hi again :-) OT updates etc

[Guest guest]

Again I have been runnning around and thought I would pop in and say " hi "

2 of my kids go to teaching hospitals for their care and 1 went for her regular

appt and got invited to be in 3 research studies. My sons name finally came up

to the head of the waiting list and finally they ae reallly digging in with him,

sso I have made the 3 hour each way trip there 5 times now in 2 weeks. Me and

son are going again today to sleep there cuz he has to be there by 7 am tomorrow

for a whole day of stuff. I have found out tho that my husband does not do so

well being the one home in charge. ug!

Also I think the VA gets it's new yearly funds in the fall, an they have been

agressive with the appts for my husband and new treatment ideas..so we have

really been super busy running. And of course then I flare more with so many

things going on....<sigh> BUT I am hanging in here and hopeful the docs can

come up with useful info on everyone.

Thinking of you all----- :-)