Guest guest Posted March 31, 1999 Report Share Posted March 31, 1999 Hi everyone, I have had three ERCPs and one MRCP. The first two ERCPs were fine but I woke up during the last one and gagged (thinking about it makes me gag again) so they gave me more drugs. So I got ill when I finally awoke. They kept me overnight on the last one to be safe and I stayed home the next day from work because I felt like I got hit by a truck. I have had them yearly since diagnosis and this would now mean that my time is due but I'm not bringing it up to my doc. I'm listed for transplant and have been for a year. I feel OK but then I struggle with what if I was called in soon, (Doc says I climbing up the ladder) am I read?. Do I feel sick enough for transplant? In the back of my mind I want to put it off as long as possible for maybe they will find a cure or better transplant procedures and drugs but then again I don't want to be in so bad shape that it lessens by prognosis or I die waiting. This back and forth is the hardest thing for me right now. My husband and I want to adopt but that has to be put on hold because I don't want him to have the stress of my recovery and that of a new child on his shoulders. I also want to have the strength to provide a child with a mommy. I have been told that women can have children post transplant. I'm 30 and if I'm transplanted soon, that could always be an option. I have found some peace with this disease...I have accepted its uncontrollability and I appreciate so much of the smaller pleasures of life. Its just so scary waiting " for the other shoe to drop. " I don't let it run my life but I must admit it lingers in the back of my conscience every day. Have a peaceful and healthy Easter to everyone. Michele, NJ P.S. What's this about Acidolpholus (sp?) I have been tormented by UC flare ups and am on Asacol but sometimes to now avail. Is there a certain brand name that is better than others. I do try and eat yogourt freq. also to help. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.