Re: new to group and need information

[Guest guest]

Welcome to the board DeeDee,

I am on Humira and I have had some rashes. I think it was maybe the

third month I was on it, I noticed a few days after that I would get

a rash on my knees. It was not that irritating, and my rheumy did

not seem concerned. Then a couple months later I started getting a

rash at the injection site. It lasts a day or more when I get it,

it's red and a little itchy. This last time I had that plus it

stayed swollen for a day or so after. But nothing all over or bad

enough to discuss switching to anything else.

I am sorry to hear about your struggles with medication. I am lucky

that my meds are working great for my RA at the moment, but I hope

someday to remarry (my divorce will be final very soon) and I just

don't feel like I'm done having kids yet (I am 33 and have a 4 year

old little girl). I know that the next time, if I am lucky enough

for it to happen, it will be a completely different ball game

because I didn't have RA when I had my daughter. I'm excited to

hear stories of women with RA having healthy babies.

I hope other's have some advice to give you regarding the

medications. But either way, stick around and you will learn a lot

from this group.

Jennie

--- In , " deedeegreen78739 " <ddgreen@a...>

wrote:

> Hi everyone! I am so happy to have found this message board. I

was

> diagnosed with RA about 7 years ago...it was very mild. Then I had

> my first baby and post partum, the flairs began...whew..I got

> agressive quick. I since have been up and down with prednisone

and

> used embrel once I was forced to quit breastfeeding my baby. The

> enbrel worked fine and I was able to go down to 3 mg of prednisone

> before my next planned pregnancy. (I know I should have quit

while

> I was ahead with one perfect baby). The RA DID NOT go into

> remission and I took 10 mg of prednisone my entire pregnancy (and

> was casted on my left ankle the last 2 1/2 months of pregnancy.)

> When I stopped nursing my baby, I tried enbrel but it never really

> got the flairs under control. I've been taking humira injections

> weekly along with 10mg of the dreaded prednisone. Sorry about the

> long history, but here is where I am needing advice; I've started

> gettign red spots (rash) all over my body from the humira. My

> rheumy prescrbed me zyrtec to control the rash and also did blood

> test. My levels have gone down alot so we decided to try enbrel

> again (start off with the standard 2 injections a week to see if

> that works and if not, bump it up to 3 injections). Does anyone

> have experience with going back and forth from enbrel to humira?

I

> am so nervous about the pain starting back up and having to jump

> back up on prednisone. I am now on 8mg of prednisone but he wants

> me to taper very slow since I've been at the same dose for so long

> (throughout my pregnancy and nursing and now, baby is 1 year

old).

> I did feel great on Enbrel before my second pregnancy but I fear

> that with each pregnancy my RA got more and more severe. (guess I

> will never have that girl....lol). Anyway, sorry about the long

> post, wanted to share alittle history to see if anyone had any

> advice? Thanks and I look forward to learing more.

> Also, I wanted to mention that I have gained about 22 lbs in the

> last 2 months, which is when the humira started working (along

with

> the rash). Anyone else notice anything like this? (that would

> definatly help me feel good about switching back to enbel)

> DeeDee

[Guest guest]

Welcome to the board DeeDee,

I am on Humira and I have had some rashes. I think it was maybe the

third month I was on it, I noticed a few days after that I would get

a rash on my knees. It was not that irritating, and my rheumy did

not seem concerned. Then a couple months later I started getting a

rash at the injection site. It lasts a day or more when I get it,

it's red and a little itchy. This last time I had that plus it

stayed swollen for a day or so after. But nothing all over or bad

enough to discuss switching to anything else.

I am sorry to hear about your struggles with medication. I am lucky

that my meds are working great for my RA at the moment, but I hope

someday to remarry (my divorce will be final very soon) and I just

don't feel like I'm done having kids yet (I am 33 and have a 4 year

old little girl). I know that the next time, if I am lucky enough

for it to happen, it will be a completely different ball game

because I didn't have RA when I had my daughter. I'm excited to

hear stories of women with RA having healthy babies.

I hope other's have some advice to give you regarding the

medications. But either way, stick around and you will learn a lot

from this group.

Jennie

> Hi everyone! I am so happy to have found this message board. I

was

> diagnosed with RA about 7 years ago...it was very mild. Then I had

> my first baby and post partum, the flairs began...whew..I got

> agressive quick. I since have been up and down with prednisone

and

> used embrel once I was forced to quit breastfeeding my baby. The

> enbrel worked fine and I was able to go down to 3 mg of prednisone

> before my next planned pregnancy. (I know I should have quit

while

> I was ahead with one perfect baby). The RA DID NOT go into

> remission and I took 10 mg of prednisone my entire pregnancy (and

> was casted on my left ankle the last 2 1/2 months of pregnancy.)

> When I stopped nursing my baby, I tried enbrel but it never really

> got the flairs under control. I've been taking humira injections

> weekly along with 10mg of the dreaded prednisone. Sorry about the

> long history, but here is where I am needing advice; I've started

> gettign red spots (rash) all over my body from the humira. My

> rheumy prescrbed me zyrtec to control the rash and also did blood

> test. My levels have gone down alot so we decided to try enbrel

> again (start off with the standard 2 injections a week to see if

> that works and if not, bump it up to 3 injections). Does anyone

> have experience with going back and forth from enbrel to humira?

