Re: AN ODE TO RHEUMATOID ARTHRITIS AND NEUROPATHY

[Guest guest]

i am so sorry you feel this way. i had the same problems. i had surgeries on

both my hands and feet. then i started mtx after doing all the others and now

i work 20-23 hrs a week and lead a better life. i wrote a letter to my dr a

couple summers ago. 4 pages long, just like you. it made her cry. so now i am

out trying to do as much as possible. i still have bad days and with the change

of season coming i almost dropped a pan of boiling water last night. but feel

so much better, please hang in there and keep fighting and looking for the

answers that work for you. i am going back to my 3rd concert this year. we are

traveling to green bay and staying overnight. i am so looking forward to that.

kathy in il

[Guest guest]

i am so sorry you feel this way. i had the same problems. i had surgeries on

both my hands and feet. then i started mtx after doing all the others and now

i work 20-23 hrs a week and lead a better life. i wrote a letter to my dr a

couple summers ago. 4 pages long, just like you. it made her cry. so now i am

out trying to do as much as possible. i still have bad days and with the change

of season coming i almost dropped a pan of boiling water last night. but feel

so much better, please hang in there and keep fighting and looking for the

answers that work for you. i am going back to my 3rd concert this year. we are

traveling to green bay and staying overnight. i am so looking forward to that.

kathy in il

[Guest guest]

To Your friend.

CINDI <heinscsf@...> wrote: THE PAIN IN MY BODY IS STILL GOING ON -

RELENTLESSLY, WAVES OF

PAIN IN MY JOINTS, AND DEEP MUSCLES, FROM RHEUMATOID ARTHRIS AND

FIBROMYALGIA AND NEUROPATHY OF THE FEET.

I FEEL LIKE A CAPTIVE IN THIS HOUSE, ME AND MY 3 DOGS, MY NEW

COMPANIONS......WE ARE GIVEN REGULAR FEEDINGS AND WATER, WE DO NOT

HAVE VISITORS SINCE I BECAME DISABLED. MY FAMILY IS VERY, VERY BUSY

WITH THEIR LIVES. I AM ALONE, A CAPTIVE IN MY OWN BODY, THE DOORS

ARE UNLOCKED, THE CAR IS RIGHT OUTSIDE, MY BODY LOCKS ME IN THIS

HOUSE, MY BODY FORBIDS FROM GETTING FROM GETTING DOWN THE 3 STAIRS

TO THE OUTSIDE, MY BODY FORBIDS ME FROM DRIVING, THE ARTHRITIS IN MY

FEET AND TOES AND THE NEUROPATHY, THE PAIN OF FIRE AND ELECTICAL

SHOCKS, KEEP ME FROM BEING ABLE TO STAND, NOW AFTER BECOMING

DISABLED, FRIENDS HAVE LEFT, THEY ARE UNCOMFORTABLE AROUND ME AND MY

CHANGES FROM THE " OLD " ME. SO IF I WERE NOT A CAPTIVE AND COULD

GET " OUT " WHERE WOULD I GO..........?

[Guest guest]

To Your friend.

CINDI <heinscsf@...> wrote: THE PAIN IN MY BODY IS STILL GOING ON -

RELENTLESSLY, WAVES OF

PAIN IN MY JOINTS, AND DEEP MUSCLES, FROM RHEUMATOID ARTHRIS AND

FIBROMYALGIA AND NEUROPATHY OF THE FEET.

I FEEL LIKE A CAPTIVE IN THIS HOUSE, ME AND MY 3 DOGS, MY NEW

COMPANIONS......WE ARE GIVEN REGULAR FEEDINGS AND WATER, WE DO NOT

HAVE VISITORS SINCE I BECAME DISABLED. MY FAMILY IS VERY, VERY BUSY

WITH THEIR LIVES. I AM ALONE, A CAPTIVE IN MY OWN BODY, THE DOORS

ARE UNLOCKED, THE CAR IS RIGHT OUTSIDE, MY BODY LOCKS ME IN THIS

HOUSE, MY BODY FORBIDS FROM GETTING FROM GETTING DOWN THE 3 STAIRS

TO THE OUTSIDE, MY BODY FORBIDS ME FROM DRIVING, THE ARTHRITIS IN MY

FEET AND TOES AND THE NEUROPATHY, THE PAIN OF FIRE AND ELECTICAL

SHOCKS, KEEP ME FROM BEING ABLE TO STAND, NOW AFTER BECOMING

DISABLED, FRIENDS HAVE LEFT, THEY ARE UNCOMFORTABLE AROUND ME AND MY

CHANGES FROM THE " OLD " ME. SO IF I WERE NOT A CAPTIVE AND COULD

GET " OUT " WHERE WOULD I GO..........?

