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Lynn:

Fortunately for me I have never had problems with nausea. I make sure

and take my prednisone with breakfast and I put the 5mg tablets in gelatin

capsules to protect my stomach as much as possible. I get the gelatin

capsules at the drugstore over the counter. My transplant nurse at OSU

started putting the pred in the capsule. I have heard to many horror

stories about prednisone and its impact on the digestive system to take it

bare. I also stay away from spicy foods. Although, I did this before the

transplant as well. Sorry to go on and on and on.

Tom

PSC LT 1995

Kettering, Ohio

Nausea

>Tom.....some times I feel as though Mike is in a catch 22 situation. It

>seems that all the meds he's taking cause nausea. Therefore he doesn't eat

>properly...and sometimes getting him to eat is like having a tooth pulled.

>How did you deal with the nausea? I'd appreciate your help on this.

>

>Lynn

>

>

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Hi Tom!

I don't believe I have seen your posts or it didn't sink in that you

live in Kettering!

My son and daughter-in-law live in (this is horrible, I cannot think of

the town in which they live in Dayton), but I know that it is in the area of

Kettering!

Love the Dorothy Lane Market!!!

I just like Dayton a lot!

Will give you more info when I think of it! This is just awful!

Oh well.

Hugs,

Biddy

Nausea

>

>

>>Tom.....some times I feel as though Mike is in a catch 22 situation. It

>>seems that all the meds he's taking cause nausea. Therefore he doesn't eat

>>properly...and sometimes getting him to eat is like having a tooth pulled.

>>How did you deal with the nausea? I'd appreciate your help on this.

>>

>>Lynn

>>

>>

>>------------------------------------------------------------------------

>>SCHOOL… Six classes each day. Hundreds of chances to pass mash notes.

>>Back-to-School with Talk City. Chat, games, fashion, prizes.

>>Check out http://clickhere./click/901

>>

>>

>>

>>eGroups.com home: /group/

>> - Simplifying group communications

>>

>>

>>

>>

>>

>

>

>

>

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Lynn,

I just got my Actigall script changed to Urso....Now I have fewer bouts of

nausea and no diahrrea. Actigall and Urso are supposed to be the same stuff,

but my system sure tolerates the Urso better. Does Mike take Actigall? If

so, he might ask his doc to try him on Urso and see if the nausea decreases.

Vizas wrote:

> Tom.....some times I feel as though Mike is in a catch 22 situation. It

> seems that all the meds he's taking cause nausea. Therefore he doesn't eat

> properly...and sometimes getting him to eat is like having a tooth pulled.

> How did you deal with the nausea? I'd appreciate your help on this.

>

> Lynn

>

> ------------------------------------------------------------------------

> SCHOOL… Six classes each day. Hundreds of chances to pass mash notes.

> Back-to-School with Talk City. Chat, games, fashion, prizes.

> Check out http://clickhere./click/901

>

> eGroups.com home: /group/

> - Simplifying group communications

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Speaking of nausea. I suffer from incredible nausea and usually have

trouble after any sort of fatty meals. Anyone else?

>From: WYBEAR21@...

>Reply-To: egroups

>To: egroups

>Subject: Re: controversial message about e-mail content

>Date: Sat, 25 Sep 1999 23:39:47 EDT

>

>Jonathon,

> The only thing is... sometimes the " me too's " help the entire group

>learn about possible side effects of medications, or possible symptoms that

>our doctors may disregard. If nausea for example, was a rare symptom, and

>everyone was posting " well, I have this also " , then it would let the group

>know that YES it does happen. I must admit, that I did take the suggestion

>of changing the group personally. Mainly because I created the group, and

>felt responsible for the problems occuring in it. I'm not blaming it on

>anyone at all, sometimes I'm just a tad bit too emotional. But I do want

>to

>thank everyone for giving their suggestions, and opinions to make this a

>better support group. God bless you all!

