Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 SEE I CAN'T SPELL EITHER, EYE ! COME ON HERE, I MEANT EAR, IT WAS SUPPOSED TO BE FUNNY....OH WELL, TAWNY- I WOULD IMAGINE IF ANY OF US ON MTX OR OTHER IMMUNE- SUPPRESSING DRUGS GET AN INFECTION AND IT IS SERIOUS ENOUGH WE WOULD HAVE TO GO OFF THE DRUGS. MY SHOTS SHUT ME DOWN FOR A WEEK. I TAKE ON HUGE SHOT A WEEK. MAKES ME SICK AS A DOG FOR ABOUT 4 DAYS, THEN I FEEL REALLY GOOD, THEN I GET THE SHOT AGAIN! I AM SERIOUSLY THINKING OF ONLY TAKING THE SHOT EVERY OTHER WEEK ANY WAY. I CAN'T HARDLY STAND THIS ANYMORE AND THE ORAL ONES, I TOOK EVERY SINGLE ONE, I WAS SO SICK, I NEVER GOT OUT OF BED. SO, I AM IN A REAL FIX HERE. THAT IS WHEN I AM TEMPTED AGAIN TO TELL MY DOCTOR ONE THING AND DO ANOTHER, LIKE TAKE THE SHOTS EVERY OTHER WEEK AND NOT TELL HIM.....BUT I REMEMBER WHAT GINA AND PAULA SAID ABOUT NOT BEING TOTALLY HONEST WITH YOUR DOCTOR!!! I SEE HIM IN A WEEK AND I WILL TELL HIM MY NEXT PLAN, I AM JUST WORRIED HE WILL TRY ANOTHER NEW THING AND IT WILL BE A BIG BUST, LIKE EVERYTHING ELSE HAS BEEN. I DON'T THINK THERE IS MUCH LEFT FOR ME TO TRY ANYWAY...... THANKS EVERYBODY, CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Cindi, and a are right. Make sure your doctor knows what's going on. You shouldn't stop anything, or lower the dose, unless he knows. I know it get's tough sometimes, but if we didn't have the meds, I wonder what our life would be like then? I had to stop my Humira injections for right now, until I heal, and the doc gives me a, " OK. " I have been feeling better, I think the Motrin is helping the RA, and then I have to stop the Humira, because of the infection, so it kind of has me a little worried. The last time I went off of it, (because I was sick), by the time I got back on it, I couldn't hardly walk at all. So, I really need it, that's for sure. Just take care of yourself, and I think you need to go on to the ER. You will feel better, that is something not to wait on. I will keep you in my prayers, Tawny > SEE I CAN'T SPELL EITHER, EYE ! COME ON HERE, I MEANT EAR, IT WAS > SUPPOSED TO BE FUNNY....OH WELL, > TAWNY- I WOULD IMAGINE IF ANY OF US ON MTX OR OTHER IMMUNE- > SUPPRESSING DRUGS GET AN INFECTION AND IT IS SERIOUS ENOUGH WE WOULD > HAVE TO GO OFF THE DRUGS. MY SHOTS SHUT ME DOWN FOR A WEEK. I TAKE > ON HUGE SHOT A WEEK. MAKES ME SICK AS A DOG FOR ABOUT 4 DAYS, THEN I > FEEL REALLY GOOD, THEN I GET THE SHOT AGAIN! > I AM SERIOUSLY THINKING OF ONLY TAKING THE SHOT EVERY OTHER WEEK > ANY WAY. I CAN'T HARDLY STAND THIS ANYMORE AND THE ORAL ONES, I > TOOK EVERY SINGLE ONE, I WAS SO SICK, I NEVER GOT OUT OF BED. > SO, I AM IN A REAL FIX HERE. THAT IS WHEN I AM TEMPTED AGAIN TO > TELL MY DOCTOR ONE THING AND DO ANOTHER, LIKE TAKE THE SHOTS EVERY > OTHER WEEK AND NOT TELL HIM.....BUT I REMEMBER WHAT GINA AND PAULA > SAID ABOUT NOT BEING TOTALLY HONEST WITH YOUR DOCTOR!!! > I SEE HIM IN A WEEK AND I WILL TELL HIM MY NEXT PLAN, I AM JUST > WORRIED HE WILL TRY ANOTHER NEW THING AND IT WILL BE A