertake a surgery to have an ear implant. Good luck Anne Hi everybody, I have been following the messages of this group already for some timenow but have hesitated to write my own note before. The reason to thisis that even though I was extremely happy to find people/a group thatactually knew and had experienced Samters themselves (because then Ididn't feel so alone with it anymore), I also was very sad and angry,too, to not have been able to find you earlier than now. My sorrow

andanger, of course, is not your fault, but instead is due to the factthat in Finland, where I live, it seems that no one has known aboutSamters. I have suffered of Samters for more than 25 years by now, butit was not until this fall that I finally heard the name Samter'sTriad and got my diagnosis right. I have had closer to 20 sinus etc.surgeries (e.g. Caldwell-Luc l.a., several ethmoidectomies, more thanenough of polypectomies, FESS:es and tympanostomies. Finally lastsummer my right ear stopped working and became deaf.)Now the doctors are finally planning the Aspirin-desensitiza tion forme - hopefully I will get it and hopefully it does stop the diseasefrom getting any worse. My medication right now is Singulair andRoxithromycin, both I'm taking one twice a day, Symbicort, Flixonaseand Betaserc for the ringing ear. Cortecosteroids I can't take anymore, because I

developed osteoporosis - and that is being treatedwith Fosamax and Ideos).Anyway, I'm glad that you all have found your way to this.group, it makes me feel so much less alone with the illness. AndI hope you are luckier than me in getting the right kind of help inthe right time.Best regards, For ideas on reducing your carbon footprint visit For Good this month. Be a better pen pal. Text or chat with friends inside . See how. No virus found in this incoming message.Checked by AVG Free

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[Guest guest]

Jane thankyou so much for that

information, I had no idea that I should be taking a probiotic with it. It also

explains a few other ‘yeast related’ problems I’ve been

experiencing.

I’ll see my pharmacist in the

morning and see what he can recommend in the way of probiotics.

As a teacher you really do need your

energy, been there myself. 

Thanks again

From: samters [mailto:samters ] On Behalf Of Jane Marino

Sent: Wednesday, 28 November 2007

4:11 PM

samters

Subject: RE: Hi

everybody,

,

I feel the fatigue and lack of energy is definitely related to

Prednisone. I feel the same way whe I take it. Make sure you are

taking a good Probiotic supplement with it if you can. Prednisone can

cause yeast overgrowth in the body which is famous for causing fatigue.

I seldom take Prednison unless I absolutely have to. I am a

teacher and I just can't deal with the lack of energy I experience while on

Prednisone.

Good luck to you.

Jane

<soniarobinstsn (DOT) cc> wrote:

Yes I have a slight hearing problem

I’m sure. Ask anyone in my family and they’ll tell you.

I’ve had polyps since my first surgery in 1979 and have had about six

surgeries so far but the medication I’m on at present is a huge help plus

I’m on daily prednisone. A problem I have though is that I’m

terribly tired a lot of the time and have no energy.

From: samters [mailto:samters ] On Behalf Of Jane Marino

Sent: Wednesday, 28 November 2007

3:39 PM

samters

Subject: Re: Hi

everybody,

I really am in need of understanding here. I have just come from

my ENT tonight. I had an audiology exam because I've been aware for

awhile that I am having issues with my hearing. It turns out that I do

have significant hearing loss that is due to a structural problem with my

eardrums. Apparently, my eardrums are inverted, pulling in the opposite

way they should. My doctor says that this is a common problem with someone

who has had a lifetime of polyps and polyp surgeries.

Has anyone else experienced such an issue with their

hearing? Does it improve as the sinuses improve?

Jane

Drouin Anne

<anne_drouin > wrote:

Dear

Indeed your surgery story sounds very familiar.

For the ears, I was able to cure my own problem with an otologist who

injects kenacort into my eardrum through the drains I have in place.

She rarely does that although she has a long experience with ear issues

here in Switzerland

at the otology department of the

university hospital

of Geneva.

Other ENT often raise eyebrows as they are not familiar with this

practice.

It stoppes my becoming deaf very rapidly after more than 2 years of

nearly hearing nothing and before I was just about to undertake a surgery to

have an ear implant.

Good luck

Anne

Hi everybody,

I have been following the messages of this group already for some time

now but have hesitated to write my own note before. The reason to this

is that even though I was extremely happy to find people/a group that

actually knew and had experienced Samters themselves (because then I

didn't feel so alone with it anymore), I also was very sad and angry,

too, to not have been able to find you earlier than now. My sorrow and

anger, of course, is not your fault, but instead is due to the fact

that in Finland,

where I live, it seems that no one has known about

Samters. I have suffered of Samters for more than 25 years by now, but

it was not until this fall that I finally heard the name Samter's

Triad and got my diagnosis right. I have had closer to 20 sinus etc.

surgeries (e.g. Caldwell-Luc l.a.,

several ethmoidectomies, more than

enough of polypectomies, FESS:es and tympanostomies. Finally last

summer my right ear stopped working and became deaf.)

Now the doctors are finally planning the Aspirin-desensitiza tion for

me - hopefully I will get it and hopefully it does stop the disease

from getting any worse. My medication right now is Singulair and

Roxithromycin, both I'm taking one twice a day, Symbicort, Flixonase

and Betaserc for the ringing ear. Cortecosteroids I can't take any

more, because I developed osteoporosis - and that is being treated

with Fosamax and Ideos).

Anyway, I'm glad that you all have found your way to this

.group, it makes me feel so much less alone with the illness. And

I hope you are luckier than me in getting the right kind of help in

the right time.

Best regards,

For ideas on reducing your carbon footprint visit For Good

this month.

Be a better pen pal. Text or chat with friends inside . See

how.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.16.8/1153 - Release Date: 26/11/2007

9:08 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.16.8/1153 - Release Date: 26/11/2007

9:08 PM

 

Be a better sports nut! Let your teams follow you with Mobile. Try

it now.

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.16.8/1153 - Release Date: 26/11/2007 9:08 PM

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.503 / Virus Database: 269.16.8/1153 - Release Date: 26/11/2007 9:08 PM