Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 This is just me personally----a warm bath helps me more than anything. Sometimes I need help geetting in and sometimes getting out as well....but the warm water works wonders. I also use Aspercream sometimes. I have found that coffee - even decaf (maybe especially decaf) and absolutely those cappucino drinks make me feel LOTS worse. I use half and half and sugar in my coffee- so maybe it is the coffee, or maybe the additives, I am not sure. I love to stretch, my husband has always teased me and called me a cat- but when I am stiff or sore- stretching really hurts badly- actually I think the inability to stretch is one of my biggest complaints when I am stiff and sore. I mean, that I cannot stretch quite the way I normally would--- - In , " WhosDreamn " <krimoore@c...> wrote: > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 This is just me personally----a warm bath helps me more than anything. Sometimes I need help geetting in and sometimes getting out as well....but the warm water works wonders. I also use Aspercream sometimes. I have found that coffee - even decaf (maybe especially decaf) and absolutely those cappucino drinks make me feel LOTS worse. I use half and half and sugar in my coffee- so maybe it is the coffee, or maybe the additives, I am not sure. I love to stretch, my husband has always teased me and called me a cat- but when I am stiff or sore- stretching really hurts badly- actually I think the inability to stretch is one of my biggest complaints when I am stiff and sore. I mean, that I cannot stretch quite the way I normally would--- - In , " WhosDreamn " <krimoore@c...> wrote: > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 RA isn't something only older people get. Anyone can get it at almost any age. I was diagnosed 2 years ago at the age of 32. The arthritis foundation has some onformation on RA and you can get free broshures on the subject matter as well. Stiffness is a major issue for me too. RA is very different from regular arthritis (osteoarthritis). RA is immunological where as OA is wear and tear. Warm baths really does help. Or hot showers. My water bill has gone up a bit because I take long hot showers. Once I start to loosen up I stretch a lot in the water. Another thing that helps are hot tubs. Some companies will actually help you get one and write it off on taxes as medical neccesity. This is a great group to get info from as well as a great place to vent. I am fairly new to the group as well and have found them invaluable. Good Luck and I'll keep you guys in my prayers........Marina in Canal WInchester, Ohio > This is just me personally----a warm bath helps me more than anything. Sometimes I need help geetting in and sometimes getting out as well....but the warm water works wonders. I also use Aspercream sometimes. > > I have found that coffee - even decaf (maybe especially decaf) and absolutely those cappucino drinks make me feel LOTS worse. I use half and half and sugar in my coffee- so maybe it is the coffee, or maybe the additives, I am not sure. > > I love to stretch, my husband has always teased me and called me a cat- but when I am stiff or sore- stretching really hurts badly- actually I think the inability to stretch is one of my biggest complaints when I am stiff and sore. I mean, that I cannot stretch quite the way I normally would--- > > - In , " WhosDreamn " <krimoore@c...> wrote: > > Hi All, > > I'm a newbie to the group and trying to get as much info and > > understanding as I can on this disease. My husband has had gradually > > increasing pain and stiffness for the last three months was diagnosed > > with RA last week by his rhuematoligist. He has tried Celebrex and > > is now on cortisone pills. They have helped the pain /swelling by > > about 60% he says but hasn't done much for the stiffness. Any > > suggestions? He's still working thru the idea that at 39 years old > > he's got something he thought only older people have so we/he are > > still in the process of understanding and accepting, but I'd like to > > be ready to help when he is ready to accept help. What helps > > everyone else with the stiffness? yoga? stretching? hot baths? > > another med? cutting out certain foods? anything? = ) > > > > Thanks all > > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 RA isn't something only older people get. Anyone can get it at almost any age. I was diagnosed 2 years ago at the age of 32. The arthritis foundation has some onformation on RA and you can get free broshures on the subject matter as well. Stiffness is a major issue for me too. RA is very different from regular arthritis (osteoarthritis). RA is immunological where as OA is wear and tear. Warm baths really does help. Or hot showers. My water bill has gone up a bit because I take long hot showers. Once I start to loosen up I stretch a lot in the water. Another thing that helps are hot tubs. Some companies will actually help you get one and write it off on taxes as medical neccesity. This is a great group to get info from as well as a great place to vent. I am fairly new to the group as well and have found them invaluable. Good Luck and I'll keep you guys in my prayers........Marina in Canal WInchester, Ohio > > Hi All, > > I'm a newbie to the group and trying to get as much info and > > understanding as I can on this disease. My husband has had gradually > > increasing pain and stiffness for