>Love,

>

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

______________________________________________________

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Oh yes! My nausea comes and goes but I find a fatty meal definatly makes it

worse.

It is nice to see others are going through the same symptoms. It doesn't take

them away but when the doctors tells us we shouldn't feel this way... I have

a responce now and the doctor doesn't know what to say when I say " don't you

think you should be writing down how I feel instead of telling me how I

should feel " ?

We need to take note of how we are all feeling and TELL THE DOCTORS so that

they will stop telling us how we " should " feel.

Sorry for ranting = )

Love ya all,

Vicki 38 dx PSC 6/99 Ohio

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Jayme,

I think many of us have struggled with nausea. Mine seems to be much, much

better since I have gone " low fat " (just can't tolerate fatty meals at all these

days), and since I changed from Actigall to Urso. I think Actigall was making

me very nauseous and also giving me a lot of diahrrea.

in NH

wayne bryan wrote:

> Speaking of nausea. I suffer from incredible nausea and usually have

> trouble after any sort of fatty meals. Anyone else?

>

>

> >From: WYBEAR21@...

> >Reply-To: egroups

> >To: egroups

> >Subject: Re: controversial message about e-mail content

> >Date: Sat, 25 Sep 1999 23:39:47 EDT

> >

> >Jonathon,

> > The only thing is... sometimes the " me too's " help the entire group

> >learn about possible side effects of medications, or possible symptoms that

> >our doctors may disregard. If nausea for example, was a rare symptom, and

> >everyone was posting " well, I have this also " , then it would let the group

> >know that YES it does happen. I must admit, that I did take the suggestion

> >of changing the group personally. Mainly because I created the group, and

> >felt responsible for the problems occuring in it. I'm not blaming it on

> >anyone at all, sometimes I'm just a tad bit too emotional. But I do want

> >to

> >thank everyone for giving their suggestions, and opinions to make this a

> >better support group. God bless you all!

> >Love,

> >

> >

> >------------------------------------------------------------------------

> >

> >eGroups.com home: /group/

> > - Simplifying group communications

> >

> >

> >

> >

>

> ______________________________________________________

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

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,

Nausea is the hardest symptom for me to handle, I absolutely hate it!

Phenergan worked really well for it, but it made me too drowsy. Compezine is

pretty good, and the best one I have had so far is Zofran, but if you don't

have good prescription coverage, you may want to skip this because it's very

expensive. I try to stay away from fatty foods though. Do you still have

your gallbladder? Before I had my gallbladder taken out, I had a REAL

problem with foods higher in fat. On days that I am really nauseated, I try

to just eat frequent small meals, or just eating bread or saltines seems to

help a little. Hope this helps!

Love,

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,

One of the first things the doctors told Phil is to cut down his fat content.

He hasn't had the nausea problem (except when they gave him chicken broth in the

hospital). You might feel a lot better if you reeeally cut down your fat

intake. I know that others have the nausea problem and I don't know if theirs

relate to fatty meals or just the medication.

Peg

wayne bryan wrote:

> Speaking of nausea. I suffer from incredible nausea and usually have

> trouble after any sort of fatty meals. Anyone else?

>

>

> >From: WYBEAR21@...

> >Reply-To: egroups

> >To: egroups

> >Subject: Re: controversial message about e-mail content

> >Date: Sat, 25 Sep 1999 23:39:47 EDT

> >

> >Jonathon,

> > The only thing is... sometimes the " me too's " help the entire group

> >learn about possible side effects of medications, or possible symptoms that

> >our doctors may disregard. If nausea for example, was a rare symptom, and

> >everyone was posting " well, I have this also " , then it would let the group

> >know that YES it does happen. I must admit, that I did take the suggestion

> >of changing the group personally. Mainly because I created the group, and

> >felt responsible for the problems occuring in it. I'm not blaming it on

> >anyone at all, sometimes I'm just a tad bit too emotional. But I do want

> >to

> >thank everyone for giving their suggestions, and opinions to make this a

> >better support group. God bless you all!

