Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 what sort of long term care problem? he is on prevacit for his stomach whenever i tryed other things he got sicker the enzymes did not seem to help either not before anyway. AUTISM Ten years ago one in 10,000 Five years ago one in 500 Today one in 150 SCARED YET? www.momsonamissionforautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 i had the test done he had no mercury at all. but was toxic for lead and cadium.and arsenic and atimony. he has feeding problems and has alot of trouble swallowing he gets most of his nutrition from pediasure and jevity high calorie formula? i cant get him off that if he has to few calories and trouble chewing and swallowing as it is. i sure dont know what to do AUTISM Ten years ago one in 10,000 Five years ago one in 500 Today one in 150 SCARED YET? www.momsonamissionforautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 i did AUTISM Ten years ago one in 10,000 Five years ago one in 500 Today one in 150 SCARED YET? www.momsonamissionforautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 what supplements are you giving are are there any digestive difficulties as inidcated by stool condition? i think he is at very high risk of adverse effects from the meds that will leave you with a more severe long term care problem. > hello > i know i don't get to much time to write in but i do so badly need some > advice right now. > i took my son in for his aspergers diagnosis that is what everyone thought he > was going to get diagnosed with, but anyway. > they did the whole 4 to 5 hours of testing. and they came up with mild to > moderate mental retardation. > severe ,severe , severe anxiety disorder. just like with autism nothing can > be out of place or change or he is freaking out for days, head banging and > screaming, and now he is starting to hurt himself and everyone around him. > he has the cerebral palsy the damage to the white matter of the brain. > and worsters drought syndrome. and sensory integration dysfunction. > so anyway they suggested that he go for play therapy to help with the anxiety > and meds? > but i am so scarred to give him meds they scare me so bad. but they also said > if i could get him to stop screaming for days and being so anxious he might > be able to settle enough to learn easier and remove some of the stress. not > to mention that he has gerd and reflux and the stress is not helping that > right? > i don't know what they will recommend that is for the 19th. so my questions > is can you tell me the honest truth about the pro's con's and the reasons why > and why not and what you would do. > i just don't want to make the wrong decision. he is 4 and a half to. > thanks guys. > joey > > AUTISM > Ten years ago one in 10,000 > Five years ago one in 500 > Today one in 150 > SCARED YET? > www.momsonamissionforautism.org > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 -Hi , I would suggest that you put your son on a gluten free casen free diet which should help with anxiety and/or aggression.(Please look at www.gfcf.com) It helped our son with these issues. I would also suggest that you look in the files for information on getting your son`s hair tested to test for heavy metals, including mercury. Please let me know how your son does. Albert albert2412@... -- In , ummezahid@a... wrote: > hello > i know i don't get to much time to write in but i do so badly need some > advice right now. > i took my son in for his aspergers diagnosis that is what everyone thought he > was going to get diagnosed with, but anyway. > they did the whole 4 to 5 hours of testing. and they came up with mild to > moderate mental retardation. > severe ,severe , severe anxiety disorder. just like with autism nothing can > be out of place or change or he is freaking out for days, head banging and > screaming, and now he is starting to hurt himself and everyone around him. > he has the cerebral palsy the damage to the white matter of the brain. > and worsters drought syndrome. and sensory integration dysfunction. > so anyway they suggested that he go for play therapy to help with the anxiety > and meds? > but i am so scarred to give him meds they scare me so bad. but they also said > if i could get him to stop screaming for days and being so anxious he might > be able to settle enough to learn easier and remove some of the stress. not > to mention that he has gerd and reflux and the stress is not helping that > right? > i don't know what they will recommend that is for the 19th. so my questions > is can you tell me the honest truth about the pro's con's and the reasons why > and why not and what you would do. > i just don't want to make the wrong decision. he is 4 and a half to. > thanks guys. > joey > > AUTISM > Ten years ago one in 10,000 > Five years ago one in 500 > Today one in 150 > SCARED YET? > www.momsonamissionforautism.org > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 id get a ddi hair test done. > what sort of long term care