the last three months was diagnosed > > with RA last week by his rhuematoligist. He has tried Celebrex and > > is now on cortisone pills. They have helped the pain /swelling by > > about 60% he says but hasn't done much for the stiffness. Any > > suggestions? He's still working thru the idea that at 39 years old > > he's got something he thought only older people have so we/he are > > still in the process of understanding and accepting, but I'd like to > > be ready to help when he is ready to accept help. What helps > > everyone else with the stiffness? yoga? stretching? hot baths? > > another med? cutting out certain foods? anything? = ) > > > > Thanks all > > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Welcome to the group e. It is definitely a process to accept that you have a chronic illness. Understanding exactly what RA is will help with that, and over time he will accept it. When you say cortisone pills, do you mean prednisone? I am on that, and so are a lot of RA patients. But it is not a good long-term treatment due to some of the side effects. Short term it is very effective for getting the RA under control. Going forward his rheumatologist (rheumy) will likely put in him on a DMARD (disease modifying anti- rheumatic drug). It will be helpful for him to learn as much about RA drugs as he can, so when he see's the rheumy he can participate in the decision and discussion of alternative courses of treatment - this will make him feel more in control of the disease instead of the other way around. The first DMARD a lot of RA patients start is methotrexate (mtx). For some people, they can stay on mtx the rest of their lives and have it control their RA just fine. For many, the disease progresses (it is what happens with RA) and adding another drug is necessary. There are several biological drugs (Enbrel, Remicade and Humira) that can treat RA very effectively and slow or prevent the diseases progression. There are a lot of other options for RA you will read about here, I'm just not familiar with them all. I have found the best thing for my morning stiffness is to get the RA under control with medication. If you do that, the stiffness might go away. I have not had stiffness for several months (I do have lots of fatigue though, and mtx can make that worse). I take prednisone (weaning off), mtx (17.5mgs weekly), folic acid (to limit side effects of mtx), and Humira (injection every other week). The stiffness went mostly away after starting mtx, but 6 months later came roaring back. After starting Humira I mostly just had problems with my feet, but exercising has helped that now. Exercise is an important part of feeling better when you have RA. It's hard to force yourself to do it though. Also, sometimes a person can't do the same types of exercises as they might have in the past (like running or walking) because of the high impact (it really hurts). For me, weight lifting, swimming and the eliptical machine have been the best. If the treatment the rheumy has him on is not enough to make him feel functional, he needs to call the rheumy and let him know. When is his next appt? When to " wait and see what happens " and when to change the course of the medication is very subjective and requires open communication between patient and doctor. Letting the doctor know what is going on will allow him to decide if your husband should come in sooner or wait until the next scheduled visit. Welcome and I hope you learn a lot here, this is a wonderful group and an amazing source of information about RA and treatment of RA. Jennie By the way, I am 33 years old, mother of a beautiful 4 year old girl and have had RA for a little over a year. > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Welcome to the group e. It is definitely a process to accept that you have a chronic illness. Understanding exactly what RA is will help with that, and over time he will accept it. When you say cortisone pills, do you mean prednisone? I am on that, and so are a lot of RA patients. But it is not a good long-term treatment due to some of the side effects. Short term it is very effective for getting the RA under control. Going forward his rheumatologist (rheumy) will likely put in him on a DMARD (disease modifying anti- rheumatic drug). It will be helpful for him to learn as much about RA drugs as he can, so when he see's the rheumy he can participate in the decision and discussion of alternative courses of treatment - this will make him feel more in control of the disease instead of the other way around. The first DMARD a lot of RA patients start is methotrexate (mtx). For some people, they can stay on mtx the rest of their lives and have it control their RA just fine. For many, the disease progresses (it is what happens with RA) and adding another drug is necessary. There are several biological drugs (Enbrel, Remicade and Humira) that can treat RA very effectively and slow or prevent the diseases progression. There are a lot of other options for RA you will read about here, I'm just not familiar with them all. I have found the best thing for my morning stiffness is to get the RA under control with medication. If you do that, the stiffness might go away. I have not had stiffness for several months (I do have lots of fatigue though, and mtx can make that worse). I take prednisone (weaning off), mtx (17.5mgs weekly), folic acid (to limit side effects of mtx), and Humira (injection every