Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 Jodi-- You sound in good spirits and pretty upbeat--good for you! It is quite an ordeal, I know from 's side of the bed. Hopefully his age is helping him recover so much quicker--he sounds so cute! and your family remain in my prayers. Laurie update-day four > Hi all, > It's Tuesday a.m. early so this is actually news from yesterday. > > His little brother, A.J. age 8, was with us all day and I think that was > really good for . was in such a good mood. He even got the > giggles when he " gassed " a long loud one that A.J. called " good thunder " and > couldn't stop giggling. It hurt him a little to laugh like that but > not too bad. His last dose of morphine was yesterday morning and he's been > on just Tylenol since then. > > He's on a lot of drugs, all the immunosuppresants, and all the meds to help > with the side effects of those. We had our little educational " class " with > the transplant coordinator yesterday explaining meds for when we leave the > hospital. I'm glad 's been here for these classes, he retains > information SO much better than I do. I have a feeling I'll be referencing > the materials a LOT! > > They are thinking he'll be out of the hospital in the next couple of days. > He's down to just one IV and still has the JP drain (drains excess fluid > from the abdomen). He was up for a walk yesterday and did really well (had > a BM yesterday also which is really good news) > > and I are doing really well also. We've been eating well and sleeping > well (some of you have asked about that) 's been sleeping at the > hospital with and A.J.'s been with me at a friends house. My parents > have been here which has been GREAT! As far as sleep goes.....I'm getting > plenty of sleep but still feel tired most the time. We're very inactive and > possibly a little stressed (ya think?) so I think that contributes to the > tiredness. > > Otherwise, doing well. We should be past the critical stage in the next > week but still have to watch for infection and rejection (always). We've > joked about putting him in a bubble-he'll be SO susceptible to the yuckies > out there. He'll be on immunosuppresants for the rest of his life (you > PSCer's know that) but they hope to get him down eventually (in the next > year or two) to just one med. > > Well, I guess that got a little long, sorry, bear with me. Thank you > all SO much for your thoughts and prayers. > > Love to you all, > Jodi > > - age 10 1/2---Listed 4-00, status 3 > Status up to 2B on 6-28 > Transplanted on 8-10-00 > > " For surely I know the plans I have for you, says the Lord, plans for your > welfare and not for harm, to give you a future with hope. " 29:11 > > > ________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > > > Quote Link to comment Share on other sites More sharing options...
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