I

> am so nervous about the pain starting back up and having to jump

> back up on prednisone. I am now on 8mg of prednisone but he wants

> me to taper very slow since I've been at the same dose for so long

> (throughout my pregnancy and nursing and now, baby is 1 year

old).

> I did feel great on Enbrel before my second pregnancy but I fear

> that with each pregnancy my RA got more and more severe. (guess I

> will never have that girl....lol). Anyway, sorry about the long

> post, wanted to share alittle history to see if anyone had any

> advice? Thanks and I look forward to learing more.

> Also, I wanted to mention that I have gained about 22 lbs in the

> last 2 months, which is when the humira started working (along

with

> the rash). Anyone else notice anything like this? (that would

> definatly help me feel good about switching back to enbel)

> DeeDee

[Guest guest]

Welcome to the group, DeeDee! Sorry you are having such problems.

Have you considered using methotrexate (MTX) along with the Enbrel or

Humira at any time? Since you are now returning to Enbrel after getting

what sounds like a pretty significant rash from the Humira, you may find

the Enbrel more effective and you may be less likely to experience an

adverse reaction to it if you are taking MTX, too.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] new to group and need information

> Hi everyone! I am so happy to have found this message board. I was

> diagnosed with RA about 7 years ago...it was very mild. Then I had

> my first baby and post partum, the flairs began...whew..I got

> agressive quick. I since have been up and down with prednisone and

> used embrel once I was forced to quit breastfeeding my baby. The

> enbrel worked fine and I was able to go down to 3 mg of prednisone

> before my next planned pregnancy. (I know I should have quit while

> I was ahead with one perfect baby). The RA DID NOT go into

> remission and I took 10 mg of prednisone my entire pregnancy (and

> was casted on my left ankle the last 2 1/2 months of pregnancy.)

> When I stopped nursing my baby, I tried enbrel but it never really

> got the flairs under control. I've been taking humira injections

> weekly along with 10mg of the dreaded prednisone. Sorry about the

> long history, but here is where I am needing advice; I've started

> gettign red spots (rash) all over my body from the humira. My

> rheumy prescrbed me zyrtec to control the rash and also did blood

> test. My levels have gone down alot so we decided to try enbrel

> again (start off with the standard 2 injections a week to see if

> that works and if not, bump it up to 3 injections). Does anyone

> have experience with going back and forth from enbrel to humira? I

> am so nervous about the pain starting back up and having to jump

> back up on prednisone. I am now on 8mg of prednisone but he wants

> me to taper very slow since I've been at the same dose for so long

> (throughout my pregnancy and nursing and now, baby is 1 year old).

> I did feel great on Enbrel before my second pregnancy but I fear

> that with each pregnancy my RA got more and more severe. (guess I

> will never have that girl....lol). Anyway, sorry about the long

> post, wanted to share alittle history to see if anyone had any

> advice? Thanks and I look forward to learing more.

> Also, I wanted to mention that I have gained about 22 lbs in the

> last 2 months, which is when the humira started working (along with

> the rash). Anyone else notice anything like this? (that would

> definatly help me feel good about switching back to enbel)

> DeeDee

[Guest guest]

Welcome to the group, DeeDee! Sorry you are having such problems.

Have you considered using methotrexate (MTX) along with the Enbrel or

Humira at any time? Since you are now returning to Enbrel after getting

what sounds like a pretty significant rash from the Humira, you may find

the Enbrel more effective and you may be less likely to experience an

adverse reaction to it if you are taking MTX, too.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] new to group and need information

> Hi everyone! I am so happy to have found this message board. I was

> diagnosed with RA about 7 years ago...it was very mild. Then I had

> my first baby and post partum, the flairs began...whew..I got

> agressive quick. I since have been up and down with prednisone and

> used embrel once I was forced to quit breastfeeding my baby. The

> enbrel worked fine and I was able to go down to 3 mg of prednisone

> before my next planned pregnancy. (I know I should have quit while

> I was ahead with one perfect baby). The RA DID NOT go into

> remission and I took 10 mg of prednisone my entire pregnancy (and

> was casted on my left ankle the last 2 1/2 months of pregnancy.)

> When I stopped nursing my baby, I tried enbrel but it never really

> got the flairs under control. I've been taking humira injections

> weekly along with 10mg of the dreaded prednisone. Sorry about the

> long history, but here is where I am needing advice; I've started

> gettign red spots (rash) all over my body from the humira. My

> rheumy prescrbed me zyrtec to control the rash and also did blood

> test. My levels have gone down alot so we decided to try enbrel

> again (start off with the standard 2 injections a week to see if

> that works and if not, bump it up to 3 injections). Does anyone

> have experience with going back and forth from enbrel to humira? I

> am so nervous about the pain starting back up and having to jump

> back up on prednisone. I am now on 8mg of prednisone but he wants

> me to taper very slow since I've been at the same dose for so long

> (throughout my pregnancy and nursing and now, baby is 1 year old).

> I did feel great on Enbrel before my second pregnancy but I fear

> that with each pregnancy my RA got more and more severe. (guess I

> will never have that girl....lol). Anyway, sorry about the long

> post, wanted to share alittle history to see if anyone had any

> advice? Thanks and I look forward to learing more.

> Also, I wanted to mention that I have gained about 22 lbs in the

> last 2 months, which is when the humira started working (along with

> the rash). Anyone else notice anything like this? (that would

> definatly help me feel good about switching back to enbel)

> DeeDee