other week). The stiffness went mostly away after starting mtx, but 6 months later came roaring back. After starting Humira I mostly just had problems with my feet, but exercising has helped that now. Exercise is an important part of feeling better when you have RA. It's hard to force yourself to do it though. Also, sometimes a person can't do the same types of exercises as they might have in the past (like running or walking) because of the high impact (it really hurts). For me, weight lifting, swimming and the eliptical machine have been the best. If the treatment the rheumy has him on is not enough to make him feel functional, he needs to call the rheumy and let him know. When is his next appt? When to " wait and see what happens " and when to change the course of the medication is very subjective and requires open communication between patient and doctor. Letting the doctor know what is going on will allow him to decide if your husband should come in sooner or wait until the next scheduled visit. Welcome and I hope you learn a lot here, this is a wonderful group and an amazing source of information about RA and treatment of RA. Jennie By the way, I am 33 years old, mother of a beautiful 4 year old girl and have had RA for a little over a year. > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 I just wanted to add that I only exercise when I'm feeling good, which would be in the afternoons but since I am at work then, I exercise in the evenings. I never have enough energy to do it in the mornings. I know stretching and yoga exercises are good when you are stiff. My mom, who also has RA, does morning exercises and they help her a lot. I have to drag myself out of bed every morning (due to lack of energy) and it's a miracle I make it into work at all, so personally I have never exercised in the mornings. Jennie Exercise is an > important part of feeling better when you have RA. It's hard to > force yourself to do it though. Also, sometimes a person can't do > the same types of exercises as they might have in the past (like > running or walking) because of the high impact (it really hurts). > For me, weight lifting, swimming and the eliptical machine have been > the best. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 I just wanted to add that I only exercise when I'm feeling good, which would be in the afternoons but since I am at work then, I exercise in the evenings. I never have enough energy to do it in the mornings. I know stretching and yoga exercises are good when you are stiff. My mom, who also has RA, does morning exercises and they help her a lot. I have to drag myself out of bed every morning (due to lack of energy) and it's a miracle I make it into work at all, so personally I have never exercised in the mornings. Jennie Exercise is an > important part of feeling better when you have RA. It's hard to > force yourself to do it though. Also, sometimes a person can't do > the same types of exercises as they might have in the past (like > running or walking) because of the high impact (it really hurts). > For me, weight lifting, swimming and the eliptical machine have been > the best. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 Welcome to the group this is a great place to come and learn I was diagnosed with RA a few months ago for my stiffness i take hot showers and just move and try to stretch some while in there. By the way I am 30 years old and I also at one time thought this was just an old person problem but it definetly isn't I will be thinking of you guys please read as many posts as you can you will learn quite a bit Angie -- In , " WhosDreamn " <krimoore@c...> wrote: > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2004 Report Share Posted August 28, 2004 Welcome to the group this is a great place to come and learn I was diagnosed with RA a few months ago for my stiffness i take hot showers and just move and try to stretch some while in there. By the way I am 30 years old and I also at one time thought this was just an old person problem but it definetly isn't I will be thinking of you guys please read as many posts as you can you will learn quite a bit Angie -- In , " WhosDreamn " <krimoore@c...> wrote: > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Welcome to the group, e! Sorry about your husband's diagnosis and that he's not doing well. His best bet for improving how he is feeling is to be on the right treatment regimen. Disease modifying antirheumatic drugs (DMARDs) are the most important part of successfully treating RA. For much useful information on RA and its treatments, please see a's site: http://rheumatoid.arthritis.freehosting.net/ This article, from the Hospital for Special Surgery entitled, " How Medication Decisions are Made in RA Treatment, " is a very good summary: http://rheumatology.hss.edu/pat/eduprograms/livingra/medicationra.asp I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Stiffness in the morning > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Welcome to the group, e! Sorry about your husband's diagnosis and that he's not doing well. His best bet for improving how he is feeling is to be on the right treatment regimen. Disease modifying antirheumatic drugs (DMARDs) are the most important part of successfully treating RA. For much useful information on RA and its treatments, please see a's site: http://rheumatoid.arthritis.freehosting.net/ This article, from the Hospital for Special