June

[Guest guest]

June, my sincere condolences on the unexpected loss of your dear friend.

I'm sorry that you have so much daily pain, but it's good to know that

you've asked for help with your pain and that your physicians are trying

to treat it.

I hope you will be able to have the replacements done soon and that

you'll finally get some substantial relief.

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] The Pain Endures

>

> Hi Marina, I am so sorry you are having to put up with so much

continuing pain along with so many others in the same boat.

> I take Enbrel alone and while it does help and while it does help

(sometimes I wonder), I too, have a great deal of pain. My rheumy and

GP know me well and fully agree on my usage of pain medication. I start

my day with 80 mg Oxycontin, drink my coffee and wait for it to kick in.

Depending on what my plans are, I would no doubt take another 80 mg in a

couple of hours. Usually by 5pm I have taken 3 to 4 80 mg Oxycontin. If

I am going out for the evening, I take another one before I leave the

house. Before I go to bed I take 2 percocet and a sleeping pill. None

of these take away the pain 100% since I am waiting for a knee and ankle

replacement and these alone cause me lots of grief.

> I guess what I am saying, is, whatever I require in pain med, I take,

but it did take a lot of pressure on my doctors by me because I told

them I will not live a life with pain that interferes with my life .

>

> Last week my best friend of 40 years died suddenly at age 62 and by

the day of the funeral I could barely walk to the car. Because of the

emotional pain, my body pain reached an all time high but because of the

pain med I took, I was able to function through all the turmoil.

>

> I have a medical reports from 20+ years ago that states, " we cannot

cure you, but we can assure you we will keep you comfortable " . I used to

carry this with me and occasionally show my caregivers to remind them of

this promise.

>

> Hugs

> June