BIG BUST, > LIKE EVERYTHING ELSE HAS BEEN. I DON'T THINK THERE IS MUCH LEFT FOR > ME TO TRY ANYWAY...... > THANKS EVERYBODY, CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Cindi, and a are right. Make sure your doctor knows what's going on. You shouldn't stop anything, or lower the dose, unless he knows. I know it get's tough sometimes, but if we didn't have the meds, I wonder what our life would be like then? I had to stop my Humira injections for right now, until I heal, and the doc gives me a, " OK. " I have been feeling better, I think the Motrin is helping the RA, and then I have to stop the Humira, because of the infection, so it kind of has me a little worried. The last time I went off of it, (because I was sick), by the time I got back on it, I couldn't hardly walk at all. So, I really need it, that's for sure. Just take care of yourself, and I think you need to go on to the ER. You will feel better, that is something not to wait on. I will keep you in my prayers, Tawny > SEE I CAN'T SPELL EITHER, EYE ! COME ON HERE, I MEANT EAR, IT WAS > SUPPOSED TO BE FUNNY....OH WELL, > TAWNY- I WOULD IMAGINE IF ANY OF US ON MTX OR OTHER IMMUNE- > SUPPRESSING DRUGS GET AN INFECTION AND IT IS SERIOUS ENOUGH WE WOULD > HAVE TO GO OFF THE DRUGS. MY SHOTS SHUT ME DOWN FOR A WEEK. I TAKE > ON HUGE SHOT A WEEK. MAKES ME SICK AS A DOG FOR ABOUT 4 DAYS, THEN I > FEEL REALLY GOOD, THEN I GET THE SHOT AGAIN! > I AM SERIOUSLY THINKING OF ONLY TAKING THE SHOT EVERY OTHER WEEK > ANY WAY. I CAN'T HARDLY STAND THIS ANYMORE AND THE ORAL ONES, I > TOOK EVERY SINGLE ONE, I WAS SO SICK, I NEVER GOT OUT OF BED. > SO, I AM IN A REAL FIX HERE. THAT IS WHEN I AM TEMPTED AGAIN TO > TELL MY DOCTOR ONE THING AND DO ANOTHER, LIKE TAKE THE SHOTS EVERY > OTHER WEEK AND NOT TELL HIM.....BUT I REMEMBER WHAT GINA AND PAULA > SAID ABOUT NOT BEING TOTALLY HONEST WITH YOUR DOCTOR!!! > I SEE HIM IN A WEEK AND I WILL TELL HIM MY NEXT PLAN, I AM JUST > WORRIED HE WILL TRY ANOTHER NEW THING AND IT WILL BE A BIG BUST, > LIKE EVERYTHING ELSE HAS BEEN. I DON'T THINK THERE IS MUCH LEFT FOR > ME TO TRY ANYWAY...... > THANKS EVERYBODY, CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Look, Girl!! Don't you go and do one thing and tell your doc another. If you do, then me and probably everyone in this group will slap you silly and then call your doc and tell on you!!! Don't wait on the ear issue! If it is an ear infection, then you need to get that treated ASAP. You run the risk of hearing loss if left untreated. I know how you feel about the methotrexate and other meds. My rheumy took me off the remicade (it stopped working) and put me on kineret. I haven't noticed that it has done anything except cause major welps and massive itching. Oh well, what good could come of these stink'n meds without such wonderful side effects!! Go see the doc or at least call one!!! Take care...Marina > SEE I CAN'T SPELL EITHER, EYE ! COME ON HERE, I MEANT EAR, IT WAS > SUPPOSED TO BE FUNNY....OH WELL, > TAWNY- I WOULD IMAGINE IF