problem? > he is on prevacit for his stomach whenever i tryed other things he got sicker > the enzymes did not seem to help either not before anyway. > > AUTISM > Ten years ago one in 10,000 > Five years ago one in 500 > Today one in 150 > SCARED YET? > www.momsonamissionforautism.org > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Hi , I am answering your prior post, as well as your comments here. I cannot say much about specific meds. I'm in the same boat with you: I am generally reluctant about meds, but also realize that they can be useful short term, in some instances. So, really I am not much help with your question on meds. But I want to encourage you to pursue other options. And keep at it! There are lots of options to try. Some of them are: 1. metals (chelation and other forms of detox, depending on which metals) 2. cranial manipulation (see the FILE called HOW_TO_find_doctor for some info on cranial manipulation). Like metal detox, this is not for everyone, but rather for those who do have a problem with the form/shape/pressures on the head. 3. oxygen therapies. I just joined a couple more lists about oxygen therapies. I think one of them is specifically for CP kids. Write me for more info if you want. There is HBOT (hyperbaric oxygen therapy -- oxygen in a little chamber, under pressure); there is low pressure; and there is breathing oxygen without pressure (called normalbaric [sp?]) All of the options are worth pursuing, whether you decide to use meds or not. > i had the test done he had no mercury at all. Are you aware that most people who ARE mercury toxic show low mercury on tests? Please see the FILE called HOW_TO_hair_test for more information on this. > but was toxic for lead and cadium.and arsenic and atimony. those count! DMSA chelates lead. ALA chelates arsenic. See the FAQ for info on reducing antimony. good luck and best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 , Lead alone can cause a lot of the problems your son is having, cadmium is nasty too. My son (he has lead and antimony and probably mercury) at 2 was agressive, obsessive compulsive beyond any compare and had sensory issues. Now at 4.5 with several interventions (including yeast treatments, digestive enzymes, and currently 9 rounds of chelation) he has improved so tremendously that no-one outside of friends and family would ever imagine he was such a mess 2 years ago. This is a great place for information and hope. Stick around and read the files section thoroughly. I agree that taking him off gluten and casein would be a good idea. I had my son off all gluten and casein for almost a year and it helped with his anxiety and agression. Adding digestive enzymes played another major role in helping him feel better and got rid of his OCD. We use HNI brand (www.houstonni.com) and he has been on a regular non-restricted diet for a year now. I do however forbid chocolate and most food colorings as they make him hyper and irritable and I do rotate gluten free snacks in with regular stuff. Good luck Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 joey - i have 4 kids, the oldest girl 14 has had anxiety disorder for we think years and last year was dx with Obsessive Compulsive Disorder. i also have anxiety disorder. she and i are both on meds (different ones) and there has been a tremendous difference. i feel like myself again! she struggles with the OCD but has her anxiety under control and can attend school again, and even make friends. i also have an autistic son aged 8, who has lots of anxiety but we have not treated him with meds (yet). behavioral modification, visual schedules, lots of love and daily organized scheduled activities have helped alot. kids (or anyone) with anxiety suffer, really suffer terribly. and no one should have to suffer like that. i take effexor 150 mg, my daughter takes zoloft 200 mg...the side effects were temporary (difficulty sleeping, vivid dreams, loss of hunger) and passed after a few weeks or months. i see the meds as a miracle. one drawback is that there are many and you might have to try several before finding a compatable one, and you must build up slowly, then wean back down before starting a new one...so it can take time. the ones i mentioned are ant-depressants but are used for anxiety. i see a link between anxiety and learning too: anxiety does prevent you from functioning. you can't think, you're in a " fight or flight " mode, you obsess on the anxiety-causing factor ...yes, learning is likely to bagin once the anxiety is reduced. please give meds a try before you rule them out. sher -- [ ] help with meds hello i know i don't get to much time to write in but i do so badly need some advice right now. i took my son in for his aspergers diagnosis that is what everyone thought he was going to get diagnosed with, but anyway. they did the whole 4 to 5 hours of testing. and they came up with mild to moderate mental retardation. severe ,severe , severe anxiety disorder. just like with autism nothing can be out of