Re: conspiracy

[Guest guest]

Joyce and ,

I think these Dr.'s can't think of anymore medications so they attack out

GOOD STUFF.. I had to quit caffeine one time I started slow half decaff half

reg and so on. Can you say a week long headache.. I just can not do without

my coffee. Sorry you have to give it up. Do it slowly. just think that is

what your Dr will tell you in a week or so. and cut back slowly.

I think I could have written the book about prednisone symptoms.

My Dr. kept telling me every thing I was feeling was prednisone.

no more I hope. They say after transplant everyone gains weight that is one

reason they want you as thin and in good shape as possible.. " I've got their

shape " God Bless you .

Much Love and Prayers, Peggy 9/04 ipf

> Joyce,

> My doctor said no caffiene too and it felt like the ultimate last straw! I

> was good for 2 weeks and then went back but STARTING TOMORROW I am going back

> on my diet and will be good!!!! I am sorry about your doctor appt. I

> have found that going to the doctors is always my worst time. It takes me

> days afterwards to recooperate. Mainly because they always give me bad news,

> but also because every time I go I feel like one more thing is taken away. I

> just finished read " Coping with prednisone " and it was great. Explained lots

> of my symptoms like bone pain and gave some really good salt free sugar free

> recipes. I think Leanne was on to something and we need to start a cookbook

> full of yummy things with no salt and no sugar. Take care -

> Sarcoid/PF 3/06

>

>

> Joyce wrote:

> I went back to the see the ENT doc yesturday. Another afternoon spent in a

> waiting room. He went back up the nose and down the throat with that dreaded

> scope and looked at my larynx again. This time he had a new machine with a

> tv screen that I could watch. He showed me the lesions there...and

> inflamation and swelling. He said biopsy was out of the question as per

> cardiologist. Anesthesia would be risky because of lungs also. Sooo, he

> wanted to see if there were changes that would further point to malignancy.

> He said nothing had changed. It had not gotten worse, not better but not

> worse. I go back in two more months for another scope. He still does not

> know what caused it...bacterial, fungal, coughing, meds or reflux. Is

> leaning toward reflux.

> He increased my Prilosec and told me no caffiene. NO CAFFIENE!!! Waaaagh

> Why get up in the morning? No eating 3 hours before bedtime... Booo Hoooo!

> My favorite eating time.

> So, I am still barely croaking, hungry and have a caffiene withdrawel

> headache. I have felt like my hat is too tight all day. (I don't have a hat)

> O.K. Everyone say....OH POOR BABY! ...............oh yes, I feel better now!

> Hugs,

> Joyce PF 1997

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