Re: (unknown)

[Guest guest]

Same here, everyone must be busy doing other things. That must mean

everyones having less pain today, or everyones hurting so bad they can't

check their messages.

Rod

(unknown)

> hi everbody i amnot getting know emails from nobody i havenot got a email

> seance about 1pm yesterday donnie

>

>

>

>

>

[Guest guest]

I can't speak for everyone else, but for me, my RSD and my Fibro have both

decided to flare today...<sigh> And I still have to get some things

done..though it looks like I won't get as much done as I wanted

Marta Towne-

www.shadowridgeranch.info

www.myspace.com/martatownejones

www.myspace.com/myshadowridge

From: Hugs-N-Pain [mailto:Hugs-N-Pain ] On

Behalf Of Rod

Sent: Saturday, July 25, 2009 1:26 PM

To: Hugs-N-Pain

Subject: Re: (unknown)

Same here, everyone must be busy doing other things. That must mean

everyones having less pain today, or everyones hurting so bad they can't

check their messages.

Rod

(unknown)

> hi everbody i amnot getting know emails from nobody i havenot got a email

> seance about 1pm yesterday donnie

>

>

>

>

>

[Guest guest]

We've been a very busy bunch lately...probably a kick back time.  we do that

from time to time...just sort of stop or run out of things to say...we always

come back with lots and lots to say.

Lotacats

“I love cats because I enjoy my home; and little by little, they become its

visible soul.â€

Twitter_follow me

http://twitter.com/LotacatsFunPix

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

Subject: (unknown)

To: Hugs-N-Pain

Date: Saturday, July 25, 2009, 10:46 AM

 

hi everbody i amnot getting know emails from nobody i havenot got a email seance

about 1pm yesterday donnie

[Guest guest]

Amen to less pain. Lets make it a year of effort. Those of us with chronic pain

need to remember that there is always hope for less pain. Lets make sure we

continue help each other in a friendly, supportive way to investigate all

possibilities for pain relief

and also help eachother to enlighten all those who just don't get it.

Happy new year everyone.

To: Hugs-N-Pain

From: donnie3024@...

Date: Wed, 30 Dec 2009 15:12:23 -0800

Subject: (unknown)

hi everbody i hope everbody is haveing a less pain new years donnie

[Guest guest]

I'm in the same boat Donnie. I pay $264 a month for insurance out

of my little disability check then by Sept. I have to pay for ALL my

medicine til the end of the year. Some months my check isn't enough

to pay for my meds. I know its a joke. I'm just thankful tho for the

insurance I do have even tho it stinks. Been missing seeing you post.

Glad your doing ok.

Deta

>

>

> $264hi everbody i have medco insurance i pay 6.00 dollers a perscrithion

> wonce my meds get to 2800.00 i have to pay the next 4500.00 dollers i cannot

> pay that what do i do to somekind of insurance to pay that dose enybody know

> donnie

>

>

[Guest guest]

Wow...that's a lot.  Don't you have Medicare and use a Medicare Supplement?  I

use the local one and don't pay a dime.  The prescriptions are no more then $6.

I'm not sure how all these insurances work.  I've used medicade supplement

since I first got disability.  Had to recently change it due to my doctor not

using it anymore but the Senior Dimensions let me in.  I think these things are

local for folks.  Nice to have but like I said.  Poorly understood for my poor

brain..

Lotacats

“I love cats because I enjoy my home; and little by little, they become its

visible soul.â€

Twitter_follow me

http://twitter.com/LotacatsFunPix

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

Facebook

http://www.facebook.com/#/profile.php?ref=name & id=1030129414

>

>

> $264hi everbody i have medco insurance i pay 6.00 dollers a perscrithion

> wonce my meds get to 2800.00 i have to pay the next 4500.00 dollers i cannot

> pay that what do i do to somekind of insurance to pay that dose enybody know

> donnie

>

>

[Guest guest]

hi lotacats mine cost 6.00 untill it gets to 2800.00 and i have to pay the next

4500.00 how do i get suplumental insurance to pay the 4500.00 i cannot aford

that donnie

>

>

> $264hi everbody i have medco insurance i pay 6.00 dollers a perscrithion

> wonce my meds get to 2800.00 i have to pay the next 4500.00 dollers i cannot

> pay that what do i do to somekind of insurance to pay that dose enybody know

> donnie

>

>

[Guest guest]

Hi....I am curious, how many of you all are on or have been on the Fetenal

patch. I never have been as far as Iknow, def. not on the patch, but I mean I

dont think I have ever taken this, except maybe to be knocked out for surgery,

or I understand now they may give it to people who are in labor (they gave it to

my daughter in an eperdoral....surprise)....anyway I just wondered how effective

it is. I have been on Methadone for a long time, and I dont know how much it

helps but I know I still have alot of pain>>??? Anybody else take this in any

other way for pain? Thanks for sharing, Diane

EMAILING FOR THE GREATER GOOD

Join me

To: Hugs-N-Pain

From: donnie3024@...

