Guest guest Posted September 11, 1999 Report Share Posted September 11, 1999 Hi all I'd sent this to another list I'm on for Lichen Sclerosis, and had quite a few of the gals post and ask if I might put it on the Vulvar disorders list, so sorry if you've seen it before. And HEIDI, if you care to add or make comment PLEASE do so, this is my opinion from what I've read, but feel free to make suggestions or comments. Hope it helps , Warmest Regards, Dee~ ----- Original Message ----- <Hi, HOPE THIS HELPS EXPLAIN... I see what you mean and why some confusion. If I may try to explain, from MY understanding about Vulvodynia: (She was Confused about ANY type of Vulvar pain and vuvlodynia especially near the menses.) Vulvadynia is from the Greek , vulva is obvious and dynia (means pain) so yes, technically you could say you have Vulvodynia several days out of the month. (she had slight flare ups with her period) BUT...... General usage is meant to cover a broad base in its application AND a longer term: There are basically 4 types of vulvodynia, 1. VULVAR VESTIBULITIS, = inflammation around the vestibule, or opening to the vagina. Having sensations of burning, dry, raw, or tight skin, and may range from mild to severe pain, usually caused by external touch, intercourse, tampons, tight pants, etc. Some only have pain on intercourse, others are uncomfortable on a daily basis, Some can tolerate intercourse, but with some degree of discomfort. With severe or prolonged pain one may develop Vaginismus, a spasm of the pelvic floor muscles. (biofeedback may help vaginismus) 2. DYESTHETIC VULVODYNIA = Vulvar pain caused by irritated or inflamed nerves, pain may be in the labia, or extend beyond the vulva to the anus or groin or even down the inner thighs. Some women experience sharp pains for deep aching. There may or may not be visible skin irritation but sensations of irritation or burning, not related to touch or pressure. (perhaps the antidepressants (TRI-cyclics) would help with this) 3. CYCLIC VULVOVAGINITIS = The yeast Candida normally inhabits the mouth, vagina, intestinal tract, and skin. If it overgrows in the vagina or on the vulva, it can cause itching, burning, inflammation, and swelling. Skin may tear or split. various theories have suggested an allergy to yeast or fermented products, immune suppression, or some type of autoimmune response. Symptoms may flare around the time of menses (hence, 'cyclic') Anti yeast programs and medications could help this situation, and rebuilding of the tissue if destroyed, with Estradiol beta 17 and Tesosterone possibly. 4. VULVAR OR MUCOUS DERMATOSES = Skin disorders which occur on the vulva's membranes may cause chronic itching and burning. Its especially **important to rule out overuse of medications, (especially TOPICAL STEROIDS) or infectious causes, (such as Herpes, HPV (warts), or allergic reactions.) (Biopsies may be necessary). This catagory includes several skin eruptions characterized by the term 'LICHEN', which merely describes a tough, scaly, or peeling cigarette paper type of appearance, and there may be fusion of the labial lips. The most common is LICHEN SIMPLEX, but LICHEN SCLEROSIS and LICHEN PLANUS are two other skin problems which affect the vulva, (by the way, it can also affect mens' penis's too.) May use steroids for pain relief short term and use Estradiol beta 17 and testosterone to rebuild tissue. (use of Estradiol recommended to un-fuse labial lips) *** personal**** it did un-fuse mine!! END.. As you can see, all these catagories fall under the umbrella heading of Vulvodynia, and ALL have pain involved. Geesh, sorry this went on so long, and I thought I'd try to shorten it but couldn't. I learned most of this from an article I saved a long time ago, but have no idea where it was from. My apologies. Anyway, hope it helps explain some. Just a note, hope you're not using 'ALWAYS' pads, from what I've read they are one of the notorious ones to cause us irritation, if anyone didn't know that. Take care, love you all, Warmest, Dee~> Quote Link to comment Share on other sites More sharing options...
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