Guest guest Posted September 6, 2004 Report Share Posted September 6, 2004 Cindi, I had all the side effects you had but also had sores on all my mucous membranes in my body. Nothing helped. I finally went off the MTX. My doc was the same as yours. Tell me my labs were improving and I was getting better even though I wanted to crawl in the toilet and die..cause that was were I spent all my time! I was taking 5 mg folic acid a day plus leucovorin CA weekly to try and help the side effects. Nothing was helping and the side effects were getting worst, but my labwork was looking great! My stupid doc was all for staying on MTX. Even though I was so sick from the side effects. I am still off the MTX injections. There is a shortage of the medication in this area. So the perfect excuse not to run all over the place trying to find something that I do not want to take in the first place. I hope you are able to find a solution to this problem. Toni In a message dated 9/3/2004 12:21:07 PM Central Daylight Time, writes: HI MARINA, THANKS FOR THE PUSH, I FINALLY HAVE NARROWED SOME OF THIS DOWN. I CHARTED MY MTX ONCE A WEEK SHOT SYPMTOMS. WHEN I STARTED THEM IT WAS ALWAYS THAT NIGHT AND NEXT DAY. NOW THE WORST SYMPTOMS HAPPEN THE SECOND DAY AFTER MY SHOT. I GET A .6 ML INJECTION EVERY WEDNESDAY AND I AM THE SICKEST NOW ON FRIDAY. THURSDAY NIGHT AND FRIDAY. I GET REALLY SICK TO MY STOMACH AND DIZZY LIKE YOU WOULD NOT BELIEVE. I JUST FEEL ROTTEN ALL OVER. LIKE I HAVE A STOMACH FLU. I SPEND A GOOD AMOUNT OF TIME IN THE BATHROOM TOO. I THINK THEN HOPEFULLY TOMORROW SHOULD BE BETTER ? I HOPE THE SHOTS ARE WORTH ALL THIS......DO YOU THINK THEY ARE ? CINDI Quote Link to comment Share on other sites More sharing options...
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