Surgery entitled, " How Medication Decisions are Made in RA Treatment, " is a very good summary: http://rheumatology.hss.edu/pat/eduprograms/livingra/medicationra.asp I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Stiffness in the morning > Hi All, > I'm a newbie to the group and trying to get as much info and > understanding as I can on this disease. My husband has had gradually > increasing pain and stiffness for the last three months was diagnosed > with RA last week by his rhuematoligist. He has tried Celebrex and > is now on cortisone pills. They have helped the pain /swelling by > about 60% he says but hasn't done much for the stiffness. Any > suggestions? He's still working thru the idea that at 39 years old > he's got something he thought only older people have so we/he are > still in the process of understanding and accepting, but I'd like to > be ready to help when he is ready to accept help. What helps > everyone else with the stiffness? yoga? stretching? hot baths? > another med? cutting out certain foods? anything? = ) > > Thanks all > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Hi e and welcome to our group. I am sorry to hear about your husband's diagnosis. It is hard to accept that you have this disease, but one thing you need to remind him is that there are very young people with the disease, it doesn't respect age bounderies or race. Maybe you could invite him to read some of the posts, that way he can see that we are all on different meds and we all handle this in many different ways. I will keep you in my prayers and thoughts. ~ROSA~ > Welcome to the group, e! Sorry about your husband's diagnosis and > that he's not doing well. > > His best bet for improving how he is feeling is to be on the right > treatment regimen. Disease modifying antirheumatic drugs (DMARDs) are > the most important part of successfully treating RA. > > > For much useful information on RA and its treatments, please see a's > site: > > http://rheumatoid.arthritis.freehosting.net/ > > > This article, from the Hospital for Special Surgery entitled, " How > Medication Decisions are Made in RA Treatment, " is a very good summary: > > http://rheumatology.hss.edu/pat/eduprograms/livingra/medicationra.asp > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] Stiffness in the morning > > > > Hi All, > > I'm a newbie to the group and trying to get as much info and > > understanding as I can on this disease. My husband has had gradually > > increasing pain and stiffness for the last three months was diagnosed > > with RA last week by his rhuematoligist. He has tried Celebrex and > > is now on cortisone pills. They have helped the pain /swelling by > > about 60% he says but hasn't done much for the stiffness. Any > > suggestions? He's still working thru the idea that at 39 years old > > he's got something he thought only older people have so we/he are > > still in the process of understanding and accepting, but I'd like to > > be ready to help when he is ready to accept help. What helps > > everyone else with the stiffness? yoga? stretching? hot baths? > > another med? cutting out certain foods? anything? = ) > > > > Thanks all > > e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2004 Report Share Posted August 29, 2004 Hi e and welcome to our group. I am sorry to hear about your husband's diagnosis. It is hard to accept that you have this disease, but one thing you need to remind him is that there are very young people with the disease, it doesn't respect age bounderies or race. Maybe you could invite him to read some of the posts, that way he can see that we are all on different meds and we all handle this in many different ways. I will keep you in my prayers and thoughts. ~ROSA~ > Welcome to the group, e! Sorry about your husband's diagnosis and > that he's not doing well. > > His best bet for improving how he is feeling is to be on the right > treatment regimen. Disease modifying antirheumatic drugs (DMARDs) are > the most important part of successfully treating RA. > > > For much useful information on RA and its treatments, please see a's > site: > > http://rheumatoid.arthritis.freehosting.net/ > > > This article, from the Hospital for Special Surgery entitled, " How > Medication Decisions are Made in RA Treatment, " is a very good summary: > > http://rheumatology.hss.edu/pat/eduprograms/livingra/medicationra.asp > > > > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] Stiffness in the morning > > > > Hi All, > > I'm a newbie to the group and trying to get as much info and > > understanding as I can on this disease. My husband has had gradually > > increasing pain and stiffness for the last three months was diagnosed > > with RA last week by his rhuematoligist. He has tried Celebrex and > > is now on cortisone pills. They have helped the pain /swelling by > > about 60% he says but hasn't done much for the stiffness. Any > > suggestions? He's still working thru the idea that at 39 years old > > he's got something he thought only older people have so we/he are > > still in the process of understanding and accepting, but I'd like to > > be ready to help when he is ready to accept help. What helps > > everyone else with the stiffness? yoga? stretching? hot baths? > > another med? cutting out certain foods? anything? = ) > > > > Thanks all > > e Quote Link to comment Share on other sites More sharing options...
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