Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi, . Sorry to hear you're having such a tough time right now. Did your primary doctor give you anything at all for the RA, like an anti-inflamatory drug? I know primary drs don't usually prescribe dmards, but they should at least give you something to help with the pain and inflammation. April is a long time to wait, especially with no medication at all. If there are no other rheumatologists that you can go to, and the pain continues or even gets worse, maybe your primary doctor can try to escalate the appt with rheumatologist. I had to wait six months for my first appt, but I think if I had had really severe pain during that time, they would have gotten me in sooner. > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi, . Sorry to hear you're having such a tough time right now. Did your primary doctor give you anything at all for the RA, like an anti-inflamatory drug? I know primary drs don't usually prescribe dmards, but they should at least give you something to help with the pain and inflammation. April is a long time to wait, especially with no medication at all. If there are no other rheumatologists that you can go to, and the pain continues or even gets worse, maybe your primary doctor can try to escalate the appt with rheumatologist. I had to wait six months for my first appt, but I think if I had had really severe pain during that time, they would have gotten me in sooner. > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi , welcome to the group. Why can't you get into see a rheumatologist until next April? That seems like such a long time. One thing I can suggest is water exercise. The arthritis foundation has a website and you can find one in your area. Exercise is important in managing RA, although meds are the most important factor. But if you can't get into see the rheumy, water exercises might help. Is there a chance your GP could treat you until you can get into see the rheumy? Here is that site, just enter your zip code on the right side: www.arthritis.org/events/getinvolved/ProgramsServices/default.asp Jennie > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi , welcome to the group. Why can't you get into see a rheumatologist until next April? That seems like such a long time. One thing I can suggest is water exercise. The arthritis foundation has a website and you can find one in your area. Exercise is important in managing RA, although meds are the most important factor. But if you can't get into see the rheumy, water exercises might help. Is there a chance your GP could treat you until you can get into see the rheumy? Here is that site, just enter your zip code on the right side: www.arthritis.org/events/getinvolved/ProgramsServices/default.asp Jennie > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi . Welcome to our group. You've had so much happen in the last 17 years. Hopefully you will get in to see the rheumatologist sooner and he can help you feel better. Did your doctor make the appointment or did you? Many times if the doctor's office makes the appointment, they can get you in sooner or find another doctor that can see you sooner. You should not have to suffer like this waiting to see a doctor. If they can't see you sooner, maybe your GP can treat you. a > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi . Welcome to our group. You've had so much happen in the last 17 years. Hopefully you will get in to see the rheumatologist sooner and he can help you feel better. Did your doctor make the appointment or did you? Many times if the doctor's office makes the appointment, they can get you in sooner or find another doctor that can see you sooner. You should not have to suffer like this waiting to see a doctor. If they can't see you sooner, maybe your GP can treat you. a > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi, My primary doctor had gave me ibuprofen 800 mg, hydrocdone and ambien to help me sleep….that was for the pain and carpal tunnel….before he did the RA test…For my heart I am one 100mg atenolol, .25 alprazolam and a 81 mg aspirin…after the PFO surgery ….they took me off some other meds. I was on. My primary doctor just said he don't know much about RA…I am taking glucosamine 500mg/chondroitin 400mg…..I live 50 miles from the closest water exercise program…I do live 2 miles from a big lake….however with the MVP I can not take the heat….and that is a very busy time of year for us…I can't get away to go….by the time I do have time…. I am too tried to do anything….I have to go 90 miles one way to my cardiologist and neurologist. The rheumatologist is also 90 miles away….My doctor told me to be sure and not miss that appointment ….because it would take a year to get another one. There are only 4 in Springfield MO……I am out in the middle of the boonies …..5 hours from St. Louis, KC and Little Rock…90 miles from Springfield…...However I did check on the site you gave me….and there is a place in Springfield…..Dave's work takes us there on Thursdays (except in the summer, we are too busy)…I think I will check into that……one day a week will be better then none…..I also try to walk slow on the treadmill …not very long or far….10 mins. I got some wrap around weights and put them on my wrist and do a few exercises with my arms….but I am sure I don't have to tell you ….it is very hard to keep on top of it after you had a few bad days….sometimes after that little work