Im Home!!!!!!!!!!!!!!(long)

[Guest guest]

Yippee IM in my new home and got my computer up, 3 weeks since we left San

Diego. Love the house, its older home and really nice and really big have my

own office music/film studio now, and IM on my old street right across from

my old house and on the greatest street in the world with all my friends back

what a great relief I feel, even have a whole closet for all my medical

equipment, oxygen tanks, wheelchair ect... love it, pretty front courtyard

and nice backyard with lovely trees and a pond with a small waterfall and

rocks, huge old trees, but most importantly LOVE all around me and my surgeon

and docs 10 minutes away again.

The move was horrible for me to have done 2 times in 7 months, but well worth

it. kids start school next week. First thing I did was get my B-12 shot, cant

wait after 4 weeks, had my PT testing showed a bit of new strength in my

left leg which is amazing, took 2 years of Rehab to get the numbers up

slightly, the scoliosis is worse, will have my OT testing next wedsnday and

see my surgeon right after there at the Rehab to see what's next.

Overall IM OK, I think because I feel safe, loved and home, and know at all

times God is protecting me. My doc's and Rehab are still amazed that in 3

years of severe pain Ive managed to control pain and never go past 25 mg. of

my Demerol at night, and my TENS unit I own. I am such a lightweight (93

pounds) that the only time Ive ever taken more is with surgery and right

after, but I did appreciate their acknowledgment of my not letting the

Physical and mental stuff completely control my life. That doesn't mean IM

not scared badly at times, because I am, IM just more practical about it all

than a few years ago.

Ive avoided ER about 20 times in the last few months through self treatment

at home with my own Oxygen tanks, my husbands support and knowing that the

minute I walk through ER they will freak out with all my stuff, this saves me

a lot of explaining and frustration.

Been talking to Robin(peanuts) and Haydee found me, she even called my

surgeons office,ha,ha,ha,ha, we love to joke about that here, hoping to see

Marti and Patti again soon, they sent me a geurougous boquest of flowers to

my new home( lovely lovely freinds)Everything's pretty dysfunctional, but

most I can live with, except obviously, cant breath, cant eat, cant see,

kinda important issues, so if I need more surgery so be it I know I will not

make it eventually if Id don't do something soon so I will, Ive made that

promise to myself and my husband.

Well, gonna go drink my megadose bodybuilding protein shake with fresh

pinapple/coconut juice and bananas, yummmmmmyyyy. missed you all so much, hi

to newer members. Love, Peace and always Hope! (P.S, saw Robins post today,

save those cards for after surgery IM sure I will need them all. YOUR ALL THE

BEST!

Dawn(ACM decompressed 96,Syringomyelia,Scolisosis,RSD,Pernicious

Anemia,Siezures, but still LOVIN LIFE!!!!!