> >Love,

> >

> >

> >------------------------------------------------------------------------

> >

> >eGroups.com home: /group/

> > - Simplifying group communications

> >

> >

> >

> >

>

> ______________________________________________________

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

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,

I experienced that occasionally too. A reasonable explanation is

the lack of bile to help digest the fats.

Tim

--- wayne bryan wrote:

> Speaking of nausea. I suffer from incredible nausea and

> usually have

> trouble after any sort of fatty meals. Anyone else?

__________________________________________________

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Hear! Hear! Vickie!!

Great idea!

Hugs,

Biddy

Re: nausea

>Oh yes! My nausea comes and goes but I find a fatty meal definatly makes it

>worse.

>It is nice to see others are going through the same symptoms. It doesn't

take

>them away but when the doctors tells us we shouldn't feel this way... I

have

>a responce now and the doctor doesn't know what to say when I say " don't

you

>think you should be writing down how I feel instead of telling me how I

>should feel " ?

>We need to take note of how we are all feeling and TELL THE DOCTORS so that

>they will stop telling us how we " should " feel.

>Sorry for ranting = )

>Love ya all,

>Vicki 38 dx PSC 6/99 Ohio

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

>

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Hi ,

I have been on 1500mg of Actigall for a year now. I haven't noticed any

problems. However after I had my stent placed I have had diarrhea. It was

removed 2 weeks ago and I still have the cramping and diarrhea. One of my

doctors had me send a stool sample to see if I contacted C-Dif while in the

hospital due to the antibiotics I had prior to the ERCP. If it's not that

though I they are talking about doing a colonoscopy to see if I am starting

with colitis. I have never had any intestinal problems before. I have to do

something though. I have lost 13 pounds in a month.

>

>Reply-To: egroups

>To: egroups

>Subject: Re: nausea

>Date: Sun, 26 Sep 1999 18:06:48 -0400

>

>Jayme,

>I think many of us have struggled with nausea. Mine seems to be much, much

>better since I have gone " low fat " (just can't tolerate fatty meals at all

>these

>days), and since I changed from Actigall to Urso. I think Actigall was

>making

>me very nauseous and also giving me a lot of diahrrea.

>

> in NH

>

>wayne bryan wrote:

>

> > Speaking of nausea. I suffer from incredible nausea and usually have

> > trouble after any sort of fatty meals. Anyone else?

> >

> >

> > >From: WYBEAR21@...

> > >Reply-To: egroups

> > >To: egroups

> > >Subject: Re: controversial message about e-mail content

> > >Date: Sat, 25 Sep 1999 23:39:47 EDT

> > >

> > >Jonathon,

> > > The only thing is... sometimes the " me too's " help the entire

>group

> > >learn about possible side effects of medications, or possible symptoms

>that

> > >our doctors may disregard. If nausea for example, was a rare symptom,

>and

> > >everyone was posting " well, I have this also " , then it would let the

>group

> > >know that YES it does happen. I must admit, that I did take the

>suggestion

> > >of changing the group personally. Mainly because I created the group,

>and

> > >felt responsible for the problems occuring in it. I'm not blaming it

>on

> > >anyone at all, sometimes I'm just a tad bit too emotional. But I do

>want

> > >to

> > >thank everyone for giving their suggestions, and opinions to make this

>a

> > >better support group. God bless you all!

> > >Love,

> > >

> > >

> >

> >------------------------------------------------------------------------

> > >

> > >eGroups.com home: /group/

> > > - Simplifying group communications

> > >

> > >

> > >

> > >

> >

> > ______________________________________________________

> >

> > ------------------------------------------------------------------------

> >

> > eGroups.com home: /group/

> > - Simplifying group communications

>

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

______________________________________________________

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It does make me feel better knowing that so many others suffer from the

nausea. I was starting to wonder if maybe I had another problem with my

stomach. I can't wait to fill my doctor in about the nausea, back pain,

etc. that many others have.

