Re: was Swelling-? about Remicade

[Guest guest]

What made you quit taking the Remicade? I had two

doses of it. I was no better after the first which my

Rheumatologist's nurse said was unusual. After the

second dose, I felt like I was in a flare up of my

arthritis. The rheumatologist said there was no way it

was related to the Remicade. I refused anymore though.

I cannot see paying that much money for no benefit.

Kim

--- Latisha Vallone <latishavallone@...> wrote:

> Hi ,

> As for your question about swelling:I felt pain in

> my hands 4 years ago and told I was fine. 8 months

> ago was told I did have RA. I have been on Remicade

> for 5 months and just quit it. Been on MTX for a

> month and last weekend for the first time I had the

> fat swollen joints,with red and black and blue with

> sharp stabbing pain. At first I thought I had hit my

> hand on something and bruised it but by the end of

> the day my other fingers were the same and I couldnt

> bend my hands to a fist.It was so painful to just

> lightly touch my knuckles. I have had some bad pain

> before but not the swollen joints that you could

> see. My MRI showed significant damage my rhuemy said

> but my blood work shows low inflammation??? Its so

> hard to know and our bodies are so different. So I

> think I have had RA for at least 5 years and now on

> meds I feel way worse symtoms or it could also be

> that the RA has taken its time till now and just by

> chance has hit full force after all this time. I

> sure hope the

> swelling stays away for a while. Hope this helps.

> Take care Latisha

>

=====

Kim Meyers

AVON Independent Sales Rep

www.youravon.com/kimberlymeyers

__________________________________________________

[Guest guest]

What made you quit taking the Remicade? I had two

doses of it. I was no better after the first which my

Rheumatologist's nurse said was unusual. After the

second dose, I felt like I was in a flare up of my

arthritis. The rheumatologist said there was no way it

was related to the Remicade. I refused anymore though.

I cannot see paying that much money for no benefit.

Kim

--- Latisha Vallone <latishavallone@...> wrote:

> Hi ,

> As for your question about swelling:I felt pain in

> my hands 4 years ago and told I was fine. 8 months

> ago was told I did have RA. I have been on Remicade

> for 5 months and just quit it. Been on MTX for a

> month and last weekend for the first time I had the

> fat swollen joints,with red and black and blue with

> sharp stabbing pain. At first I thought I had hit my

> hand on something and bruised it but by the end of

> the day my other fingers were the same and I couldnt

> bend my hands to a fist.It was so painful to just

> lightly touch my knuckles. I have had some bad pain

> before but not the swollen joints that you could

> see. My MRI showed significant damage my rhuemy said

> but my blood work shows low inflammation??? Its so

> hard to know and our bodies are so different. So I

> think I have had RA for at least 5 years and now on

> meds I feel way worse symtoms or it could also be

> that the RA has taken its time till now and just by

> chance has hit full force after all this time. I

> sure hope the

> swelling stays away for a while. Hope this helps.

> Take care Latisha

>

=====

Kim Meyers

AVON Independent Sales Rep

www.youravon.com/kimberlymeyers

__________________________________________________

[Guest guest]

Why did I quit Remicade? After each dose I flet so badly like I have a horrible

flu. We lived in Calif. and west nile just recently hit there. We just moved to

Missouri so I was concerned about west nile and heard how others qould quit

their biologics until an infection would be gone. Well remicade is hard to quit

especially if you just got your infusion and got sick or got the flu. I asked my

new rhuemy to switch me to enbrel. He said since I just started taking the MTX a

month ago he wanted to double my dose and have me start the plaquinel and see if

that does it. If not in 6 months then we can start the enbrel. I dont think the

remicade helped me at all. So to feel horrible for a week and flu like on top of

the arthritis was too much. Thats the story. I didnt have any swelling. My new

rheumy said that he did have a patient who it took 2 years of remicade to start

working and then had patients who took 4 months. It is really costly if you dont

have a good insurance. What are you

taking now if you dont mind me asking? Latisha

Kim Meyers <momscommunity@...> wrote:What made you quit taking the

Remicade? I had two

doses of it. I was no better after the first which my

Rheumatologist's nurse said was unusual. After the

second dose, I felt like I was in a flare up of my

arthritis. The rheumatologist said there was no way it

was related to the Remicade. I refused anymore though.

