Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I have a lot of fatigue and only just recently found out (from this group) that mtx can cause fatigue. I had no idea. Anyway, I vote for less pain and swelling because the pain and swelling will likely lead to more joint destruction. I don't think fatigue can do that. Although someone recently posted a study that joint damage can occur even without obvious RA symptoms, but for now I'm going with the theory that if I have little pain and no swelling, I'm in good shape RA wise. It's hard to accept the give and take of all this. I have bone loss from the prednisone and someone asked me why they'd put my on the drug that can do that. I said because for one, the risk of bone loss was low (I'm just lucky I guess) and the alternative was way way way worse. Jennie --- In , " dreamer_plus " <dreamer_plus@w...> wrote: > I did notice, however that while I have LOTS more pain and swelling, I also have LOTS more awake time and less fatigue- at least for the moment--- > Now I am wondering gosh- do I live with the pain and swelling or go with the less awake time and more energy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I have a lot of fatigue and only just recently found out (from this group) that mtx can cause fatigue. I had no idea. Anyway, I vote for less pain and swelling because the pain and swelling will likely lead to more joint destruction. I don't think fatigue can do that. Although someone recently posted a study that joint damage can occur even without obvious RA symptoms, but for now I'm going with the theory that if I have little pain and no swelling, I'm in good shape RA wise. It's hard to accept the give and take of all this. I have bone loss from the prednisone and someone asked me why they'd put my on the drug that can do that. I said because for one, the risk of bone loss was low (I'm just lucky I guess) and the alternative was way way way worse. Jennie > I did notice, however that while I have LOTS more pain and swelling, I also have LOTS more awake time and less fatigue- at least for the moment--- > Now I am wondering gosh- do I live with the pain and swelling or go with the less awake time and more energy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I think I have an attitude problem. LOL. I was SO sick no money to be under docs care when I first got sick with all of this- and I was extremely sick, bedbound. SCREAMING. It was awful. I had to wait for Medicare to kick in and then I had to wait to save up for labwork- hard choices with 2 of our 3 kids also disabled and also my husband--- By the time I finally got to be on mtx, I was SO grateful to have so much less pain. BUT all my life I worked 2-3 jobs...It is hard for me to choose between pain or this level of fatigue. You would think I could just accept it and be glad I do not have that kind of pain. I guess I want it all? Quality of life? We have talked here a little about family and people outside of our homes judging us....I know people talk about me.... I am " lazy " I think sometimes that gets to me. At my most ill, noone saw me except my kids and hubby. Noone at all. This illness just seems to do all kinds of strange things to me and how I view things. No, I no longer work, not even 1 job. Most days, tho, I am glad to have this time with my family, hubby and kids, I mean. SO, there is a positive side here. Had I not gotten so sick I have no doubts I would still be working 100 hours a week. - In , " Jennie G " <xponder70@y...> wrote: > I have a lot of fatigue and only just recently found out (from this > group) that mtx can cause fatigue. I had no idea. Anyway, I vote > for less pain and swelling because the pain and swelling will likely > lead to more joint destruction. I don't think fatigue can do that. > Although someone recently posted a study that joint damage can occur > even without obvious RA symptoms, but for now I'm going with the > theory that if I have little pain and no swelling, I'm in good shape > RA wise. > > It's hard to accept the give and take of all this. I have bone loss > from the prednisone and someone asked me why they'd put my on the > drug that can do that. I said because for one, the risk of bone loss > was low (I'm just lucky I guess) and the alternative was way way way > worse. > > Jennie > > > > I did notice, however that while I have LOTS more pain and > swelling, I also have LOTS more awake time and less fatigue- at least > for the moment--- > > Now I am wondering gosh- do I live with the pain and swelling or go > with the less awake time and more energy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I think I have an attitude problem. LOL. I was SO sick no money to be under docs care when I first got sick with all of this- and I was extremely sick, bedbound. SCREAMING. It was awful. I had to wait for Medicare to kick in and then I had to wait to save up for labwork- hard choices with 2 of our 3 kids also disabled and also my husband--- By the time I finally got to be on mtx, I was SO grateful to have so much less pain. BUT all my life I worked 2-3 jobs...It is hard for me to choose between pain or this level of fatigue. You would think I could just accept it and be glad I do not have that kind of pain. I guess I want it all? Quality of life? We have talked here a little about family and people outside of our homes judging us....I know people talk about me.... I am " lazy " I think sometimes that gets to me. At my most ill, noone saw me except my kids and hubby. Noone at all. This illness just seems to do all kinds of strange things to me and how I view things. No, I no longer work, not even 1 job. Most days, tho, I am glad to have this time with my family, hubby and kids, I mean. SO, there is a positive side here. Had I not gotten so sick I have no doubts I would still be working 100 hours a week. - In , " Jennie G " <xponder70@y...