Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Welcome Dennis. My mom has RA and I watched her suffer without the latest meds too. I feel so lucky to have gotten RA now compared to when she did. She had years of just taking aspirin. I remember her setting the alarm in the dark hours of the morning becuase she knew it would take her 3 hours to loosen up enough to get out of bed. Good luck at your next appt. Jennie > to the group, not the RA or Fibro! I'm Dennis and I've had RA since 1990. It > showed up after I spent the Christmas season getting ready for a seminar for > my reps and didn't have time to go to the Dr to treat the flu I had at that > time. It finally went away around the middle of Jan, and the Ra showed up in > early March. I've gone downhill since then. > > My mother, and at least 2 of her sisters, had it also, and I can't imagine > how much they had to suffer without the latest meds. So far, I'm the only > sibling to have it, and I hope none of them get it. I've been home- bound > quite often and was in bed for about 6 months during the first few years. > For some reason, most of my symptoms are in the muscle and soft tissue, not > the joints. X-rays don't show much damage to joints except in my neck. I > still don't understand that. > > I changed Rheumatologists this year since the old one moved away, and this > one had a plan for me to get my body under control and get off the > Prednesone and back to work. It was a good plan..., except my body didn't > listen to him. I've gone up from .4cc MTX orally, to 1cc injected, but still > have the same problems. I had to stop my anti-inflammatories because my > kidney function is going bad. My creatine level went up (supposedly) because > of an additional blood pressure pill, so I've been in lots of pain since > then. I just started taking a small amount of Clinoril this week and stopped > the new BP med. I'm having my blood work done next week and hope to have a > much better report. > > I expect my future posts won't be this long. > > Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Dennis, My RA showed up in a similar matter, it occured after an untreated infection. My RA isn't under control yet either. I also have a lot of soft tissue pain. Especially in the areas with the most joint pain. I just assumed it was Fibro ontop of the RA. I am new to this group, myself. Trust me, I have written a few long postings myself. It is great therapy. People in here listen, and offer their prayers, suggestions, and support. I have found them invaluable to have people who understand what it is you are going through. Take care and keep posting....Love and Prayers, Marina > to the group, not the RA or Fibro! I'm Dennis and I've had RA since 1990. It > showed up after I spent the Christmas season getting ready for a seminar for > my reps and didn't have time to go to the Dr to treat the flu I had at that > time. It finally went away around the middle of Jan, and the Ra showed up in > early March. I've gone downhill since then. > > My mother, and at least 2 of her sisters, had it also, and I can't imagine > how much they had to suffer without the latest meds. So far, I'm the only > sibling to have it, and I hope none of them get it. I've been home- bound > quite often and was in bed for about 6 months during the first few years. > For some reason, most of my symptoms are in the muscle and soft tissue, not > the joints. X-rays don't show much damage to joints except in my neck. I > still don't understand that. > > I changed Rheumatologists this year since the old one moved away, and this > one had a plan for me to get my body under control and get off the > Prednesone and back to work. It was a good plan..., except my body didn't > listen to him. I've gone up from .4cc MTX orally, to 1cc injected, but still > have the same problems. I had to stop my anti-inflammatories because my > kidney function is going bad. My creatine level went up (supposedly) because > of an additional blood pressure pill, so I've been in lots of pain since > then. I just started taking a small amount of Clinoril this week and stopped > the new BP med. I'm having my blood work done next week and hope to have a > much better report. > > I expect my future posts won't be this long. > > Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Welcome, Dennis! Long posts are just fine. Sorry that you've had such a rough time trying to get your RA under control. Are there any plans to add another DMARD soon? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Newbie... > to the group, not the RA or Fibro! I'm Dennis and I've had RA since 1990. It > showed up after I spent the Christmas season getting ready for a seminar for > my reps and didn't have time to go to the Dr to treat the flu I had at that > time. It finally went away around the middle of Jan, and the Ra showed up in > early March. I've gone downhill since then. > > My mother, and at least 2 of her sisters, had it also, and I can't imagine > how much they had to suffer without the latest meds. So far, I'm the only > sibling to have it, and I hope none of them get it. I've been home-bound > quite often and was in bed for about 6 months during the first few years. > For some reason, most of my symptoms are in the muscle and soft tissue, not > the joints. X-rays don't show much damage to joints except in my neck. I > still don't understand that. > > I changed Rheumatologists this year since the old one moved away, and this > one had a plan for me to get my body under control and get off the > Prednesone and back to work. It was a good plan..., except my body didn't > listen to him. I've gone up from .4cc MTX orally, to 1cc injected, but still > have the same problems. I had to stop my anti-inflammatories because my > kidney function is going bad. My creatine level went up (supposedly) because > of an additional blood pressure pill, so I've been in lots of pain since > then. I just started taking a small amount of Clinoril this week and stopped > the new BP med. I'm having my blood work done next week and hope to have a > much better report. > > I expect my future posts won't be this long. > > Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 Welcome Dennis. Sorry you've been having such a rough time with getting the RA under control. Hopefully your new rheumy will be aggressive and find something to give you relief. If the mtx isn't helping by itself, they sometimes add another dmard. I hope your blood tests come out better. a > to the group, not the RA or Fibro! I'm Dennis and I've had RA since 1990. It > showed up after I spent the Christmas season getting ready for a seminar for > my reps and didn't have time to go to the Dr to treat the flu I had at that > time. It finally went away around the middle of Jan, and the Ra showed up in > early March. I've gone downhill since then. > > My mother, and at least 2 of her sisters, had it also, and I can't imagine > how much they had to suffer without the latest meds. So far, I'm the only > sibling to have it, and I hope none of them get it. I've been home-bound > quite often and was in bed for about 6 months during the first few years. > For some reason, most of my symptoms are in the muscle and soft tissue, not > the joints. X-rays don't show much damage to joints except in my neck. I > still don't understand that. > > I changed Rheumatologists this year since the old one moved away, and this > one had a plan for me to get my body under control and get off the > Prednesone and back to work. It was a good plan..., except my body didn't > listen to him. I've gone up from .4cc MTX orally, to 1cc injected, but still > have the same problems. I had to stop my anti-inflammatories because my > kidney function is going bad. My creatine level went up (supposedly) because > of an additional blood pressure pill, so I've been in lots of pain since > then. I just started taking a small amount of Clinoril this week and stopped > the new BP med. I'm having my blood work done next week and hope to have a > much better report. > > I expect my future posts won't be this long. > > Dennis > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 The big problem with my new rheumy doesn't believe in pain meds stronger than Ultram! I can eat an entire bottle full and have no relief. Thank goodness my GP will go stronger. Right now I'm taking Vicadin with a Darvocett mixed in occasionally when I really need it. Besides, I just bought a new refill of the Darvocett and will not waste it. All this comes right out of my pocket until I can get a prescription card through the Medicare system. I'll play the game until the last quarter, which will be a long time from now, I hope. After all, I'm only 59.95. Dennis Re: [ ] Newbie... > Welcome Dennis. Sorry you've been having such a rough time with getting the > RA under control. Hopefully your new rheumy will be aggressive and find > something to give you relief. If the mtx isn't helping by itself, they > sometimes add another dmard. I hope your blood tests come out better. > a Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.