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Re: Oral Colloral - collagen

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a,

Yes, my friend, on another list, has stopped all her other meds and takes

only undenatured chicken collagen. That's why I'm so anxious to try it. I

don't want to take enbrel. I also found out that my DHEA levels are low and

that is used to help lupus and might help RA, especially since mine is low.

What are you taking and how do you feel?

Thanks,

ette

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a,

Yes, my friend, on another list, has stopped all her other meds and takes

only undenatured chicken collagen. That's why I'm so anxious to try it. I

don't want to take enbrel. I also found out that my DHEA levels are low and

that is used to help lupus and might help RA, especially since mine is low.

What are you taking and how do you feel?

Thanks,

ette

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ette,

How long has your friend been on it? So many times I though something was

working because of the way this disease flares and subsides. I'm on enbrel

and I feel pretty crappy, but there are many reasons for it. I had stopped

enbrel because of having a cold and I went into a flare. I also know that

these hurricanes here in Florida are really causing me a lot of pain. On

top of that I joined a wellness center and am doing the aqua exercise

program that the Arthritis Foundation has, and I'm doing an osteoporosis

exercise class. So you see, it's not a good time to ask how I feel LOL!

I hope as time goes by, these classes won't be so difficult and leaving me

feel so exhausted. I feel better exercising, but my muscles are so out of

shape that I have little endurance. It will get better in time.

Enbrel has helped a great deal and that is the only reason I continue taking

it. I'd love to go off of it, but every time I go off of it I'm quickly

reminded why I keep taking it. Since I have a lot of joint damage, I can't

afford any more.

Who tested your DHEA levels? I bought a bottle of DHEA but have been

reluctant to take it.

a

> a,

>

> Yes, my friend, on another list, has stopped all her other meds and takes

> only undenatured chicken collagen. That's why I'm so anxious to try it. I

> don't want to take enbrel. I also found out that my DHEA levels are low and

> that is used to help lupus and might help RA, especially since mine is low.

>

> What are you taking and how do you feel?

>

> Thanks,

> ette

>

>

>

>

>

>

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ette,

How long has your friend been on it? So many times I though something was

working because of the way this disease flares and subsides. I'm on enbrel

and I feel pretty crappy, but there are many reasons for it. I had stopped

enbrel because of having a cold and I went into a flare. I also know that

these hurricanes here in Florida are really causing me a lot of pain. On

top of that I joined a wellness center and am doing the aqua exercise

program that the Arthritis Foundation has, and I'm doing an osteoporosis

exercise class. So you see, it's not a good time to ask how I feel LOL!

I hope as time goes by, these classes won't be so difficult and leaving me

feel so exhausted. I feel better exercising, but my muscles are so out of

shape that I have little endurance. It will get better in time.

Enbrel has helped a great deal and that is the only reason I continue taking

it. I'd love to go off of it, but every time I go off of it I'm quickly

reminded why I keep taking it. Since I have a lot of joint damage, I can't

afford any more.

Who tested your DHEA levels? I bought a bottle of DHEA but have been

reluctant to take it.

a

> a,

>

> Yes, my friend, on another list, has stopped all her other meds and takes

> only undenatured chicken collagen. That's why I'm so anxious to try it. I

> don't want to take enbrel. I also found out that my DHEA levels are low and

> that is used to help lupus and might help RA, especially since mine is low.

>

> What are you taking and how do you feel?

>

> Thanks,

> ette

>

>

>

>

>

>

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Hi a,

My rheumatologist tested the DHEA levels. I am going to try a sublingual

DHEA that I get from a compounding pharmacy. I want the sublingual since I

don't want to have trouble with my liver. I will take 12 1/2 mg. to start.

The tablet is 25 mg but I will cut it in half.

The person on the other list has been taking the collagen since she was in

the study. Not sure how long ago that was.

ette

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Hi a,

My rheumatologist tested the DHEA levels. I am going to try a sublingual

DHEA that I get from a compounding pharmacy. I want the sublingual since I

don't want to have trouble with my liver. I will take 12 1/2 mg. to start.

The tablet is 25 mg but I will cut it in half.

The person on the other list has been taking the collagen since she was in

the study. Not sure how long ago that was.

ette

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ette,

I hope it helps. I doubt my my rheumys have ever tested my levels. I'll

have to request it especially since I suddenly stopped having periods at age

48. My GYN even gave me a pregnancy test LOL! He wanted me to go on

hormones but I declined. I feel 48 is pretty young for menopause and had

expected to at least become irregular before just stopping cold turkey. I'm

not complaining LOL! But I did read that low DHEA levels can cause

amenorrhea (absence of menstruation) so maybe I should look into it.

I'm not sure what study phase your friend was in, but I believe it ended

around 199. I remember Enbrel being approved close to the time the study

ended, and that is when I started Enbrel.

a

> Hi a,

>

> My rheumatologist tested the DHEA levels. I am going to try a sublingual

> DHEA that I get from a compounding pharmacy. I want the sublingual since I

> don't want to have trouble with my liver. I will take 12 1/2 mg. to start.