I cannot see paying that much money for no benefit.

Kim

--- Latisha Vallone <latishavallone@...> wrote:

> Hi ,

> As for your question about swelling:I felt pain in

> my hands 4 years ago and told I was fine. 8 months

> ago was told I did have RA. I have been on Remicade

> for 5 months and just quit it. Been on MTX for a

> month and last weekend for the first time I had the

> fat swollen joints,with red and black and blue with

> sharp stabbing pain. At first I thought I had hit my

> hand on something and bruised it but by the end of

> the day my other fingers were the same and I couldnt

> bend my hands to a fist.It was so painful to just

> lightly touch my knuckles. I have had some bad pain

> before but not the swollen joints that you could

> see. My MRI showed significant damage my rhuemy said

> but my blood work shows low inflammation??? Its so

> hard to know and our bodies are so different. So I

> think I have had RA for at least 5 years and now on

> meds I feel way worse symtoms or it could also be

> that the RA has taken its time till now and just by

> chance has hit full force after all this time. I

> sure hope the

> swelling stays away for a while. Hope this helps.

> Take care Latisha

>

=====

Kim Meyers

AVON Independent Sales Rep

www.youravon.com/kimberlymeyers

__________________________________________________

[Guest guest]

Why did I quit Remicade? After each dose I flet so badly like I have a horrible

flu. We lived in Calif. and west nile just recently hit there. We just moved to

Missouri so I was concerned about west nile and heard how others qould quit

their biologics until an infection would be gone. Well remicade is hard to quit

especially if you just got your infusion and got sick or got the flu. I asked my

new rhuemy to switch me to enbrel. He said since I just started taking the MTX a

month ago he wanted to double my dose and have me start the plaquinel and see if

that does it. If not in 6 months then we can start the enbrel. I dont think the

remicade helped me at all. So to feel horrible for a week and flu like on top of

the arthritis was too much. Thats the story. I didnt have any swelling. My new

rheumy said that he did have a patient who it took 2 years of remicade to start

working and then had patients who took 4 months. It is really costly if you dont

have a good insurance. What are you

taking now if you dont mind me asking? Latisha

Kim Meyers <momscommunity@...> wrote:What made you quit taking the

Remicade? I had two

doses of it. I was no better after the first which my

Rheumatologist's nurse said was unusual. After the

second dose, I felt like I was in a flare up of my

arthritis. The rheumatologist said there was no way it

was related to the Remicade. I refused anymore though.

I cannot see paying that much money for no benefit.

Kim

--- Latisha Vallone <latishavallone@...> wrote:

> Hi ,

> As for your question about swelling:I felt pain in

> my hands 4 years ago and told I was fine. 8 months

> ago was told I did have RA. I have been on Remicade

> for 5 months and just quit it. Been on MTX for a

> month and last weekend for the first time I had the

> fat swollen joints,with red and black and blue with

> sharp stabbing pain. At first I thought I had hit my

> hand on something and bruised it but by the end of

> the day my other fingers were the same and I couldnt

> bend my hands to a fist.It was so painful to just

> lightly touch my knuckles. I have had some bad pain

> before but not the swollen joints that you could

> see. My MRI showed significant damage my rhuemy said

> but my blood work shows low inflammation??? Its so

> hard to know and our bodies are so different. So I

> think I have had RA for at least 5 years and now on

> meds I feel way worse symtoms or it could also be

> that the RA has taken its time till now and just by

> chance has hit full force after all this time. I

> sure hope the

> swelling stays away for a while. Hope this helps.