> wrote: > I have a lot of fatigue and only just recently found out (from this > group) that mtx can cause fatigue. I had no idea. Anyway, I vote > for less pain and swelling because the pain and swelling will likely > lead to more joint destruction. I don't think fatigue can do that. > Although someone recently posted a study that joint damage can occur > even without obvious RA symptoms, but for now I'm going with the > theory that if I have little pain and no swelling, I'm in good shape > RA wise. > > It's hard to accept the give and take of all this. I have bone loss > from the prednisone and someone asked me why they'd put my on the > drug that can do that. I said because for one, the risk of bone loss > was low (I'm just lucky I guess) and the alternative was way way way > worse. > > Jennie > > > > I did notice, however that while I have LOTS more pain and > swelling, I also have LOTS more awake time and less fatigue- at least > for the moment--- > > Now I am wondering gosh- do I live with the pain and swelling or go > with the less awake time and more energy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 That is the bright spot for me. Although I didn't have to stop working, getting RA made me choose to change just about everything in my life. I was so far ahead of the game knowing exactly what this disease was because of my mom, and knowing what the drugs were and what they did. I got to skip most of the process of " accepting " my having RA because in the back of my mind I knew that possibility was always there. When the symptoms started and my mom and I both knew it was going to be RA, I realized that I had to start taking better care of myself and slow down. I have made so many changes since that time (most in the last year) that my life doesn't even resemble what it did then. I am so much happier, healthier (despite RA) and I know I am a better mother to my daughter. Jennie --- In , " dreamer_plus " <dreamer_plus@w...> wrote: Most days, tho, I am glad to have this time with my family, hubby and kids, I mean. SO, there is a positive side here. Had I not gotten so sick I have no doubts I would still be working 100 hours a week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 That is the bright spot for me. Although I didn't have to stop working, getting RA made me choose to change just about everything in my life. I was so far ahead of the game knowing exactly what this disease was because of my mom, and knowing what the drugs were and what they did. I got to skip most of the process of " accepting " my having RA because in the back of my mind I knew that possibility was always there. When the symptoms started and my mom and I both knew it was going to be RA, I realized that I had to start taking better care of myself and slow down. I have made so many changes since that time (most in the last year) that my life doesn't even resemble what it did then. I am so much happier, healthier (despite RA) and I know I am a better mother to my daughter. Jennie Most days, tho, I am glad to have this time with my family, hubby and kids, I mean. SO, there is a positive side here. Had I not gotten so sick I have no doubts I would still be working 100 hours a week. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 > I have a lot of fatigue and only just recently found out (from this > group) that mtx can cause fatigue. I have found that something as simple as a regular 10 p.m. bedtime helps a lot. S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 > I have a lot of fatigue and only just recently found out (from this > group) that mtx can cause fatigue. I have found that something as simple as a regular 10 p.m. bedtime helps a lot. S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I have made so many changes since that > time (most in the last year) that my life doesn't even resemble what > it did then. I am so much happier, healthier (despite RA) Me, too! In many ways it has been a gift. What are some of the changes you've made? S Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2004 Report Share Posted August 20, 2004 I have made so many changes since that > time (most in the last year) that my life doesn't even resemble what > it did then. I am so much happier, healthier (despite RA) Me, too! In many ways it has been a gift. What are some of the changes you've made? S Quote Link to comment Share on other sites More sharing options...
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