> The tablet is 25 mg but I will cut it in half.

>

> The person on the other list has been taking the collagen since she was in

> the study. Not sure how long ago that was.

>

> ette

>

>

>

>

>

>

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Share on other sites

ette,

I hope it helps. I doubt my my rheumys have ever tested my levels. I'll

have to request it especially since I suddenly stopped having periods at age

48. My GYN even gave me a pregnancy test LOL! He wanted me to go on

hormones but I declined. I feel 48 is pretty young for menopause and had

expected to at least become irregular before just stopping cold turkey. I'm

not complaining LOL! But I did read that low DHEA levels can cause

amenorrhea (absence of menstruation) so maybe I should look into it.

I'm not sure what study phase your friend was in, but I believe it ended

around 199. I remember Enbrel being approved close to the time the study

ended, and that is when I started Enbrel.

a

> Hi a,

>

> My rheumatologist tested the DHEA levels. I am going to try a sublingual

> DHEA that I get from a compounding pharmacy. I want the sublingual since I

> don't want to have trouble with my liver. I will take 12 1/2 mg. to start.

> The tablet is 25 mg but I will cut it in half.

>

> The person on the other list has been taking the collagen since she was in

> the study. Not sure how long ago that was.

>

> ette

>

>

>

>

>

>

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Hi a,

I started menopause at 47 and was diagnosed wirh RA at the same time. I do

take hormones - natural estriol and natural micronized progesterone in a

sublingual tablet that I break in half. I started on the collagen this

morning and I'll start on the DHEA when it is delivered.

How are you doing on enbrel? Do you worry about getting infections and

lowering your immune system, etc. I have it in my refrigerator but I'm

trying everything else first.

Best of health,

ette

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Hi a,

I started menopause at 47 and was diagnosed wirh RA at the same time. I do

take hormones - natural estriol and natural micronized progesterone in a

sublingual tablet that I break in half. I started on the collagen this

morning and I'll start on the DHEA when it is delivered.

How are you doing on enbrel? Do you worry about getting infections and

lowering your immune system, etc. I have it in my refrigerator but I'm

trying everything else first.

Best of health,

ette

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I am doing very well on Enbrel. I've been on it since 1998 and have not had

one infection. I rarely get sick, maybe one cold a year and when I do, I

stop Enbrel. I've have a very good immune system all of my life. When I do

get something, I'm over it very quickly. It seems most people with RA have

a low immune system, but for some reason mine seems quite strong.

I've tried going off Enbrel several times for reasons of being afraid of the

possible long term side effects. Each time I " m quickly reminded that the

quality of my every day life is not so good when I don't use the Enbrel.

I was one of the lucky ones that responded immediately to Enbrel. Within 2

days of my first injection I felt relief. I though it was in my head, but

others have reported immediate results as well. I wish it worked as well

for everyone.

Maybe when I get my liver problem resolved, I'll look into the DHEA.

a

> Hi a,

>

> I started menopause at 47 and was diagnosed wirh RA at the same time. I do

> take hormones - natural estriol and natural micronized progesterone in a

> sublingual tablet that I break in half. I started on the collagen this

> morning and I'll start on the DHEA when it is delivered.

>

> How are you doing on enbrel? Do you worry about getting infections and

> lowering your immune system, etc. I have it in my refrigerator but I'm

> trying everything else first.

>

> Best of health,

> ette

>

>

>

>

>

>

>

Link to comment
Share on other sites

I am doing very well on Enbrel. I've been on it since 1998 and have not had

one infection. I rarely get sick, maybe one cold a year and when I do, I

stop Enbrel. I've have a very good immune system all of my life. When I do

get something, I'm over it very quickly. It seems most people with RA have

a low immune system, but for some reason mine seems quite strong.

I've tried going off Enbrel several times for reasons of being afraid of the

possible long term side effects. Each time I " m quickly reminded that the

quality of my every day life is not so good when I don't use the Enbrel.

I was one of the lucky ones that responded immediately to Enbrel. Within 2

days of my first injection I felt relief. I though it was in my head, but

others have reported immediate results as well. I wish it worked as well

for everyone.

Maybe when I get my liver problem resolved, I'll look into the DHEA.

a

> Hi a,

>

> I started menopause at 47 and was diagnosed wirh RA at the same time. I do

> take hormones - natural estriol and natural micronized progesterone in a

> sublingual tablet that I break in half. I started on the collagen this

> morning and I'll start on the DHEA when it is delivered.

>

> How are you doing on enbrel? Do you worry about getting infections and

> lowering your immune system, etc. I have it in my refrigerator but I'm

> trying everything else first.

>

> Best of health,

> ette

>

>

>

>

>

>

>

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