>From: Sleepy5916@...

>Reply-To: egroups

>To: egroups

>Subject: Re: nausea

>Date: Sun, 26 Sep 1999 20:21:18 EDT

>

>Oh yes! My nausea comes and goes but I find a fatty meal definatly makes it

>worse.

>It is nice to see others are going through the same symptoms. It doesn't

>take

>them away but when the doctors tells us we shouldn't feel this way... I

>have

>a responce now and the doctor doesn't know what to say when I say " don't

>you

>think you should be writing down how I feel instead of telling me how I

>should feel " ?

>We need to take note of how we are all feeling and TELL THE DOCTORS so that

>they will stop telling us how we " should " feel.

>Sorry for ranting = )

>Love ya all,

>Vicki 38 dx PSC 6/99 Ohio

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

>

______________________________________________________

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Hi ,

I had my gallbladder out just before me dx. Actually if it wasn't for that

surgery I don't know how long it would have taken to be dx. I have been

taking compazine for the nausea and it seems to work for at least the early

part of the day. I was in the ER a week ago though and they gave me the

compazine via IV. I feel I must advise everybody the side effect of IV

compazine. I felt so anxious. I wanted to rip my IV out and run. My

heartrate went up to 150. It was absolutely terrible. According to the ER

nurse and doctor this side effect is quite common. Why then didn't they

just give IV phenergan which works well I'll never know.

I have never heard of Zofran though. I do have good prescription coverage.

I am so nervous about taking all sorts of medication with liver damage but I

guess you have to live somehow.

>From: WYBEAR21@...

>Reply-To: egroups

>To: egroups

>Subject: Re: nausea

>Date: Sun, 26 Sep 1999 23:21:08 EDT

>

>,

> Nausea is the hardest symptom for me to handle, I absolutely hate it!

>Phenergan worked really well for it, but it made me too drowsy. Compezine

>is

>pretty good, and the best one I have had so far is Zofran, but if you don't

>have good prescription coverage, you may want to skip this because it's

>very

>expensive. I try to stay away from fatty foods though. Do you still have

>your gallbladder? Before I had my gallbladder taken out, I had a REAL

>problem with foods higher in fat. On days that I am really nauseated, I

>try

>to just eat frequent small meals, or just eating bread or saltines seems to

>help a little. Hope this helps!

>Love,

>

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

______________________________________________________

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Peg,

I always feel worse after a fatty meal. BUT I LOVE FATTY FOODS!! This

disease seems to rob us of so much. I also noticed that the nausea is worse

first thing in the morning. I do take Actigall, but I don't think it makes

me nauseated.

>

>Reply-To: egroups

>To: egroups

>Subject: Re: nausea

>Date: Sun, 26 Sep 1999 20:50:44 -0700

>

>,

>One of the first things the doctors told Phil is to cut down his fat

>content.

>He hasn't had the nausea problem (except when they gave him chicken broth

>in the

>hospital). You might feel a lot better if you reeeally cut down your fat

>intake. I know that others have the nausea problem and I don't know if

>theirs

>relate to fatty meals or just the medication.

>Peg

>

>wayne bryan wrote:

>

> > Speaking of nausea. I suffer from incredible nausea and usually have

> > trouble after any sort of fatty meals. Anyone else?

> >

> >

> > >From: WYBEAR21@...

> > >Reply-To: egroups

> > >To: egroups

> > >Subject: Re: controversial message about e-mail content

> > >Date: Sat, 25 Sep 1999 23:39:47 EDT

> > >

> > >Jonathon,

> > > The only thing is... sometimes the " me too's " help the entire

>group

> > >learn about possible side effects of medications, or possible symptoms

>that

> > >our doctors may disregard. If nausea for example, was a rare symptom,

>and

> > >everyone was posting " well, I have this also " , then it would let the

>group

> > >know that YES it does happen. I must admit, that I did take the

>suggestion

> > >of changing the group personally. Mainly because I created the group,

>and

> > >felt responsible for the problems occuring in it. I'm not blaming it

>on

> > >anyone at all, sometimes I'm just a tad bit too emotional. But I do

>want

> > >to

> > >thank everyone for giving their suggestions, and opinions to make this

>a

> > >better support group. God bless you all!

