Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hello everyone, My name is . My husband's name is Jim and we just found out about this great support group. Jim recieved a collectomy in 1991 for ulcertive colitis and was diagnosed with PSC about 1 year ago. Jim is in the hospital so I will be posting messages for him and bringing him the info. He has been listed with California Pacific Medical Center for a couple of months and on Monday we are taking Jim to the Oregon Health Sciences University to be evaluated and hopefully listed there also. About a week ago Jim had a T-tube placed in a bile duct to drain some off but since that was put in place Jim has had pain so bad that he is in the hospital on a morphine drip. Hopefully this next week we will get some answers to why so much pain. His gasto Dr. can't find a cause for all of the pain. All of Jim's ducts are totally blocked so we are getting to a desperate stage where his billirubin is about 21 and alk phos is around 1200. I was wondering if any of you have been treated with imunosuppressants before transplant? They have had Jim on all of them to try and I guess slow the disease process down but none of them worked. Thank you, Kingsbury Quote Link to comment Share on other sites More sharing options...
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