Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 Hello Everyone, I am not sure if I have given my welcome to all the newcomers. If I have't please forgive me cause this ole' brain forgets sometimes. I have a bad habit of reading the posts and say to myself I will go back and reply to that one and then by the time I have read them all I forget which one(s) I am supposed to reply to. LOL!!!! So if you were missed I am welcoming you now. There are such nice people in this group. I also want to thank all of the ones that find information on different topics or items concerning our RA, Lupus, Fibromyalgia and all. They are so helpful and helps me to learn so many different things. I also keep all of you in my prayers daily. I know God watches over us. That quote that God will never give us more than we can handle. Man he must think we can handle more then we think we can. I know in my case it is so very true. I often wonder, Lord how much more do you think I can handle? But, I just pray and keep on going. I know he will take care of me and one day when I meet him on the other side I will never ever have to hurt or be in pain again. What a wonderful feeling. I better stop now some will think I am trying to preach. But, I am not. Just typing my feelings to my online friends. I also am keeping all in my prayers that have certain situations with family members or theirselves coming up like surgery, tests, treatments or whatever else. So, if I missed putting out a reply to any of you in this situations again forgive me. Even if no reply from me you are still in my prayers. Sorry to have typed such a long e-mail but just have words on my heart I felt I needed to share. God Bless each and everyone of you and all of your family members (yes, animals included). Hugs, Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 This is my welcome to all the newcombers also!!! We are all here for you if you need anyone to talk to or if you need encouragement we are all here for that you don't need to hesitate. cmyhalo77 <cmyhalo77@...> wrote:Hello Everyone, I am not sure if I have given my welcome to all the newcomers. If I have't please forgive me cause this ole' brain forgets sometimes. I have a bad habit of reading the posts and say to myself I will go back and reply to that one and then by the time I have read them all I forget which one(s) I am supposed to reply to. LOL!!!! So if you were missed I am welcoming you now. There are such nice people in this group. I also want to thank all of the ones that find information on different topics or items concerning our RA, Lupus, Fibromyalgia and all. They are so helpful and helps me to learn so many different things. I also keep all of you in my prayers daily. I know God watches over us. That quote that God will never give us more than we can handle. Man he must think we can handle more then we think we can. I know in my case it is so very true. I often wonder, Lord how much more do you think I can handle? But, I just pray and keep on going. I know he will take care of me and one day when I meet him on the other side I will never ever have to hurt or be in pain again. What a wonderful feeling. I better stop now some will think I am trying to preach. But, I am not. Just typing my feelings to my online friends. I also am keeping all in my prayers that have certain situations with family members or theirselves coming up like surgery, tests, treatments or whatever else. So, if I missed putting out a reply to any of you in this situations again forgive me. Even if no reply from me you are still in my prayers. Sorry to have typed such a long e-mail but just have words on my heart I felt I needed to share. God Bless each and everyone of you and all of your family members (yes, animals included). Hugs, Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Debra, I have MS, as well, and have stopped the primary progressive phase with this approach: no smoking, low sat. fat diet, exercise, (if possible), and take LDN, Vit. D3, Magnesium, Vit. B-12, and Pregnenolone. I will pray for you, but exercise and staying active, plus supplements above need to be adopted. Good luck!!! Tom Ellis --- [low dose naltrexone] hi to allFrom: "Deborah C" <jadeworldexplorer@...>Date: Fri, April 16, 2010 12:00 pmlow dose naltrexone my neuro took me off lsn and bee stings i have gotten severely worse ldn was not helping put me on cytosin imuran prednisone iv solmedrol 1 1000 dose and reg symprom meds and rebif i am sorry i have swithched i never quit smoking but did change my diet and took all supplements and vit suggested i have severe intense burning back down numbness stiffness and weakness losing my walking and now effecting arms and hans with same pattern more scary the burning and numbness is in my face jaws insice mouth palate, throat tongue and base of tongue all over body no conventional meds are working was supposed to get plasamapheresis instead og all this junk but insuracence said not proven for ms, like ldn and refused and i ended up on all this stuff plus rebif which is not even for spms i a deteriorating rapidly could wald slowly 15 min 2 week ago now down to 2 min no exaggeration i have treid patch and evrything to quit but my nerves aae giving out and thst is what i reach for and i know it prog symptoms 14% dudley and all before mont out i fear i will be in a wheelchhir they have pulld all the big guns out and my response to ldn was only good two years ago,but lost two remsisons thendue to brnchitis and never recovered wha t do you suggest i do i fear if i get of these meds now i will slide dwonhill even faster i go to a naturopath md who is trying to work with these meds with vit therapy, hyper.cha,mber and celation but nothing workd even gone to churchs all over for laying on of hand thought god might give me a miracle this has been going on now for over2 1/2 years i nevr get better nor does if even slow done has anyone ever beem in this predictment ot this bas and recovrecd please write me and praydeb copeland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Debra,I'm so sorry to hear you are going through such a horrible time. I totally agree with Tom's email because I've done very well doing the same things he does (except I haven't heard of Pregnenolone but you can bet I will google it now and check into it). I think the LOW FAT DIET is of UTMOST importance. Saturated fat in milk, butter, ice cream, red meats... to name a few are like poison to MSers. Some may disagree but that has been my experience and the experience of many others. Look up Dr. Swank's diet on the internet to review his low fat diet. Stay on it and don't cheat! I believe you will see a difference. LDN is working great for me even though I've just been on it for three months. My energy level is unbelievable because of LDN. I've was diagnosed 23 years ago and have not had this much energy since I was a kid. I've always refused the CRAB drugs as I don't think they do much good... maybe more harm. Exercise is very important. I will pray for you to do well and get strong again. I will also pray for you to have the strength you need to stop smoking. You can do it Debra! : ) Blessings,AnitaI also I have MS, as well, and have stopped the primary progressive phase with this approach: no smoking, low sat. fat diet, exercise, (if possible), and take LDN, Vit. D3, Magnesium, Vit. B-12, and Pregnenolone. I will pray for you, but exercise and staying active, plus supplements above need to be adopted. On Apr 16, 2010, at 12:00 PM, Deborah C wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 I have alot of your symptoms plus more -in hell currently myself but do not have an MS diagnosis currently- probably late neuro lyme. Trying to figure this out myself now/what to do since just a few drugs sent me into this tailspin into hell. You may also want to look into CCSvi? cant' remember acronym- also chekc out thisisms website-lots of good infor there on CCSVI and other treatment options. You might want to check out the ms recovery diet for more detail on diet. there is also a website run by its authors > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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