out….. my vision will mess up for a short time….the eye doctor told me ….that is the MVP from lack of blood flow…I guess I have a lot to learn about RA and feel I am in the right spot Thanks for the feed back….One always feels better when they know a little about the symptoms they are having…… PS I hope did this right....the reply posting has change since I was last in the MVP Supoort Group... > Hi . Welcome to our group. You've had so much happen in the last 17 > years. Hopefully you will get in to see the rheumatologist sooner and he > can help you feel better. Did your doctor make the appointment or did you? > Many times if the doctor's office makes the appointment, they can get you in > sooner or find another doctor that can see you sooner. You should not have > to suffer like this waiting to see a doctor. If they can't see you sooner, > maybe your GP can treat you. > a > > > > Hi, I am new to this site. However I am not new to pain, meds, and > > doctors. I will make a long 17 years as short as I can. I had a > > heart attack at 29 (1987). After years of Doctors telling me it was > > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > > been having TIA's ….After years of Doctors and them thinking I was > > crazy…listening to much to my body and reacting to every heartbeat… > > every pain….although they had diagnosed, irregular heart beat, (I > > can't think how to spell the diagnosed names for these but you get > > what I mean), too fast heart beat, to slow heart beat….some times it > > would be as low as 40 and sometimes as high as 180….within the same > > hour…and on and on….well, as you would guess my meds started in 87, > > more in 93 and changes in the next 10 years as more TIA's and small > > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > > removed from the side of my neck….it was quite big….as at first my > > Doctor told me not to worry about it….by the time I got to an ENT > > Doctor and got into surgery… it hurt to swallow and turn my > > head…..well….4 hours after the surgery I had an other small stoke > > (this being a little big then the last… I got my smile back after a > > few months…and I thank God everyday)….anyway ….in my stay in the > > hospital and battery of tests….they find PFO….whole in the inter > > wall of my heart…little blood clot going straight to my brain... > > (think that could be why all the bad head aches)…..this being kind > > of a new thing to fix….they send me off to St. Louis…I was his 201 > > PFO…..I had a very hard breathing after that …I had that before it > > just became more of a problem….with all the pain I have been in over > > the years…they assured me it was not CHF…and the patch they put in > > my heart was still place….the muscle has attaching to and growing > > around it nicely and was not leaking….I am looking for answers….as I > > have been since 1993….anyway it keep ring in the back of my head > > ….one of the many Doctors I seen over the years would say maybe you > > have RA…..this being the same Doctor that said we can't tell women > > with MVP that there are crazy anymore! He is not my doctor anymore. > > Anyway finally I got my doctor to run the test …well my RA factor is > > 198…..I can not get in to see a rheumatolist…..until April……my wrist > > hurts so bad sometimes….I already have a lump on the side of > > it….here are the symptoms besides all the pain I been in for > > years….shortness of breathe, carpal tunnel in both hands and pain > > all over my body….in the same spots on both sides….Thanks for the > > out….. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi, My primary doctor had gave me ibuprofen 800 mg, hydrocdone and ambien to help me sleep….that was for the pain and carpal tunnel….before he did the RA test…For my heart I am one 100mg atenolol, .25 alprazolam and a 81 mg aspirin…after the PFO surgery ….they took me off some other meds. I was on. My primary doctor just said he don't know much about RA…I am taking glucosamine 500mg/chondroitin 400mg…..I live 50 miles from the closest water exercise program…I do live 2 miles from a big lake….however with the MVP I can not take the heat….and that is a very busy time of year for us…I can't get away to go….by the time I do have time…. I am too tried to do anything….I have to go 90 miles one way to my cardiologist and neurologist. The rheumatologist is also 90 miles away….My doctor told me to be sure and not miss that appointment ….because it would take a year to get another one. There are only 4 in Springfield MO……I am out in the middle of the boonies …..5 hours from St. Louis, KC and Little Rock…90 miles from Springfield…...However I did check on the site you gave me….and there is a place in Springfield…..Dave's work takes us there on Thursdays (except in the summer, we are too busy)…I think I will check into that……one day a week will be better then none…..I also try to walk slow on the treadmill …not very long or far….10 mins. I got some wrap around weights and put them on my wrist and do a few exercises with my arms….but I am sure I don't have to tell you ….it is very hard to keep on top of it after you had a few bad days….sometimes after that little work out….. my vision will mess up for a short time….the eye doctor told me ….that is the MVP from lack of blood flow…I guess I have a lot to learn about RA and feel I am in the right spot Thanks for the feed back….One always feels better when they know a little about the symptoms they are having…… PS