For Cindy

[Guest guest]

Dear , Do not let the doctor ignore you by putting you off!!!! Tell the

nurse you need to speak with him NOW!!!!! Or get another doctor! You need (if

your not on it, I cant recall) but you need actigal or questran. You cant live

this way for a month, my god! , before we found out, was batty with the

itching, nothing worked and he got so depressed that he wanted to kill himself.(

but that was several months of nonstop itching). Sorry to get angry, just being

a mom. Sincerely,

[Guest guest]

Thanks ,

I did get through finally to the doctor. I am already

taking 2 doses of Questran a day, 4 25mg of Atarax and

500 mg. Actigall. His advice to me was to also take

Benadryl in addition to those medications. I asked

about tanning and he said it may provide some relief.

This is my local GI. He admits he doesn't know enough

about PSC and doesn't want to over medicate me until

my visit with the Cleveland Clinic.

I took this afternoon off, went to the tanner and then

to the casino. I live about 30 minutes from the

Soaring Eagle in Mount Pleasant Michigan. It was a

nice distraction...and I came out 120.00 ahead, but, I

came home smelling like Smokey the Bear so I took a

bath....wrong thing to do, I am itching again. I need

to ice my body down. Whoever invented cold showers

was sadistic! And thanks again, I need a Mom. To be

honest my mother is still alive, but, (and I don't

want alot of emails about bashing my Mom) she was

never there for me and she totally denies that I am

sick.

(Gutless1), Michigan, UC X15, colon removed

12/99, PSC dx 97, first flare 6/00.

just being a mom. Sincerely,

>

[Guest guest]

I woke up itching, so I went to the tanner. This was

my 3rd visit. Each time I go I stay in 5 minutes. I

felt better after the visit this morning, and then I

had my dad's 77th birthday party. We were out in the

sun, and I am happy to report no itching. I have

thought about increasing the dosage of Questran, and

would do it, but I just got my refills and it is a

generic, and it tastes more bitter than the namebrand.

I didn't understand all the complaining I had heard

about its taste, until now. Yuck!

This was my dad's first birthday party...77. We are

lucky to have him alive after his heart surgery and

ordeal over the last 4 months. He finally got out of

the hospital yesterday, and he managed to stay alert

for the duration of the party. It felt so good to see

him enjoying himself. I want to live to be at least

77. I don't remember how many cards he got with 77.00

in it. Wow, what a haul he made! The best part was

seeing him enjoy himself. I totally forgot about my

problems.

--- Kkbhirsh@... wrote:

> Hi , hows the itching today? takes

> questran. His doctor told him to increase his dose

> by one scoopeful if he were to start itching again.

> Just a thought, increase questran. Sincerely,

>