Date: Fri, 19 Feb 2010 09:10:01 -0800

Subject: (unknown)

hi everbody i go to the doc later today i am takeing a 75 mg fentnal patch

my legs tingle what can i ask the doc to put me on for my rsd i dont like the

patches nomore donnie

[Guest guest]

I am on the patch. It does not help my pain completely but I get really

nauseated on it. My last patch I had to rip off after 12 hours of nausea.

Subject: RE: (unknown)

To: " hugs and pain at yahoo " <hugs-n-pain >

Date: Saturday, February 20, 2010, 1:19 PM

Hi....I am curious, how many of you all are on or have been on the Fetenal

patch.  I never have been as far as Iknow, def. not on the patch, but I mean I

dont think I have ever taken this, except maybe to be knocked out for surgery,

or I understand now they may give it to people who are in labor (they gave it to

my daughter in an eperdoral....surprise)....anyway I just wondered how effective

it is.  I have been on Methadone for a long time, and I dont know how much it

helps but I know I still have alot of pain>>??? Anybody else take this in any

other way for pain?  Thanks for sharing, Diane

EMAILING FOR THE GREATER GOOD

Join me

To: Hugs-N-Pain

From: donnie3024@...

Date: Fri, 19 Feb 2010 09:10:01 -0800

Subject: (unknown)

 

   

     

     

      hi everbody i go to the doc later today i am takeing a 75 mg fentnal patch

my legs tingle what can i ask the doc to put me on for my rsd i dont like the

patches nomore donnie

[Guest guest]

Re: fentanyl patch

When I first went on the patch which was 50mcg, I put it on my chest

and varied it from side to side. I was so nauseated. Then I found out

it was better to put it on my upper arm. Eventually they have it

worked it up to 100mcg. I am doing quite well with it now but it took

a long time to get used to it.I also use another narcotic and lyrica

which works the best for my neuropathy I will be going to a new pain

Dr. as the one i had left town so will see what we can do to get more

pain relief. I like the Mylan brand the best as it sticks better for

me. Lois

> Not a patch but long acting Morphine.  It has been very helpful with no real

> side effects at all.

>

> Lotacats

>

>

>

> “I love cats because I enjoy my home; and little by little, they become its

> visible soul.”

>

>

>

> Twitter_follow me

>

> http://twitter.com/LotacatsFunPix

>

>

>

> Express Chronic Pain Awareness

>

> http://www.cafepress.com/lotacatspix/5815010

>

>

>

> Lotacatsfunpix.com

>

> http://www.lotacatsfunpix.com/

>

>

>

> Deviantart

>

> http://lotacats05.deviantart.com/

>

>

>

> Facebook

>

> http://www.facebook.com/#/profile.php?ref=name & id=1030129414

>

>

>

>

> Subject: RE: (unknown)

> To: " hugs and pain at yahoo " <hugs-n-pain >

> Date: Saturday, February 20, 2010, 11:19 AM

>

>

> Hi....I am curious, how many of you all are on or have been on the Fetenal

> patch.  I never have been as far as Iknow, def. not on the patch, but I mean

> I dont think I have ever taken this, except maybe to be knocked out for

> surgery, or I understand now they may give it to people who are in labor

> (they gave it to my daughter in an eperdoral....surprise)....anyway I just

> wondered how effective it is.  I have been on Methadone for a long time, and

> I dont know how much it helps but I know I still have alot of pain>>???

> Anybody else take this in any other way for pain?  Thanks for sharing, Diane

>

>

>

>

>

> EMAILING FOR THE GREATER GOOD

> Join me

>

> To: Hugs-N-Pain

> From: donnie3024@...

> Date: Fri, 19 Feb 2010 09:10:01 -0800

> Subject: (unknown)

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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>

>

>

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>

>       hi everbody i go to the doc later today i am takeing a 75 mg fentnal

> patch my legs tingle what can i ask the doc to put me on for my rsd i dont

> like the patches nomore donnie

>

>

>

>

[Guest guest]

and Diane,

I have been on the fentanyl patch for a couple of years now. It doesn't take

the pain away completely, but really helps. I have never had any nausea or

drowsiness from it, but it's very important to start at a low dose and increase

gradually. Ditto what Lois said: the Mylan brand is much smaller, thinner and

stays on better than others, although some strengths are too expensive for my

insurance for some reason. I read a couple of days ago that Colleen put all

kinds of stuff over it when she bathed. I have no idea why that would be

necessary???? I bathe, swim etc. With no problem.

