Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 , You probably just did too much over the weekend, we all tend to do that. It's hard to deal with this disease, because most have to change quite a bit. I hear that some do great, and live like they always have. But, many our not that fortunate, and I am one of them. My life has changed so much, and I just take it day to day now. I use to be the planner, and always do everything, and think of more to do, but not now. This disease is very hard to deal with, but we can't do anything about it, but try to make life as comfortale as we can. By taking the RA meds, that helps the progression of the disease. If we need to have pain meds to help us, then there is nothing wrong with that. A lot of us our on anti-depressants for the depression, I don't see anything wrong with that. It's just however one wants to deal with this. I am 41, and I'm on disability, I feel cheated out of the life I had, but we have to deal with what we do now. Just try to take it one day at a time, and it will get easier to cope with. Were all right here for you, and that is always important to have others who understand, hugs Tawny --- In , " lindajbelle " <lindajbelle@y...> wrote: > I did not want to start taking my Plaquenil, really did not want the > commmitment of all of this. I was feeling o.k. this weekend and did > alot of work around the house. > > Well this morning I woke up in agony which I am still in. So I > started the Plaquenil this morning. Does anyone know why simple tasks > around the house can cause such pain? I don't get it and I do not > want it. I need to be active. I can't sit for hours on end doing > nothing, it's not me. > > Thanks for your support. I guess I do not want to believe that I can > possibly be afflicted by some kind of inflammatory illness that might > stick around for a lifetime. The worse part is going to be this wait > and see approach. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 , You probably just did too much over the weekend, we all tend to do that. It's hard to deal with this disease, because most have to change quite a bit. I hear that some do great, and live like they always have. But, many our not that fortunate, and I am one of them. My life has changed so much, and I just take it day to day now. I use to be the planner, and always do everything, and think of more to do, but not now. This disease is very hard to deal with, but we can't do anything about it, but try to make life as comfortale as we can. By taking the RA meds, that helps the progression of the disease. If we need to have pain meds to help us, then there is nothing wrong with that. A lot of us our on anti-depressants for the depression, I don't see anything wrong with that. It's just however one wants to deal with this. I am 41, and I'm on disability, I feel cheated out of the life I had, but we have to deal with what we do now. Just try to take it one day at a time, and it will get easier to cope with. Were all right here for you, and that is always important to have others who understand, hugs Tawny > I did not want to start taking my Plaquenil, really did not want the > commmitment of all of this. I was feeling o.k. this weekend and did > alot of work around the house. > > Well this morning I woke up in agony which I am still in. So I > started the Plaquenil this morning. Does anyone know why simple tasks > around the house can cause such pain? I don't get it and I do not > want it. I need to be active. I can't sit for hours on end doing > nothing, it's not me. > > Thanks for your support. I guess I do not want to believe that I can > possibly be afflicted by some kind of inflammatory illness that might > stick around for a lifetime. The worse part is going to be this wait > and see approach. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 , I know what your going through. I fought taking my meds tooth and nail!! I avoided the meds and now I am paying the price. I have found when I have good days, I still have to take frequent breaks. If I don't, I end up with a flare so bad I just want to die. You don't have to stop living your life, just modify it as needed. Even if you are having a great day, just be sure to spread some breaks out through out your day. Take care!..Marina in Ohio --- In , " lindajbelle " <lindajbelle@y...> wrote: > I did not want to start taking my Plaquenil, really did not want the > commmitment of all of this. I was feeling o.k. this weekend and did > alot of work around the house. > > Well this morning I woke up in agony which I am still in. So I > started the Plaquenil this morning. Does anyone know why simple tasks > around the house can cause such pain? I don't get it and I do not > want it. I need to be active. I can't sit for hours on end doing > nothing, it's not me. > > Thanks for your support. I guess I do not want to believe that I can > possibly be afflicted by some kind of inflammatory illness that might > stick around for a lifetime. The worse part is going to be this wait > and see approach. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 , I know what your going through. I fought taking my meds tooth and nail!! I avoided the meds and now I am paying the price. I have found when I have good days, I still have to take frequent breaks. If I don't, I end up with a flare so bad I just want to die. You don't have to stop living your life, just modify it as needed. Even if you are having a great day, just be sure to spread some breaks out through out your day. Take care!..Marina in Ohio > I did not want to start taking my Plaquenil, really did not want the > commmitment of all of this. I was feeling o.k. this weekend and did > alot of work around the house. > > Well this morning I woke up in agony which I am still in. So I > started the Plaquenil this morning. Does anyone know why simple tasks > around the house can cause such pain? I don't get it and I do not > want it. I need to be active. I can't sit for hours on end doing > nothing, it's not me. > > Thanks for your support. I guess I do not want to believe that I can > possibly be afflicted by some kind of inflammatory illness that might > stick around for a lifetime. The worse part is going to be this wait > and see approach. > > Quote Link to comment Share on other sites More sharing options...
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