place or change or he is freaking out for days, head banging and screaming, and now he is starting to hurt himself and everyone around him. he has the cerebral palsy the damage to the white matter of the brain. and worsters drought syndrome. and sensory integration dysfunction. so anyway they suggested that he go for play therapy to help with the anxiety and meds? but i am so scarred to give him meds they scare me so bad. but they also said if i could get him to stop screaming for days and being so anxious he might be able to settle enough to learn easier and remove some of the stress. not to mention that he has gerd and reflux and the stress is not helping that right? i don't know what they will recommend that is for the 19th. so my questions is can you tell me the honest truth about the pro's con's and the reasons why and why not and what you would do. i just don't want to make the wrong decision. he is 4 and a half to. thanks guys. joey AUTISM Ten years ago one in 10,000 Five years ago one in 500 Today one in 150 SCARED YET? www.momsonamissionforautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Could you say how his eating is? Did anything happen with enzymes? which ones did you use? What did the hair test show? I think meds can be extremely beneficial, but you need to get something really right and that can take some trial and error...just like with supplements. My son and I both did disastrous on a med but then did great on a different one. It is not a failing on anyone's part if a med is necessary and brings great results. I am grateful there are meds that can help where nothing else can. That said, I don't think meds should be used just because no one wants to bother with anything else. If might be a food intolerance, or poor nutrition, or something like that. You don't want to medicate someone so they are less functional (just so they are less of a 'bother' to others). But if they need it become functional that is the difference. If you try meds, just commit to a trial period to see if it is right. If it isn't working out, drop it. Another thing to keep in mind is that using a med may be a temporary patch to use while you are investigating and 'fixing' other things. For example, you might use a sleep aid until you can find potentially problematic foods or chemicals that are disrupting sleep. Or until a yeast problem is controlled. Not use a med for sleep instead of combatting the yeast. I hope this was clear. Good luck with this. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 I cannot speak from a medical point of view, I have no training. However, I can speak from a been there done that point of view. Our son was diagnosed moderate to severe autistic, routine was rigid, things that would make a NT kid ecstatic would cause a meltdown for our son, he wore a bicycle helmet constantly for several months because of the head banging, he slept 3 hours a night, no naps because he was wired. My husband is a cop and he said it was like our son was on drugs. Our pediatrician thought our son might be deaf, and he also would bite himself, wouldn't let anyone touch him so changing diapers was a nightmare. He had chronic eczema and in 2 years never had a solid bowel movement. He would go into rages that would last 3 or 4 hours. At 3 years of age he tested at a 12-15 mo. old developmental level. So you could say we had sensory problems, autism was a factor, etc. We started with a gfcf diet cold turkey, he had a solid bowel movement and slept through the night (10 hours) in first week and a half of diet. After about 4 months we noticed his meltdowns weren't lasting as long nor were they as intense. After about 6 months he quit banging his head. We then tried Super Nu Thera vitamins, Ojibwa Tea, DMG, Perfect Stool Formula, GSE, Vit. C, and finally Enzymes. He sleeps through the night still, potty trained in two days, and at 4 years of age tested at 4 years developmentally for motor skills, self help skills, and comprehensive language skills. He's about 2 1/2 for expressive language and social skills. He is a joy to be around and more well mannered than many NT kids we know.There was a period in there between age 3 and 3 1/2 where we saw an allergist, immunologist, neurologist, gastroenterologist and our own pediatrician, and by the time they were through testing/diagnosing/treating him he was down to 32 pounds, circles under his eyes, pale pasty eczema complexion, sleep disturbances and year round antibiotics. I quit seeing the Doctors after reading Dr. McCandless, Karyn Seroussi and DeFelice's books. I quit the antibiotics for my son and started all the supplements listed above. He is now a wonderful 44 pounds, speaking in sentences recently and the joy I mentioned above. I must say that for us medication was a nightmare, but for some it may work. I also have to tell you that ABA Therapy has been used rather intensely for the past 2 1/2 years. During the period of the meds it seemed to be a waste of time, but we kept on, and