Hope that helps.

Hugs,

Alanna

Sent from my Verizon Wireless BlackBerry

(unknown)

hi everbody i go to the doc later today i am takeing a 75 mg fentnal patch

my legs tingle what can i ask the doc to put me on for my rsd i dont like the

patches nomore donnie

[Guest guest]

Is it true that the patch is the same as taking a gabapentin pill or

Hydrocondine pill

Alanna Wilgus wrote:

>

> and Diane,

> I have been on the fentanyl patch for a couple of years now. It

> doesn't take the pain away completely, but really helps. I have never

> had any nausea or drowsiness from it, but it's very important to start

> at a low dose and increase gradually. Ditto what Lois said: the Mylan

> brand is much smaller, thinner and stays on better than others,

> although some strengths are too expensive for my insurance for some

> reason. I read a couple of days ago that Colleen put all kinds of

> stuff over it when she bathed. I have no idea why that would be

> necessary???? I bathe, swim etc. With no problem.

> Hope that helps.

> Hugs,

> Alanna

> Sent from my Verizon Wireless BlackBerry

>

> (unknown)

>

>

>

>

>

>

> hi everbody i go to the doc later today i am takeing a 75 mg fentnal

> patch my legs tingle what can i ask the doc to put me on for my rsd i

> dont like the patches nomore donnie

>

>

[Guest guest]

linda,

no it is not true. gabapentin did not do anything but make me act and feel

like a retarded person. hydrocodone (vicodin) is a short term med that lasts 4

to 6 hrs. fentanyl is a long term med that lasts for days. it is also at least

2 steps higher on the pain relief than vicodin. my doc would not give me the

patch. she says my pain has to be worse (whatever that means). To go from

vicodin to oxycontin then to the patch. but she hardly ever prescribes

oxycontin coz of the fed scrutiny and paperwork involved so right now I make do.

I was up to 180 vicodin a month so weaned off them last year. lately just

taking ty 3's tho i have some vicodin left for the breakthroughs...

but some people have good luck with gabapentin so it is worth a try. lyrica

is also prescribed for pain and hear some new non-narco meds are coming out.

tramadol is another alternative i have been on it in the past it is not real

strong but last 12 hrs if you get the extended release (brand name) ones. good

for those still working i would think...

later,

chris

from the wilds of

Indy (yee haw, green acres)

> >

> > From: Diane Franco <Franco775@... <mailto:Franco775%40msn.com>>

> > Subject: RE: (unknown)

> > To: " hugs and pain at yahoo " <hugs-n-pain

> > <mailto:hugs-n-pain%40yahoogroups.com>>

> > Date: Saturday, February 20, 2010, 1:19 PM

> >

> > Hi....I am curious, how many of you all are on or have been on the

> > Fetenal patch. I never have been as far as Iknow, def. not on the

> > patch, but I mean I dont think I have ever taken this, except maybe to

> > be knocked out for surgery, or I understand now they may give it to

> > people who are in labor (they gave it to my daughter in an

> > eperdoral....surprise)....anyway I just wondered how effective it is.

> > I have been on Methadone for a long time, and I dont know how much it

> > helps but I know I still have alot of pain>>??? Anybody else take this

> > in any other way for pain? Thanks for sharing, Diane

> >

> > EMAILING FOR THE GREATER GOOD

> > Join me

> >

> > To: Hugs-N-Pain <mailto:Hugs-N-Pain%40yahoogroups.com>

> > From: donnie3024@... <mailto:donnie3024%40yahoo.com>

> > Date: Fri, 19 Feb 2010 09:10:01 -0800

> > Subject: (unknown)

> >

> >

> >

> >

> >

> >

> > hi everbody i go to the doc later today i am takeing a 75 mg fentnal

> > patch my legs tingle what can i ask the doc to put me on for my rsd i

> > dont like the patches nomore donnie

> >

> >

[Guest guest]

I think we let this go too long.  I think my doc got a little

scared...like... " Oh, God...what are we doing for your osteopenia " ....well...I

won't know the results until the first of next month but I bet it's not real

good.

The pain is the dull that is described from compression fractures.  The new

radiating pain is new now....along with the RSD type of pain.