[Guest guest]

Cindi,

Since you are currently unable to go out (and take heart, that may

change), perhaps you could consider going further " in " . What I mean

is, many individuals have chosen a lifestyle of retreat for the

purpose of spiritual development. Perhaps that lifestyle has chosen

you! In Asia, people sometimes live in small, dark caves for months

and years in order to cut off outer distrations that hinder inner

development. In my experience, there is much to be gained from a

regular and intense meditation practice. You could teach yourself

from books, tapes, or resources found on the Internet, or you could

call a meditation center that appeals to you, explain your situation,

and ask if a volunteer could come to your home

to assist you. What do you think?

Sierra

> THE PAIN IN MY BODY IS STILL GOING ON - RELENTLESSLY, WAVES OF

> PAIN IN MY JOINTS, AND DEEP MUSCLES, FROM RHEUMATOID ARTHRIS AND

> FIBROMYALGIA AND NEUROPATHY OF THE FEET.

> I FEEL LIKE A CAPTIVE IN THIS HOUSE, ME AND MY 3 DOGS, MY NEW

> COMPANIONS......WE ARE GIVEN REGULAR FEEDINGS AND WATER, WE DO NOT

> HAVE VISITORS SINCE I BECAME DISABLED. MY FAMILY IS VERY, VERY

BUSY

> WITH THEIR LIVES. I AM ALONE, A CAPTIVE IN MY OWN BODY, THE DOORS

> ARE UNLOCKED, THE CAR IS RIGHT OUTSIDE, MY BODY LOCKS ME IN THIS

> HOUSE, MY BODY FORBIDS FROM GETTING FROM GETTING DOWN THE 3 STAIRS

> TO THE OUTSIDE, MY BODY FORBIDS ME FROM DRIVING, THE ARTHRITIS IN

MY

> FEET AND TOES AND THE NEUROPATHY, THE PAIN OF FIRE AND ELECTICAL

> SHOCKS, KEEP ME FROM BEING ABLE TO STAND, NOW AFTER BECOMING

> DISABLED, FRIENDS HAVE LEFT, THEY ARE UNCOMFORTABLE AROUND ME AND

MY

> CHANGES FROM THE " OLD " ME. SO IF I WERE NOT A CAPTIVE AND COULD

> GET " OUT " WHERE WOULD I GO..........?

[Guest guest]

Cindi,

Since you are currently unable to go out (and take heart, that may

change), perhaps you could consider going further " in " . What I mean

is, many individuals have chosen a lifestyle of retreat for the

purpose of spiritual development. Perhaps that lifestyle has chosen

you! In Asia, people sometimes live in small, dark caves for months

and years in order to cut off outer distrations that hinder inner

development. In my experience, there is much to be gained from a

regular and intense meditation practice. You could teach yourself

from books, tapes, or resources found on the Internet, or you could

call a meditation center that appeals to you, explain your situation,

and ask if a volunteer could come to your home

to assist you. What do you think?

Sierra

> THE PAIN IN MY BODY IS STILL GOING ON - RELENTLESSLY, WAVES OF

> PAIN IN MY JOINTS, AND DEEP MUSCLES, FROM RHEUMATOID ARTHRIS AND

> FIBROMYALGIA AND NEUROPATHY OF THE FEET.

> I FEEL LIKE A CAPTIVE IN THIS HOUSE, ME AND MY 3 DOGS, MY NEW

> COMPANIONS......WE ARE GIVEN REGULAR FEEDINGS AND WATER, WE DO NOT

> HAVE VISITORS SINCE I BECAME DISABLED. MY FAMILY IS VERY, VERY

BUSY

> WITH THEIR LIVES. I AM ALONE, A CAPTIVE IN MY OWN BODY, THE DOORS

> ARE UNLOCKED, THE CAR IS RIGHT OUTSIDE, MY BODY LOCKS ME IN THIS

> HOUSE, MY BODY FORBIDS FROM GETTING FROM GETTING DOWN THE 3 STAIRS

> TO THE OUTSIDE, MY BODY FORBIDS ME FROM DRIVING, THE ARTHRITIS IN

MY

> FEET AND TOES AND THE NEUROPATHY, THE PAIN OF FIRE AND ELECTICAL

> SHOCKS, KEEP ME FROM BEING ABLE TO STAND, NOW AFTER BECOMING

> DISABLED, FRIENDS HAVE LEFT, THEY ARE UNCOMFORTABLE AROUND ME AND

MY

> CHANGES FROM THE " OLD " ME. SO IF I WERE NOT A CAPTIVE AND COULD

> GET " OUT " WHERE WOULD I GO..........?

[Guest guest]

Dear Cindi:

Hi, my name is Colletti. I am a member of RA-support. I have

Rheumatoid Arthritis, Fibromyalgia, Spinal Stenosis, Osteoporosis,

Osteoarthritis,

DDD, Sciactica, and Atelectasis, Asthma, and a Kidney transplant and several

other things.

Why I am writing to you is not to tell you how sick I am but to tell you I am

doing okay. I use a pain patch called Duragesic, (Fentanyl). It is very

good. It makes me feel human. I do not have a drugged up feeling either or any

slurred speech. Talk to your Dr. and see if he will order it for you. You

have to be on narcotics to start it and it is expensive too.