now, although he is learning from his environment, I believe the therapy we provided helped him catch up. I hope this helps. help with meds hello i know i don't get to much time to write in but i do so badly need some advice right now. i took my son in for his aspergers diagnosis that is what everyone thought he was going to get diagnosed with, but anyway. they did the whole 4 to 5 hours of testing. and they came up with mild to moderate mental retardation. severe ,severe , severe anxiety disorder. just like with autism nothing can be out of place or change or he is freaking out for days, head banging and screaming, and now he is starting to hurt himself and everyone around him. he has the cerebral palsy the damage to the white matter of the brain. and worsters drought syndrome. and sensory integration dysfunction. so anyway they suggested that he go for play therapy to help with the anxiety and meds? but i am so scarred to give him meds they scare me so bad. but they also said if i could get him to stop screaming for days and being so anxious he might be able to settle enough to learn easier and remove some of the stress. not to mention that he has gerd and reflux and the stress is not helping that right? i don't know what they will recommend that is for the 19th. so my questions is can you tell me the honest truth about the pro's con's and the reasons why and why not and what you would do. i just don't want to make the wrong decision. he is 4 and a half to. thanks guys. joey AUTISM Ten years ago one in 10,000 Five years ago one in 500 Today one in 150 SCARED YET? www.momsonamissionforautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 my ds had gerd and reflux and was on prevacit. When we went to sell our house we found out there was bacteria in the water. switched water sources and reflux disappeared. There was no outward signs for anyone else in the house that was using the water. He just had a very sensitive digestive system. Something easy to check for. Lynn Re: Re: help with meds what sort of long term care problem? he is on prevacit for his stomach whenever i tryed other things he got sicker the enzymes did not seem to help either not before anyway. AUTISM Ten years ago one in 10,000 Five years ago one in 500 Today one in 150 SCARED YET? www.momsonamissionforautism.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 > > moderate mental retardation. > severe ,severe , severe anxiety disorder. just like with autism nothing can > be out of place or change or he is freaking out for days, head banging and > screaming, and now he is starting to hurt himself and everyone around him. > he has the cerebral palsy the damage to the white matter of the brain. > and worsters drought syndrome. and sensory integration dysfunction. > so anyway they suggested that he go for play therapy to help with the anxiety > and meds? > but i am so scarred to give him meds they scare me so bad. My son is 4 1/2 also and has been taking paxil since september. It has truly been a life saver for us. He has progressed so much since the addition of this. His anxiety got in the way of everything even his sensory modulation. We had got to the point where we could not even take him to a store because he would meltdown at some point before we could get him out of there. At this point I think it would be akin to child abuse to make my child live with that kind of fear and torment. I still am doing other therapies.....this is just a small piece of the pie. good luck!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 > severe ,severe , severe anxiety disorder. just like with autism nothing can > be out of place or change or he is freaking out for days, head banging and > screaming, and now he is starting to hurt himself and everyone around him. Certain medications are beneficial for certain children and not others, so you might need to experiment with different medications before you find the right one for your child. All medications have potential side effects, so be sure you discuss with the doctor all the potential side effects, then do your own research and ask questions about the specific medication/s recommended for your child, so you can make an intelligent decision. For the symptoms you indicate, many children are helped if you address phenol sensitivity and/or yeast issues. http://www.danasview.net/phenol.htm http://www.danasview.net/yeast.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2004 Report Share Posted August 23, 2004 Also keep in mind that you CAN have your doc just give you a dose or 2 to try a med- and docs often get samples from drug reps that they can share with you. If your doctor does not have any ideas for help getting meds youu need, you can ask your pharmacist, your county health dept or state dept of Human Services. You could also try to work with your doc and insurance company to see if they can work something out. Quote Link to comment Share on other sites More sharing options...
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