Guest guest Posted September 28, 1999 Report Share Posted September 28, 1999 Hello all. I've been out of touch for a while. Very busy. Does anyone have the phone #'s of the charity pilots? I need the one for AngelFlight and also the other one because I may be going more than 3000 miles. Please e-mail me ASAP at jcoonr@.... I just got an appointment with Dr. Frim for October 7th, and I really can't pay much. To get a flight for less than $450, I would have to fly from Orlando, which is a 2hr drive away and I'd have to drive myself. I would definitely prefer not to do that. For those not interested in the update, stop now. I'm going to be quick on this one b/c I still don't really know anything. I saw Dr. Batzdorf in August. He said that I have a continuous CSF leak and that I also have local pain from dural stretching b/c bone was taken out all the way up to the tentorium, and the only thing supporting my entire cerebellum now is my dura and the muscles over it. He also suspects I may be reacting to the synthetic material used for my graft. He feels that I would " benefit from a second surgery " . In this surgery, he would fix the leak, most likely replace the graft with my own tissue, shrink the tonsils, and build a small " shelf " of methylmethacrylate (sp?) to support my cerebellum. Upon returning from my appointment, I was faced with the reality that due to continued severe pain and physical restrictions, and also the likelihood of a second surgery, I could not return to vet school yet. They have granted me another year off, but say that if I cannot return next year, I would have to repeat my freshman year. That's another year and another $20,000 of student loans, on top of all the money I owe my parents for their financial support this last year, as public assistance doesn't seem to care until you've starved for AT LEAST 2 years. (Not EVEN going to go THERE today!!!). So, I have until August to get better. I am doing all I can to make sure that there will not be a third surgery. Dr. Milhorat has all of my information and films, and I am supposed to hear from him this week. I am going to see Dr. Frim next week. I want to have at least 2 of the top opinions before going through this again!!! I sent my info to docs as soon as I returned from LA, but you know how busy they all are. In order to keep this short, (and so I can go have a drink or something....VERY stressful day!!!), I'm going to sign off for the night now. I'll be back as soon as I drag myself out of bed to " fight " another day tomorrow. And don't worry, I'm not as pessimistic as I sound. I'm just getting very tired of all of this and I know that if anyone could know how I feel, it's you all. Thanks again for everyone's support, and a special " hello " to all those wonderful ACMer friends I met in Miami - I miss you all. Jeni in FL ACM 1, herniated, " oh, about 3cm or so " decompression 12/9/98 Quote Link to comment Share on other sites More sharing options...
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