Let me know what you think. I have read a lot of your posts and I am sorry

you are in pain. I thought today maybe this would help you like it has helped

me.

Sincerely, Colletti

Anjillah@...

[Guest guest]

Dear Cindi:

Hi, my name is Colletti. I am a member of RA-support. I have

Rheumatoid Arthritis, Fibromyalgia, Spinal Stenosis, Osteoporosis,

Osteoarthritis,

DDD, Sciactica, and Atelectasis, Asthma, and a Kidney transplant and several

other things.

Why I am writing to you is not to tell you how sick I am but to tell you I am

doing okay. I use a pain patch called Duragesic, (Fentanyl). It is very

good. It makes me feel human. I do not have a drugged up feeling either or any

slurred speech. Talk to your Dr. and see if he will order it for you. You

have to be on narcotics to start it and it is expensive too.

Let me know what you think. I have read a lot of your posts and I am sorry

you are in pain. I thought today maybe this would help you like it has helped

me.

Sincerely, Colletti

Anjillah@...

[Guest guest]

My heart goes out to you, Cindi. I know how you feel with the way

you word it. My family stays mostly away, almost afraid to face me,

to be around me. I live alone with my 2 cats. If I didn't get out

of this house, I would have nothing to feed the cats!!! I have no

choice about it!! I feel for you Girl!! Hang in there!!..Marina in

Ohio

> THE PAIN IN MY BODY IS STILL GOING ON - RELENTLESSLY, WAVES OF

> PAIN IN MY JOINTS, AND DEEP MUSCLES, FROM RHEUMATOID ARTHRIS AND

> FIBROMYALGIA AND NEUROPATHY OF THE FEET.

> I FEEL LIKE A CAPTIVE IN THIS HOUSE, ME AND MY 3 DOGS, MY NEW

> COMPANIONS......WE ARE GIVEN REGULAR FEEDINGS AND WATER, WE DO NOT

> HAVE VISITORS SINCE I BECAME DISABLED. MY FAMILY IS VERY, VERY

BUSY

> WITH THEIR LIVES. I AM ALONE, A CAPTIVE IN MY OWN BODY, THE

DOORS

> ARE UNLOCKED, THE CAR IS RIGHT OUTSIDE, MY BODY LOCKS ME IN THIS

> HOUSE, MY BODY FORBIDS FROM GETTING FROM GETTING DOWN THE 3 STAIRS

> TO THE OUTSIDE, MY BODY FORBIDS ME FROM DRIVING, THE ARTHRITIS IN

MY

> FEET AND TOES AND THE NEUROPATHY, THE PAIN OF FIRE AND ELECTICAL

> SHOCKS, KEEP ME FROM BEING ABLE TO STAND, NOW AFTER BECOMING

> DISABLED, FRIENDS HAVE LEFT, THEY ARE UNCOMFORTABLE AROUND ME AND

MY

> CHANGES FROM THE " OLD " ME. SO IF I WERE NOT A CAPTIVE AND COULD

> GET " OUT " WHERE WOULD I GO..........?

[Guest guest]

My heart goes out to you, Cindi. I know how you feel with the way

you word it. My family stays mostly away, almost afraid to face me,

to be around me. I live alone with my 2 cats. If I didn't get out

of this house, I would have nothing to feed the cats!!! I have no

choice about it!! I feel for you Girl!! Hang in there!!..Marina in

Ohio

> THE PAIN IN MY BODY IS STILL GOING ON - RELENTLESSLY, WAVES OF

> PAIN IN MY JOINTS, AND DEEP MUSCLES, FROM RHEUMATOID ARTHRIS AND

> FIBROMYALGIA AND NEUROPATHY OF THE FEET.

> I FEEL LIKE A CAPTIVE IN THIS HOUSE, ME AND MY 3 DOGS, MY NEW

> COMPANIONS......WE ARE GIVEN REGULAR FEEDINGS AND WATER, WE DO NOT

> HAVE VISITORS SINCE I BECAME DISABLED. MY FAMILY IS VERY, VERY

BUSY

> WITH THEIR LIVES. I AM ALONE, A CAPTIVE IN MY OWN BODY, THE

DOORS

> ARE UNLOCKED, THE CAR IS RIGHT OUTSIDE, MY BODY LOCKS ME IN THIS

> HOUSE, MY BODY FORBIDS FROM GETTING FROM GETTING DOWN THE 3 STAIRS

> TO THE OUTSIDE, MY BODY FORBIDS ME FROM DRIVING, THE ARTHRITIS IN

MY

> FEET AND TOES AND THE NEUROPATHY, THE PAIN OF FIRE AND ELECTICAL

> SHOCKS, KEEP ME FROM BEING ABLE TO STAND, NOW AFTER BECOMING

> DISABLED, FRIENDS HAVE LEFT, THEY ARE UNCOMFORTABLE AROUND ME AND

MY

> CHANGES FROM THE " OLD " ME. SO IF I WERE NOT A CAPTIVE AND COULD

> GET " OUT " WHERE WOULD I GO..........?