I hope did this right....the reply posting has change since I was last in the MVP Supoort Group... > Hi . Welcome to our group. You've had so much happen in the last 17 > years. Hopefully you will get in to see the rheumatologist sooner and he > can help you feel better. Did your doctor make the appointment or did you? > Many times if the doctor's office makes the appointment, they can get you in > sooner or find another doctor that can see you sooner. You should not have > to suffer like this waiting to see a doctor. If they can't see you sooner, > maybe your GP can treat you. > a > > > > Hi, I am new to this site. However I am not new to pain, meds, and > > doctors. I will make a long 17 years as short as I can. I had a > > heart attack at 29 (1987). After years of Doctors telling me it was > > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > > been having TIA's ….After years of Doctors and them thinking I was > > crazy…listening to much to my body and reacting to every heartbeat… > > every pain….although they had diagnosed, irregular heart beat, (I > > can't think how to spell the diagnosed names for these but you get > > what I mean), too fast heart beat, to slow heart beat….some times it > > would be as low as 40 and sometimes as high as 180….within the same > > hour…and on and on….well, as you would guess my meds started in 87, > > more in 93 and changes in the next 10 years as more TIA's and small > > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > > removed from the side of my neck….it was quite big….as at first my > > Doctor told me not to worry about it….by the time I got to an ENT > > Doctor and got into surgery… it hurt to swallow and turn my > > head…..well….4 hours after the surgery I had an other small stoke > > (this being a little big then the last… I got my smile back after a > > few months…and I thank God everyday)….anyway ….in my stay in the > > hospital and battery of tests….they find PFO….whole in the inter > > wall of my heart…little blood clot going straight to my brain... > > (think that could be why all the bad head aches)…..this being kind > > of a new thing to fix….they send me off to St. Louis…I was his 201 > > PFO…..I had a very hard breathing after that …I had that before it > > just became more of a problem….with all the pain I have been in over > > the years…they assured me it was not CHF…and the patch they put in > > my heart was still place….the muscle has attaching to and growing > > around it nicely and was not leaking….I am looking for answers….as I > > have been since 1993….anyway it keep ring in the back of my head > > ….one of the many Doctors I seen over the years would say maybe you > > have RA…..this being the same Doctor that said we can't tell women > > with MVP that there are crazy anymore! He is not my doctor anymore. > > Anyway finally I got my doctor to run the test …well my RA factor is > > 198…..I can not get in to see a rheumatolist…..until April……my wrist > > hurts so bad sometimes….I already have a lump on the side of > > it….here are the symptoms besides all the pain I been in for > > years….shortness of breathe, carpal tunnel in both hands and pain > > all over my body….in the same spots on both sides….Thanks for the > > out….. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 My primary doctor had gave me ibuprofen 800 mg, hydrocdone and ambien to help me sleep….that was for the pain and carpal tunnel….before he did the RA test…For my heart I am one 100mg atenolol, .25 alprazolam and a 81 mg aspirin…after the PFO surgery ….they took me off some other meds. I was on. My primary doctor just said he don't know much about RA…I am taking glucosamine 500mg/chondroitin 400mg…..I live 50 miles from the closest water exercise program…I do live 2 miles from a big lake….however with the MVP I can not take the heat….and that is a very busy time of year for us…I can't get away to go….by the time I do have time…. I am too tried to do anything….I have to go 90 miles one way to my cardiologist and neurologist. The rheumatologist is also 90 miles away….My doctor told me to be sure and not miss that appointment ….because it would take a year to get another one. There are only 4 in Springfield MO……I am out in the middle of the boonies …..5 hours from St. Louis, KC and Little Rock…90 miles from Springfield…...However I did check on the site you gave me….and there is a place in Springfield…..Dave's work takes us there on Thursdays (except in the summer, we are too busy)…I think I will check into that……one day a week will be better then none…..I also try to walk slow on the treadmill …not very long or far….10 mins. I got some wrap around weights and put them on my wrist and do a few exercises with my arms….but I am sure I don't have to tell you ….it is very hard to keep on top of it after you had a few bad days….sometimes after that little work out….. my vision will mess up for a short time….the eye doctor told me ….that is the MVP from lack of blood flow…I guess I have a lot to learn about RA and feel I am in the right spot Thanks for the feed back….One always feels better when they know a little about the symptoms they are having…… Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 My primary doctor had gave me ibuprofen 800 mg, hydrocdone and ambien to help me sleep….that was for the pain and carpal tunnel….before he did the RA test…For my heart I am one 100mg atenolol, .25 alprazolam and a 81 mg aspirin…after the