Plus..the muscle and joint pain are out of site anymore.  I think he was going

with the idea fibro doesn't progress that much even tho a lot of fibro folks

would argue the point, but this crap is progressive. Man..I can hardly walk

sometimes it's so bad.  

Fibro would give you an occasional break but not the case anymore.  Man...why

the hell did I have to get all of this together?  Wasn't just one or two items

enuff already?!?!

I'm so tired of the pain.  I'm afraid to move sometimes but I still do what I

can physically.

Lotacats

“I love cats because I enjoy my home; and little by little, they become its

visible soul.â€

Twitter_follow me

http://twitter.com/LotacatsFunPix

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

Facebook

http://www.facebook.com/#/profile.php?ref=name & id=1030129414

Subject: (unknown)

To: Hugs-N-Pain

Date: Monday, April 12, 2010, 9:52 AM

 

Don't let your Bone Density Tests go more than the 2 years they say!!!!!!!

I had one less than 2 years ago but have had so much pain from all my medical

conditions that I went to the dr. one day about 4 months ago crying with back

pain and she was very upset. I STARTED WITH HER ABOUT 9 months ago. I was very

swaybacked but I thought it was due to bad posture due to having Polio. Not so!

I have lost 2 inches and after  a Thorasic Spine x-ray, they found several old

and several new breaks or fractures in spine plus Bone Density Test showed I am

in the very highest rick catagory for fractures and have severe osteoporosis.

Less than 2 years ago I had very mild osteopenia. Now I have to give myself a

shot of Forteo EVERYDAY and be very careful and try to do weight bearing

exercises. Ladies.....listen to me and have yourself checked before you get to

my stage.....shots aren't fun giving to yourself and husband can't bear to do

it for me. LOL.

Laraine in NC.

Live Simply, Love Generously, Care Deeply, Speak Kindly AND LEAVE THE REST TO

GOD. Our God Is An Awesome God and HE Reigns From Heaven Above!

[Guest guest]

its working

In a message dated 5/7/2010 11:11:49 A.M. Eastern Daylight Time,

wineyamhillcounty@... writes:

Subject:

To: _Hugs-N-Pain@Hugs-N-Pain@Hug_ (mailto:Hugs-N-Pain )

Is this site still working, I have not seen a posting in weeks.

[Non-text portions of this message have been removed]

[Guest guest]

Hi

I don't now I haven't either.

Subject: (unknown)

To: Hugs-N-Pain

Date: Friday, May 7, 2010, 11:11 AM

 

Subject:

To: Hugs-N-Pain@ yahoogroups. com

Is this site still working, I have not seen a posting in weeks.

[Guest guest]

Sometimes we do that...go all quiet and then someone hollers.... " Where is

everyone " ...

All back to normal....Man...my regular computer is being very bad...glad I have

a new backup one.

Lotacats

“I love cats because I enjoy my home; and little by little, they become its

visible soul.â€

Twitter_follow me

http://twitter.com/LotacatsFunPix

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

Facebook

http://www.facebook.com/#/profile.php?ref=name & id=1030129414

From: T Trump <wineyamhillcounty@ yahoo.com>

Subject: (unknown)

To: Hugs-N-Pain@ yahoogroups. com

Date: Friday, May 7, 2010, 11:11 AM

 

Subject:

To: Hugs-N-Pain@ yahoogroups. com

Is this site still working, I have not seen a posting in weeks.

[Guest guest]

My last two days absolutely SUCKED!!  The pain level got bad enough my poor

heart was skipping beats all over the place.  When I got the pain level down it

simmered down...but crap.  When it gets really bad I have nasty nightmares.

 Mostly it's ok but sometimes those pain levels just go too high.  

Should improve some now.  I picked up my break thru pain meds just a bit ago.

 Man...I HATE pain.  I wonder what it be like to just wake up feel normal.  I

remember with the Fibro it would do that now and again but those days are behind

me.  They all suck now.  I don't know what I'd do with normal!!

My son and I are going on vacation to see number one son and his aunt in

Washington and I'm looking forward to the drive.  Head clearing time.  Leave

on the 8th.  His aunt has similar pain problems like me with fibro ad has

diabetes on top of it.  We always have something in common to yak about as well

as a lot of other goodies.  My number one son takes care of her like my number

two son helps takes care of me. 

Lotacats

“I love cats because I enjoy my home; and little by little, they become its

visible soul.â€

Twitter_follow me

http://twitter.com/LotacatsFunPix

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

Facebook

http://www.facebook.com/#/profile.php?ref=name & id=1030129414

Subject: (unknown)

To: Hugs-N-Pain

Date: Sunday, June 27, 2010, 11:21 AM

 

hi everbody i hope everbody is haveing a less pain day donnie

[Guest guest]

I am so sorry about your pain. Mine has been really bad lately. I think the

hardest on me.. is not being able to keep my house as clean as I would want.