> Take care Latisha

>

=====

Kim Meyers

AVON Independent Sales Rep

www.youravon.com/kimberlymeyers

__________________________________________________

[Guest guest]

Hi Jeannie,

I only had a couple injections of Humira. I feel it

is the most promising. Cost is my biggest concern, as

my insurance only pays 75-80% and this was extremely

difficult financially. I did not want to double my out

of pocket cost by increasing the frequency.

My rheumatologist's nurse told me that almost

everyone he has given Remicade to has significant

improvement after the first dose. From your experience

you do not believe this to be true?

I am thinking about going to a Naturopath and

seeing what they can offer. Has anyone had any

experience with treatment from a Naturopath?

Kim

--- Jennie G <xponder70@...> wrote:

>

> Kim,

>

> How long were you on Humira? I take it every two

> weeks and had good

> results from the start, although sometimes feel more

> fatigue the

> last three days before the next injection. I'm

> curious since you

> only had 2 injections of Remicade, how long you

> tried Humira. All

> three of these can take months to show results. I

> think it needs

> time to get into your system for most people. And

> some have had the

> experience you did where Humira worked but didn't

> last until the

> next injection. Often times those individuals are

> given permission

> to use weekly dosing of Humira. Did your rheumy

> suggest that?

>

> Jennie

>

>

> >

> > > Why did I quit Remicade? After each dose I flet

> so

> > > badly like I have a horrible flu. We lived in

> Calif.

> > > and west nile just recently hit there. We just

> moved

> > > to Missouri so I was concerned about west nile

> and

> > > heard how others qould quit their biologics

> until an

> > > infection would be gone. Well remicade is hard

> to

> > > quit especially if you just got your infusion

> and

> > > got sick or got the flu. I asked my new rhuemy

> to

> > > switch me to enbrel. He said since I just

> started

> > > taking the MTX a month ago he wanted to double

> my

> > > dose and have me start the plaquinel and see if

> that

> > > does it. If not in 6 months then we can start

> the

> > > enbrel. I dont think the remicade helped me at

> all.

> > > So to feel horrible for a week and flu like on

> top

> > > of the arthritis was too much. Thats the story.

> I

> > > didnt have any swelling. My new rheumy said that

> he

> > > did have a patient who it took 2 years of

> remicade

> > > to start working and then had patients who took

> 4

> > > months. It is really costly if you dont have a

> good

> > > insurance. What are you

> > > taking now if you dont mind me asking? Latisha

> >

> >

> >

> >

> > =====

> > Kim Meyers

> > AVON Independent Sales Rep

> > www.youravon.com/kimberlymeyers

> >

> >

> >

> > _______________________________

> > Do you ?

> > Declare Yourself - Register online to vote today!

> > http://vote.

>

>

>

>

=====

Kim Meyers

AVON Independent Sales Rep

www.youravon.com/kimberlymeyers

__________________________________________________

[Guest guest]

Hi Jeannie,

I only had a couple injections of Humira. I feel it

is the most promising. Cost is my biggest concern, as

my insurance only pays 75-80% and this was extremely

difficult financially. I did not want to double my out

of pocket cost by increasing the frequency.

My rheumatologist's nurse told me that almost

everyone he has given Remicade to has significant

improvement after the first dose. From your experience

you do not believe this to be true?

I am thinking about going to a Naturopath and

seeing what they can offer. Has anyone had any

experience with treatment from a Naturopath?

Kim

--- Jennie G <xponder70@...> wrote:

>

> Kim,

>

> How long were you on Humira? I take it every two

> weeks and had good

> results from the start, although sometimes feel more

> fatigue the

> last three days before the next injection. I'm

> curious since you

> only had 2 injections of Remicade, how long you

> tried Humira. All

> three of these can take months to show results. I

> think it needs

> time to get into your system for most people. And

> some have had the

> experience you did where Humira worked but didn't

> last until the

> next injection. Often times those individuals are

> given permission

> to use weekly dosing of Humira. Did your rheumy

> suggest that?

