Re: Anyone on kineret? (i also need to vent a little)

[Guest guest]

I am sorry you are having problems I understand how you feel as i

am still having a lot of pain Where in Ohio do you live I live in

lin Have been seeing a doctor in dayton but have to find

another I hope you get some relief soon I will be thinking of you

Angie

--- In , " marina_troi " <nefertiti@i...>

wrote:

> I was wondering if anyone is taking kineret and how they may be

> doing with it. I have been to the web sites and all. I had been

> getting remicade every 4 weeks at 1300mg. The good effects are

> dwindeling amd the bad ones are not. I am still taking 20mg

> methotrexate every week and 400mg plaquinal everyday. I throw in

> the occassional high dose of prednisone for kicks (just kidding).

I

> have been needing the steriods more frequently, though. I have

been

> having a lot of pain over the last few weeks. Some days I can't

> even get out of bed. It gets so bad, I just narc up and try to

> sleep (easier said than done). The restless leg syndrome drives

me

> bonkers!!! Any thoughts? Thanks for listening!!...Marina in Ohio

[Guest guest]

I am sorry you are having problems I understand how you feel as i

am still having a lot of pain Where in Ohio do you live I live in

lin Have been seeing a doctor in dayton but have to find

another I hope you get some relief soon I will be thinking of you

Angie

> I was wondering if anyone is taking kineret and how they may be

> doing with it. I have been to the web sites and all. I had been

> getting remicade every 4 weeks at 1300mg. The good effects are

> dwindeling amd the bad ones are not. I am still taking 20mg

> methotrexate every week and 400mg plaquinal everyday. I throw in

> the occassional high dose of prednisone for kicks (just kidding).

I

> have been needing the steriods more frequently, though. I have

been

> having a lot of pain over the last few weeks. Some days I can't

> even get out of bed. It gets so bad, I just narc up and try to

> sleep (easier said than done). The restless leg syndrome drives

me

> bonkers!!! Any thoughts? Thanks for listening!!...Marina in Ohio

[Guest guest]

Marina, we do have some members who have used or are using Kineret

(anakinra). At least two that I can think of are doing well on it, but

they do not write the group regularly.

You also have the option of switching to another anti-TNF biologic.

Studies have shown that you can fail one yet be successful with another.

Sorry that you aren't doing well. I hope that changes soon!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Anyone on kineret? (i also need to vent a little)

> I was wondering if anyone is taking kineret and how they may be

> doing with it. I have been to the web sites and all. I had been

> getting remicade every 4 weeks at 1300mg. The good effects are

> dwindeling amd the bad ones are not. I am still taking 20mg

> methotrexate every week and 400mg plaquinal everyday. I throw in

> the occassional high dose of prednisone for kicks (just kidding). I

> have been needing the steriods more frequently, though. I have been

> having a lot of pain over the last few weeks. Some days I can't

> even get out of bed. It gets so bad, I just narc up and try to

> sleep (easier said than done). The restless leg syndrome drives me

> bonkers!!! Any thoughts? Thanks for listening!!...Marina in Ohio

[Guest guest]

Marina, we do have some members who have used or are using Kineret

(anakinra). At least two that I can think of are doing well on it, but

they do not write the group regularly.

You also have the option of switching to another anti-TNF biologic.

Studies have shown that you can fail one yet be successful with another.

Sorry that you aren't doing well. I hope that changes soon!

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Anyone on kineret? (i also need to vent a little)

> I was wondering if anyone is taking kineret and how they may be

> doing with it. I have been to the web sites and all. I had been

> getting remicade every 4 weeks at 1300mg. The good effects are

> dwindeling amd the bad ones are not. I am still taking 20mg

> methotrexate every week and 400mg plaquinal everyday. I throw in

> the occassional high dose of prednisone for kicks (just kidding). I

> have been needing the steriods more frequently, though. I have been

> having a lot of pain over the last few weeks. Some days I can't

> even get out of bed. It gets so bad, I just narc up and try to

> sleep (easier said than done). The restless leg syndrome drives me

> bonkers!!! Any thoughts? Thanks for listening!!...Marina in Ohio

[Guest guest]

Thank you . :-) Marina

> Marina, we do have some members who have used or are using Kineret

> (anakinra). At least two that I can think of are doing well on it,

but

> they do not write the group regularly.

>

> You also have the option of switching to another anti-TNF biologic.

> Studies have shown that you can fail one yet be successful with

another.

>

> Sorry that you aren't doing well. I hope that changes soon!

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

[Guest guest]

Thank you . :-) Marina

> Marina, we do have some members who have used or are using Kineret

> (anakinra). At least two that I can think of are doing well on it,

but

> they do not write the group regularly.

>

> You also have the option of switching to another anti-TNF biologic.

> Studies have shown that you can fail one yet be successful with

another.

>

> Sorry that you aren't doing well. I hope that changes soon!

>

>

>

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

>

[Guest guest]

Hey Angie!! Thanks for the reply. I am in Canal WInchester. If

you are looking for someone new, I highly recommend The Columbus

Arthritis Group. I went there for a second opinion and just stayed

with them. There are several docs in this group and they all come

highly recommended by my ortho guy. My prayers are out to you.

Marina

> I am sorry you are having problems I understand how you feel as i

> am still having a lot of pain Where in Ohio do you live I live

in

> lin Have been seeing a doctor in dayton but have to find

> another I hope you get some relief soon I will be thinking of you

> Angie

>

>

[Guest guest]

Hey Angie!! Thanks for the reply. I am in Canal WInchester. If

you are looking for someone new, I highly recommend The Columbus

Arthritis Group. I went there for a second opinion and just stayed

with them. There are several docs in this group and they all come

highly recommended by my ortho guy. My prayers are out to you.

Marina

> I am sorry you are having problems I understand how you feel as i

> am still having a lot of pain Where in Ohio do you live I live

in

> lin Have been seeing a doctor in dayton but have to find

> another I hope you get some relief soon I will be thinking of you

> Angie

>

>