TONI/ BURNING FEET

[Guest guest]

DEAR TONI,

YOU COULD HEACE JUST BEEN WRITING ABOUT ME. I HAVE BEEN THIS WAY

FOR OVER A YEAR. FINALLY, AFTER BEING DIAGNOSED WITH RA AND TRYING

TO DESPERATELY GET SOMEONE TO UNDERSTAND ME, A CHIEF OF STAFF AT

MARSHFIELD RHEUMOTOLOGY CAUGHT ON WHEN I SAID BURNING, I WAS

IMMEDIATELY WHISKED OFF TO A NEUROLOGIST.

MY LIFE FINALLY CHANGED, I COULD NOT EVEN STAND TO BRUSH MY TEETH,

I COULD NOT WALK, THE BURNING, FIERY PAIN, FALLING ASLEEP IN MY

FEET, CHARLEY HORSES IN MY TOES, EVERYTHING WAS SO EXCRUCIATING IT

WAS WORSE THAN MY RHEUMATOID ARTHRITIS WHICH IS SEVERE AND

AGGRESSIVE. I HAD A NAME ! I HAVE NEUROPATHIC NERVE PAIN !

APPARENTLY, THE NERVES THINK THEY ARE HURTING BUT THEY REALLY AREN'T

IN A FIRE OR ANYTHING ELSE. I WAS PUT ON NEURONTIN, GRADUALLY

INCREASING THE DOSAGE TO THE HIGHEST LEVEL, STILL IT IS HORRIBLE, I

CANT STAND LONG, I NEED A WHEELCHAIR, I AM NOW OVER THE HIGHEST

LEVEL OF NEURONTIN. NEUROPATHIC PAIN IS ALMOST UNTREATABLE, I AM SO

SORRY TONI. BUT, YOU MUST GET YOURSELF TO A NEUROLOGIST IMMEDIATELY.

THEY MAY BE ABLE TO HELP YOU BETTER THAN ME. I AM TOTALLY DISABLED

NOW. I HAVE RA, AND FIBROMYALGIA AND THE NEUROPATHIC PAIN IS WORSE

THAN THE OTHER 2 COMBINED AND NEVER EVER LETS UP. I CAN BARELY STAND

TO TAKE A SHOWER, DO A SINK OF DISHES, CAN'T WALKT THROUGH A STORE,

MY WHOLE LIFE IS UPSIDE DOWN AND I HAVE NOT BEEN ABLE TO DRIVE A CAR

FOR OVER A YEAR. I AM ONLY 44 YEARS OLD. AND I WAS DRIVING A 7120

CASE TRACTOR AND WORKING LAND LOADING SEMI'S AND WAREHOUSES WITH MY

HUSBAND ON OUR SEED POTATO FARM. NOW I CAN NOT EVEN WALK TO THE

MAILBOX, AND FORGET ABOUT GETTING ON A PAIR OF SHOES, I GO

EVERYWHERE IN SLIPPERS OR THONGS, I LIVE IN WISCONSIN, WHAT WILL I

WEAR IN THE WINTER ?

GOOD LUCK, CINDI HEIN

YOU CAN WRITE ME OFF GROUP IF YOU NEED TO

heinscsf@...