Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 > (5)Is there anyone out there who can say their doctors listen to >what their patients say, and show a willingness to use innovative >approaches to the individual situations, instead of throwing us all in >the same box? Maybe STILL ANOTHER POLL??? My cardiologists is pretty good. He admits they don't have the answers and I get the impression he listens and believes what I say to him (he agreed to give me a magnesium test last time I saw him as a result of me reading the info on the web). We will have a lot to talk about next time we meet - I hope he's still willing to try some new ideas! all the best -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 > (4), I think you're on the right track with the plan to have >a series of blood tests documenting the situation in various stages of >AF. But how does one convince the POWERS THAT BE ? to actually do >that? I can't conceive of our Medicare System in Canada " wasting >money " on approaches that have great longterm impact. Much favored are >stopgap short term bandaids. I am more and more convinced that the >entire approach to AF has to change. Why not pay more attention to >CONDITIONS THAT EXIST AT THE MOMENT AN AF EPISODE CEASES, COMPARING >THOSE CONDITIONS TO THE ONES THAT EXIST DURING THAT IMPENDING PERIOD >THAT MOST OF US RECOGNIZE ?? Again, I add here that the positive >feeling of wellbeing most of us seem to experience immediately after a >return to Sinus, as opposed to the feeling that exists while we are >yet in Sinus but on the way to AF, IS EXTREMELY RELEVANT, AND HOLDS >THE ANSWERS. BUT HOW TO GET THE MATTER TO THE ATTENTION OF THOSE IN >CONTROL ? First I'll try a to talk my GP or cardiologist into supporting my idea (I'm in the UK so I'm hoping to get this done on the NHS). If this isn't successful I'll pay for the tests myself. I have a friend who's a nurse and would be willing to draw the blood if I can talk a lab into doing the tests. Still got to figure out what to look for though - any suggestions gratefully received! Once the test are done I would have to get an expert to interpret the results but I think if I've got that far it'll be easy to find someone to scan the data. (I'm delaying telling the Docs until I have a convincing plan - I don't see my cardiologist again until January so I may try my GP before then) good health to all, -- D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Lawrence - You asked how my doc decided I had vagal AF. (It took four years to get some attention paid to this). I wore a wrist monitor for over 30 days. It was an episode monitor which required that I record the event and then transmit it via the phone for reading. I used it a lot. Dr. Marody had suggested that I go off of the medicine I was taking so that I did not take it in the morning. It was Betapace (Sotalol). However, going off the medicine improved my condition so that there were fewer episodes. In fact, I didn't have any episodes during that time. But, I did have a lot of skipped beats and odd things happening which I recorded. I don't know how he made the decision other than that. Hope this helps. Dorean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2001 Report Share Posted March 4, 2001 Someone posted recently about collecting information about vagal AF for an upcoming visit to the doctor. Try www.americanheartassociation.com search the word " vagal " and you will get a number of scientific papers that have been written on the topic of vagal afib. Quote Link to comment Share on other sites More sharing options...
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