>

> Jennie

>

>

> >

> > > Why did I quit Remicade? After each dose I flet

> so

> > > badly like I have a horrible flu. We lived in

> Calif.

> > > and west nile just recently hit there. We just

> moved

> > > to Missouri so I was concerned about west nile

> and

> > > heard how others qould quit their biologics

> until an

> > > infection would be gone. Well remicade is hard

> to

> > > quit especially if you just got your infusion

> and

> > > got sick or got the flu. I asked my new rhuemy

> to

> > > switch me to enbrel. He said since I just

> started

> > > taking the MTX a month ago he wanted to double

> my

> > > dose and have me start the plaquinel and see if

> that

> > > does it. If not in 6 months then we can start

> the

> > > enbrel. I dont think the remicade helped me at

> all.

> > > So to feel horrible for a week and flu like on

> top

> > > of the arthritis was too much. Thats the story.

> I

> > > didnt have any swelling. My new rheumy said that

> he

> > > did have a patient who it took 2 years of

> remicade

> > > to start working and then had patients who took

> 4

> > > months. It is really costly if you dont have a

> good

> > > insurance. What are you

> > > taking now if you dont mind me asking? Latisha

> >

> >

> >

> >

> > =====

> > Kim Meyers

> > AVON Independent Sales Rep

> > www.youravon.com/kimberlymeyers

> >

> >

> >

> > _______________________________

> > Do you ?

> > Declare Yourself - Register online to vote today!

> > http://vote.

>

>

>

>

=====

Kim Meyers

AVON Independent Sales Rep

www.youravon.com/kimberlymeyers

__________________________________________________

[Guest guest]

As far as Remicade goes, my first dose really did nothing for me but make me

sleepy. The second dose did have a huge effect. I think like with so many of

these drugs, every person reacts differently. Cary

[Guest guest]

As far as Remicade goes, my first dose really did nothing for me but make me

sleepy. The second dose did have a huge effect. I think like with so many of

these drugs, every person reacts differently. Cary

[Guest guest]

I have been on Remicade for 2 1/2 years now and I only think it is

working when I get sleepy. Unless that happens, I have a 2 month

period of lots of achiness. When I get so tired afterwards, I do

good during that 2 month period. Why months are different I do not

know. I do know that my Doctor has increased my Remicade dose to

one of the highest that can be given.

I have worse times when there is a lot of pressure systems in the WX

going through our area. I am afraid to stop taking remicade because

I think it will forestall any deformity to my bones and muscles

happening. At least I hope so.

I do swell up during the 2 month period and lately my ankles have

been swelling terribly at night. My hands swell throughout the day

but it has started happening with my feet. I feel like I am walking

on sharp little rocks. I bought the gel inserts from Dr Shol and

they help some but not enough. I am going to talk to my RA on the

18th about this.

God bless,

Althea

> As far as Remicade goes, my first dose really did nothing for me

but make me sleepy. The second dose did have a huge effect. I

think like with so many of these drugs, every person reacts

differently. Cary

[Guest guest]

I have been on Remicade for 2 1/2 years now and I only think it is

working when I get sleepy. Unless that happens, I have a 2 month

period of lots of achiness. When I get so tired afterwards, I do

good during that 2 month period. Why months are different I do not

know. I do know that my Doctor has increased my Remicade dose to

one of the highest that can be given.

I have worse times when there is a lot of pressure systems in the WX

going through our area. I am afraid to stop taking remicade because

I think it will forestall any deformity to my bones and muscles

happening. At least I hope so.

I do swell up during the 2 month period and lately my ankles have

been swelling terribly at night. My hands swell throughout the day

but it has started happening with my feet. I feel like I am walking

on sharp little rocks. I bought the gel inserts from Dr Shol and

they help some but not enough. I am going to talk to my RA on the

18th about this.

God bless,

Althea

> As far as Remicade goes, my first dose really did nothing for me

but make me sleepy. The second dose did have a huge effect. I

think like with so many of these drugs, every person reacts

differently. Cary