> > >Love,

> > >

> > >

> >

> >------------------------------------------------------------------------

> > >

> > >eGroups.com home: /group/

> > > - Simplifying group communications

> > >

> > >

> > >

> > >

> >

> > ______________________________________________________

> >

> > ------------------------------------------------------------------------

> >

> > eGroups.com home: /group/

> > - Simplifying group communications

>

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

>

______________________________________________________

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,

If I'm in the hospital, then I always request IV phenergan. Last

January I was in the hospital for about 4 days due to Cholangitis, and I only

had Orders for IV cipro, and IV phenergan. So, when I was in a lot of pain,

they gave me the IV phenergan because it would knock me out. It burns going

in, but it works quite well. Zofran is mainly used for chemotherapy

patients. Something in the med induces the effects of caffiene though...so

if you take it, plan on being up for awhile <grin>. I can live with the pain

of the disease, but there is no way I can live with the nausea! So, I know

what you're going through. By the way, I also had my Gallbladder taken out

for diagnostic purposes. I was having some minor problems with it, but it

wouldn't have needed to be removed. Did they do a liver wedge biopsy on you

when they took the gallbladder out? And, how long ago was this?

Love,

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,

I got C-diff in July in the hospital when I was on antibiotics...Yucky stuff,

but easily remedied with a second antibiotic. I hope you don't have anything

more serious. Good luck

wayne bryan wrote:

> Hi ,

> I have been on 1500mg of Actigall for a year now. I haven't noticed any

> problems. However after I had my stent placed I have had diarrhea. It was

> removed 2 weeks ago and I still have the cramping and diarrhea. One of my

> doctors had me send a stool sample to see if I contacted C-Dif while in the

> hospital due to the antibiotics I had prior to the ERCP. If it's not that

> though I they are talking about doing a colonoscopy to see if I am starting

> with colitis. I have never had any intestinal problems before. I have to do

> something though. I have lost 13 pounds in a month.

>

>

> >

> >Reply-To: egroups

> >To: egroups

> >Subject: Re: nausea

> >Date: Sun, 26 Sep 1999 18:06:48 -0400

> >

> >Jayme,

> >I think many of us have struggled with nausea. Mine seems to be much, much

> >better since I have gone " low fat " (just can't tolerate fatty meals at all

> >these

> >days), and since I changed from Actigall to Urso. I think Actigall was

> >making

> >me very nauseous and also giving me a lot of diahrrea.

> >

> > in NH

> >

> >wayne bryan wrote:

> >

> > > Speaking of nausea. I suffer from incredible nausea and usually have

> > > trouble after any sort of fatty meals. Anyone else?

> > >

> > >

> > > >From: WYBEAR21@...

> > > >Reply-To: egroups

> > > >To: egroups

> > > >Subject: Re: controversial message about e-mail content

> > > >Date: Sat, 25 Sep 1999 23:39:47 EDT

> > > >

> > > >Jonathon,

> > > > The only thing is... sometimes the " me too's " help the entire

> >group

> > > >learn about possible side effects of medications, or possible symptoms

> >that

> > > >our doctors may disregard. If nausea for example, was a rare symptom,

> >and

> > > >everyone was posting " well, I have this also " , then it would let the

> >group

> > > >know that YES it does happen. I must admit, that I did take the

> >suggestion

> > > >of changing the group personally. Mainly because I created the group,

> >and

> > > >felt responsible for the problems occuring in it. I'm not blaming it

> >on

> > > >anyone at all, sometimes I'm just a tad bit too emotional. But I do

> >want

> > > >to

> > > >thank everyone for giving their suggestions, and opinions to make this

> >a

> > > >better support group. God bless you all!