PFO surgery ….they took me off some other meds. I was on. My primary doctor just said he don't know much about RA…I am taking glucosamine 500mg/chondroitin 400mg…..I live 50 miles from the closest water exercise program…I do live 2 miles from a big lake….however with the MVP I can not take the heat….and that is a very busy time of year for us…I can't get away to go….by the time I do have time…. I am too tried to do anything….I have to go 90 miles one way to my cardiologist and neurologist. The rheumatologist is also 90 miles away….My doctor told me to be sure and not miss that appointment ….because it would take a year to get another one. There are only 4 in Springfield MO……I am out in the middle of the boonies …..5 hours from St. Louis, KC and Little Rock…90 miles from Springfield…...However I did check on the site you gave me….and there is a place in Springfield…..Dave's work takes us there on Thursdays (except in the summer, we are too busy)…I think I will check into that……one day a week will be better then none…..I also try to walk slow on the treadmill …not very long or far….10 mins. I got some wrap around weights and put them on my wrist and do a few exercises with my arms….but I am sure I don't have to tell you ….it is very hard to keep on top of it after you had a few bad days….sometimes after that little work out….. my vision will mess up for a short time….the eye doctor told me ….that is the MVP from lack of blood flow…I guess I have a lot to learn about RA and feel I am in the right spot Thanks for the feed back….One always feels better when they know a little about the symptoms they are having…… Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi , I would like to welcome you to the group. I'm sorry to hear about all your problems, you have had your share, and then some. So, you can't get in to see the rheumy until April 2005?? Is there anyway to find another one, that is a long way off, too long! Please, try to find another one in your area. Maybe someone can help you find one here in our group, we have so many members from everywhere. Where are you from, if I may ask? I will keep you in my prayers, and hope we can all be of help, and much needed support for you, tawny > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Hi , I would like to welcome you to the group. I'm sorry to hear about all your problems, you have had your share, and then some. So, you can't get in to see the rheumy until April 2005?? Is there anyway to find another one, that is a long way off, too long! Please, try to find another one in your area. Maybe someone can help you find one here in our group, we have so many members from everywhere. Where are you from, if I may ask? I will keep you in my prayers, and hope we can all be of help, and much needed support for you, tawny > Hi, I am new to this site. However I am not new to pain, meds, and > doctors. I will make a long 17 years as short as I can. I had a > heart attack at 29 (1987). After years of Doctors telling me it was > anxiety …. in 1993 they found I have Mitral Valve Prolapse and have > been having TIA's ….After years of Doctors and them thinking I was > crazy…listening to much to my body and reacting to every heartbeat… > every pain….although they had diagnosed, irregular heart beat, (I > can't think how to spell the diagnosed names for these but you get > what I mean), too fast heart beat, to slow heart beat….some times it > would be as low as 40 and sometimes as high as 180….within the same > hour…and on and on….well, as you would guess my meds started in 87, > more in 93 and changes in the next 10 years as more TIA's and small > stoke. In 2003 (a year ago last month) I had surgery …. a cysts > removed from the side of my neck….it was quite big….as at first my > Doctor told me not to worry about it….by the time I got to an ENT > Doctor and got into surgery… it hurt to swallow and turn my > head…..well….4 hours after the surgery I had an other small stoke > (this being a little big then the last… I got my smile back after a > few months…and I thank God everyday)….anyway ….in my stay in the > hospital and battery of tests….they find PFO….whole in the inter > wall of my heart…little blood clot going straight to my brain... > (think that could be why all the bad head aches)…..this being kind > of a new thing to fix….they send me off to St. Louis…I was his 201 > PFO…..I had a very hard breathing after that …I had that before it > just became more of a problem….with all the pain I have been in over > the years…they assured me it was not CHF…and the patch they put in > my heart was still place….the muscle has attaching to and growing > around it nicely and was not leaking….I am looking for answers….as I > have been since 1993….anyway it keep ring in the back of my head > ….one of the many Doctors I seen over the years would say maybe you > have RA…..this being the same Doctor that said we can't tell women > with MVP that there are crazy anymore! He is not my doctor anymore. > Anyway finally I got my doctor to run the test …well my RA factor is > 198…..I can not get in to see a rheumatolist…..until April……my wrist > hurts so bad sometimes….I already have a lump on the side of > it….here are the symptoms besides all the pain I been in for > years….shortness of breathe, carpal tunnel in both hands and pain > all over my body….in the same spots on both sides….Thanks for the > out….. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.