Re: URSO

[Guest guest]

I have no problem with my actigall (same as URSO) prescriptions or any

other I have for PSC. I don't take it at the higher dose, but I'd be

surprised if your insurance company will even look at the dosage in order

to deny your claim.

Russ

>Well, I am going to take the Urso plunge. I have yet to take any (I was

>diagnosed this past summer) because my doctor said it doesnt make a long term

>difference. But I am really feeling hopeful about these rumours people in the

>group have been disseminating about Chapman's results. I mentioned this to my

>doctor, and he seemed skeptical but he also seemed willing to prescribe the

>high dose for me.

>Does anyone have any idea what the insurance companies' approach is to

>reimbursement for: (a) Urso in general; ( the new high dose of Urso ??

>I am kind of anticipating a fight. I guess I or my doctor will have to write

>to the insurance company to make the argument. Has anyone had experience with

>this?

>Erwin P.

>

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>

[Guest guest]

Group--

I know that this is kind of a controversial topic. I have a good health plan,

and I had the ability to take 1.2 grams of urso a day for the last 8 weeks. I

just had LFTs drawn last week and all LFTs except Alk Phos were in spec. Last

time I had blood drawn, bilirubin was slightly high out of spec (1.4). Now it

is in spec. Does LFT levels mean anything? The Medical community is unsure.

From the system engineering perspective they have to mean something. Note

that this is strictly ANECDOTAL since it just involves little old me and for

only eight weeks. I know I owe the group my complete PSC history and bio. I

will try to get to it this weekend.

Jon

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