ANY OF US ON MTX OR OTHER IMMUNE- > SUPPRESSING DRUGS GET AN INFECTION AND IT IS SERIOUS ENOUGH WE WOULD > HAVE TO GO OFF THE DRUGS. MY SHOTS SHUT ME DOWN FOR A WEEK. I TAKE > ON HUGE SHOT A WEEK. MAKES ME SICK AS A DOG FOR ABOUT 4 DAYS, THEN I > FEEL REALLY GOOD, THEN I GET THE SHOT AGAIN! > I AM SERIOUSLY THINKING OF ONLY TAKING THE SHOT EVERY OTHER WEEK > ANY WAY. I CAN'T HARDLY STAND THIS ANYMORE AND THE ORAL ONES, I > TOOK EVERY SINGLE ONE, I WAS SO SICK, I NEVER GOT OUT OF BED. > SO, I AM IN A REAL FIX HERE. THAT IS WHEN I AM TEMPTED AGAIN TO > TELL MY DOCTOR ONE THING AND DO ANOTHER, LIKE TAKE THE SHOTS EVERY > OTHER WEEK AND NOT TELL HIM.....BUT I REMEMBER WHAT GINA AND PAULA > SAID ABOUT NOT BEING TOTALLY HONEST WITH YOUR DOCTOR!!! > I SEE HIM IN A WEEK AND I WILL TELL HIM MY NEXT PLAN, I AM JUST > WORRIED HE WILL TRY ANOTHER NEW THING AND IT WILL BE A BIG BUST, > LIKE EVERYTHING ELSE HAS BEEN. I DON'T THINK THERE IS MUCH LEFT FOR > ME TO TRY ANYWAY...... > THANKS EVERYBODY, CINDI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Look, Girl!! Don't you go and do one thing and tell your doc another. If you do, then me and probably everyone in this group will slap you silly and then call your doc and tell on you!!! Don't wait on the ear issue! If it is an ear infection, then you need to get that treated ASAP. You run the risk of hearing loss if left untreated. I know how you feel about the methotrexate and other meds. My rheumy took me off the remicade (it stopped working) and put me on kineret. I haven't noticed that it has done anything except cause major welps and massive itching. Oh well, what good could come of these stink'n meds without such wonderful side effects!! Go see the doc or at least call one!!! Take care...Marina > SEE I CAN'T SPELL EITHER, EYE ! COME ON HERE, I MEANT EAR, IT WAS > SUPPOSED TO BE FUNNY....OH WELL, > TAWNY- I WOULD IMAGINE IF ANY OF US ON MTX OR OTHER IMMUNE- > SUPPRESSING DRUGS GET AN INFECTION AND IT IS SERIOUS ENOUGH WE WOULD > HAVE TO GO OFF THE DRUGS. MY SHOTS SHUT ME DOWN FOR A WEEK. I TAKE > ON HUGE SHOT A WEEK. MAKES ME SICK AS A DOG FOR ABOUT 4 DAYS, THEN I > FEEL REALLY GOOD, THEN I GET THE SHOT AGAIN! > I AM SERIOUSLY THINKING OF ONLY TAKING THE SHOT EVERY OTHER WEEK > ANY WAY. I CAN'T HARDLY STAND THIS ANYMORE AND THE ORAL ONES, I > TOOK EVERY SINGLE ONE, I WAS SO SICK, I NEVER GOT OUT OF BED. > SO, I AM IN A REAL FIX HERE. THAT IS WHEN I AM TEMPTED AGAIN TO > TELL MY DOCTOR ONE THING AND DO ANOTHER, LIKE TAKE THE SHOTS EVERY > OTHER WEEK AND NOT TELL HIM.....BUT I REMEMBER WHAT GINA AND PAULA > SAID ABOUT NOT BEING TOTALLY HONEST WITH YOUR DOCTOR!!! > I SEE HIM IN A WEEK AND I WILL TELL HIM MY NEXT PLAN, I AM JUST > WORRIED HE WILL TRY ANOTHER NEW THING AND IT WILL BE A BIG BUST, > LIKE EVERYTHING ELSE HAS BEEN. I DON'T THINK THERE IS MUCH LEFT FOR > ME TO TRY ANYWAY...... > THANKS EVERYBODY, CINDI Quote Link to comment Share on other sites More sharing options...
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