When I had to go to the ER it was the all time low for me. I have never taken an

ambulance ride and I got the ambulance drivers from hell. They laughed when I

said I had fibro.... but, thank God or maybe not.. .my BP was high enough the

drivers finally straightened up.

Subject: (unknown)

To: Hugs-N-Pain

Date: Sunday, June 27, 2010, 11:21 AM

 

hi everbody i hope everbody is haveing a less pain day donnie

[Guest guest]

I know what you mean when you say you get the " Professionals from hell " type of

thing.  Clinics will do that to a painer.   

It's unreal that medical people don't understand the nature of pain and that

it's the body's " Red Alarm " that will not turn off and the body begins to react

the stress that it causes the body to go thru without end.

Laughing at Fibro!! Since when did this start to happen?  Did someone decide it

was joke material?!  They probably put it right up there with " all in hour

head " or " women's disease " ....or some other thing to make fun of because some

idiots don't understand.

This is good, however.  If you can get enough of the right people together to

take the test.“The Fibromyalgia Clothespin Challenge: Awareness at Your

Fingertipsâ€http://ipentimento.com/i-challenge-you-to-try-this-pain-test/

Lotacats

“I love cats because I enjoy my home; and little by little, they become its

visible soul.â€

Twitter_follow me

http://twitter.com/LotacatsFunPix

Express Chronic Pain Awareness

http://www.cafepress.com/lotacatspix/5815010

Lotacatsfunpix.com

http://www.lotacatsfunpix.com/

Deviantart

http://lotacats05.deviantart.com/

Facebook

http://www.facebook.com/#/profile.php?ref=name & id=1030129414

Subject: (unknown)

To: Hugs-N-Pain

Date: Sunday, June 27, 2010, 11:21 AM

 

hi everbody i hope everbody is haveing a less pain day donnie

[Guest guest]

yes, it is bad, you loose so much, your life, my house is the pits, my marriage

is gone. I am just trying to hold on til I get my disability. but I just don't

know how much longer I can't take it. they say stress makes the fibro worse. my

husband is a complete idiot. to the point now he is accusing me of having a

affair when I got pregnant with our son 28 years ago. and he has even come up

with a daddy. I was working at the hospital and going to nursing school full

time my gosh how on earth did he think I had time for a affair. not to mention

my son looks just like him. he has even as around at his job trying to find this

man and has discussed is fellow workers. he is crazy. I maybe sick but I am not

crazy yet!!!!!!

(unknown)

To: Hugs-N-Pain

Date: Sunday, June 27, 2010, 11:21 AM

hi everbody i hope everbody is haveing a less pain day donnie

[Guest guest]

HELLO MY NAME IS CAROLYN AND I HAVE BEEN TOLD I HAVE FIBRO SINCE 2005

Subject: (unknown)

To: Hugs-N-Pain

Date: Sunday, June 27, 2010, 11:21 AM

hi everbody i hope everbody is haveing a less pain day donnie

[Guest guest]

Has anyone ever used this web store?

www.kap0.uspillsstore-c.com

Subject: (unknown)

To: honeywell.uk@..., Hugs-N-Pain , jamesrhcp@...,

jamesbrewer05@..., angusJH@..., joshuaturley@...,

judynowag@..., littleone_rollen@..., dagumleaf@...,

kaysok@...

Date: Friday, July 2, 2010, 4:20 AM

 

www.kap0.uspillsstore-c.com

[Guest guest]

Sorry, do not know what this is. Please disregard because it did not come from

me.

>

>

> Subject: (unknown)

> To: honeywell.uk@..., Hugs-N-Pain , jamesrhcp@...,

jamesbrewer05@..., angusJH@..., joshuaturley@..., judynowag@...,

littleone_rollen@..., dagumleaf@..., kaysok@...

> Date: Friday, July 2, 2010, 4:20 AM

>

>

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> www.kap0.uspillsstore-c.com

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[Guest guest]

I do not know anything about this store and don't know how it got here so let me

know if you check it out.

>

>

> Subject: (unknown)

> To: honeywell.uk@..., Hugs-N-Pain , jamesrhcp@...,

jamesbrewer05@..., angusJH@..., joshuaturley@..., judynowag@...,

littleone_rollen@..., dagumleaf@..., kaysok@...

> Date: Friday, July 2, 2010, 4:20 AM

>

>

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