> > > >Love,

> > > >

> > > >

> > >

> > >------------------------------------------------------------------------

> > > >

> > > >eGroups.com home: /group/

> > > > - Simplifying group communications

> > > >

> > > >

> > > >

> > > >

> > >

> > > ______________________________________________________

> > >

> > > ------------------------------------------------------------------------

> > >

> > > eGroups.com home: /group/

> > > - Simplifying group communications

> >

> >

> >------------------------------------------------------------------------

> >

> >eGroups.com home: /group/

> > - Simplifying group communications

> >

> >

> >

> >

>

> ______________________________________________________

>

> ------------------------------------------------------------------------

>

> eGroups.com home: /group/

> - Simplifying group communications

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Share on other sites

,

I had my gallbladder out in 96 due to gallstones. They didn't touch my

liver at that time because they didn't know I had any problem. They did a

cholangiogram in the OR but it wasn't a good one. They first noticed the

scarring in my ducts 2 weeks post-op. The surgeon did tell me later that my

biliary duct was so bad looking that he thought for sure it was cancer.

Why did they take your gallbladderout? What were they looking for?

your fellow nausea-mate,

>From: WYBEAR21@...

>Reply-To: egroups

>To: egroups

>Subject: Re: nausea

>Date: Mon, 27 Sep 1999 11:00:32 EDT

>

>,

> If I'm in the hospital, then I always request IV phenergan. Last

>January I was in the hospital for about 4 days due to Cholangitis, and I

>only

>had Orders for IV cipro, and IV phenergan. So, when I was in a lot of

>pain,

>they gave me the IV phenergan because it would knock me out. It burns

>going

>in, but it works quite well. Zofran is mainly used for chemotherapy

>patients. Something in the med induces the effects of caffiene though...so

>if you take it, plan on being up for awhile <grin>. I can live with the

>pain

>of the disease, but there is no way I can live with the nausea! So, I know

>what you're going through. By the way, I also had my Gallbladder taken out

>for diagnostic purposes. I was having some minor problems with it, but it

>wouldn't have needed to be removed. Did they do a liver wedge biopsy on

>you

>when they took the gallbladder out? And, how long ago was this?

>Love,

>

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

>

______________________________________________________

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Hi!

My nausea has no rhyme or reason to it. It just comes on when it wants

to come on -- nothing else. I cannot see any difference between a fatty meal

or a bland meal.

The only reason I, myself, can't eat fatty foods anymore is that the

thoughts of eating that just makes me sick. This also happens with bland

foods. Oh, I guess mine is different because of all of the ulcers I have.

Hugs,

Biddy

Re: controversial message about e-mail content

>> >Date: Sat, 25 Sep 1999 23:39:47 EDT

>> >

>> >Jonathon,

>> > The only thing is... sometimes the " me too's " help the entire

group

>> >learn about possible side effects of medications, or possible symptoms

that

>> >our doctors may disregard. If nausea for example, was a rare symptom,

and

>> >everyone was posting " well, I have this also " , then it would let the

group

>> >know that YES it does happen. I must admit, that I did take the

suggestion

>> >of changing the group personally. Mainly because I created the group,

and

>> >felt responsible for the problems occuring in it. I'm not blaming it on

>> >anyone at all, sometimes I'm just a tad bit too emotional. But I do

want

>> >to

>> >thank everyone for giving their suggestions, and opinions to make this a

>> >better support group. God bless you all!

>> >Love,

>> >

>> >

>> >------------------------------------------------------------------------

>> >

>> >eGroups.com home: /group/

>> > - Simplifying group communications

>> >

>> >

>> >

>> >

>>

>> ______________________________________________________

>>

>> ------------------------------------------------------------------------

>>

>> eGroups.com home: /group/

>> - Simplifying group communications

>

>

>------------------------------------------------------------------------

>

>eGroups.com home: /group/

> - Simplifying group communications

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