Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 philaflyersfan1 said the following on 6/1/2006 10:55 PM: > hi all beth here i just wanted to know if anyone has had surgery > without having a urodynamics test done first? thanks > > > me, wish I did, so there would be a baseline for comparison. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hello everyone this is a good question.. will be having this test June 9th to decided if and when he will have his tethered cord released. We finally went to the doctor May 2nd and he said yes does have a t.c with a mass but the mass does not seem to cause a problem plus his C1 is malformed and not together right but said he would not touch this if he shows no problems with his head or neck.. He also has slight scoliosis and clipping the T.C could stop it from getting any worse is this true?? I am still pretty new to this and the doctor said he thinks the T.C is why my son is so short in his lower body and this is what is causing all is constipation and will cause him more issues in the long run with that and his bladder. The Nero surgeon said my son does not have spina bifida but his Nero doctor said he does so I am considering getting another opinion for that.. This is all so confusing and scary. The way it sounds 's T.C is not as involved as some of the others the doctor has seen and he said the surgery is not a real big deal ( I wonder about this ) I would think anytime they open the back up it's a big deal.. has never had this test done what should I expect?? Is this test anything like the VCUG?? He has had this done but not the urodynamics... also has narrowing in his spine and the doctor said it most likely has been there since birth so all they can do for that is watch it for now.. His tethered cord is at L3/L4 and his spinal cord is lower then usual.. Any suggestion?? Thanks to all of you out here. God Bless, mom to T.C not corrected at this point.. philaflyersfan1 wrote: hi all beth here i just wanted to know if anyone has had surgery without having a urodynamics test done first? thanks Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@..., rick@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 I am new to this group and saw Beth's post and I hope this answers her questions about whether a Urodynamics test will show if you need surgery or not for tethered cord. I had a CINE MRI that found I had Chiari 1 Malformation etc.and a CINE MRI is the diagnostic one that can show if you need surgery and it can also find out what you have too.I have had Urodynamics tests and my doctors did that test for me to find out whats going on with the bladder. I have Chiari 1 Malformation, scoliosis in lumbar and thoracic,tethered cord at T-3/4, spinal arachnoid cyst at T-3/4, and L-5/S-1 Herniations,nerve root compression,w/ annular tear with disc material spilling out and I have had MRI's and CINE MRI's to show what I had and The CINE MRI is how they found out I needed surgery on my chiari, If your doctors are only going by a urodynamics test,they also need to have you do a CINE MRI is what they also need to do because that will tell for sure. If any of you would like to email me,feel free. Anne ACM 1 Decompressed April 16,2004 UCLA Moulton wrote: I had two untetherings done without urodynamics. However, I don't believe my nsg would have done the initial untethering without the results of the urodynamics. Kathy co-owner, co-moderator urodynamics test hi all beth here i just wanted to know if anyone has had surgery without having a urodynamics test done first? thanks Not Medical Advice. We Are Not Doctors. Need help with the list? Email kathy@...,michelle@..., rick@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 what exactly does this test determine? Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2006 Report Share Posted June 3, 2006 In the most basic of definition (which is all I can really explain honestly) it determines if your bladder is affected by nerve damage and how it is affected. Kathy Re: urodynamics test what exactly does this test determine? Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2006 Report Share Posted June 4, 2006 Thanks for the info. I dont believe I have ever had that test before--actually, I didnt even realize that TC was part of my diagnosis until I went to TCI for decompression surgery for ACM and instead got tethered cord release/laminectomy. I'm still unsure of what all that even means. I had studied what I thought to be EVERYTHING about ACM that I could in two years and was as ready as I could be for them to open up the back of my head! When the nsg opted for this, a less effasive surgery (but still with risks and a serious surgery of course) I opted for it! But I do have to tell you all how very weird it was not knowing what exactly they were doing, (even though they explained everything) and not knowing what to expect during recovery. I am still recovering at 9 weeks post op and some things are better---the horrible pains down my legs are gone, no more numbness in my feet (horah!!), my hips feel great and thats from a mother of 3 and now a grandma----my lower back is coming along---not in near as much pain as I used to have but I do have to baby it ---not over do. I was discouraged when my menstral cycle came and my headaches were horrible (as usual)---but I was told that it could take some time for everything to heal if it is going to so I need to be patient. My new pain management doc is wiening me off morphine---been on it for 2 yrs now---I want to see where I am at and that is hard to do on meds. I know it is kindy risky at this point but that little voice keeps telling me so I'm just going to listen and do it---whats the worse thing that could happen? I go back on because I cant stand the pain? Anyway, I just wanted to introduce myself (Sally), I live in Washington State near Mt. St. Helens (the volcano) --and thank you for letting me hang out with you all! Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2006 Report Share Posted June 8, 2006 A Urodynamics Test should not be the only deciding factor in whether or not a Detethering is needed. Symptoms should be factored in as well. I just hope you realize that just because the results of a Urodynamics Test may not show any problems in that specific area, that doesn't mean Surgery isn't needed. Yes, a Tethered Cord Release may help Scoliosis if the Scoliosis is caused by the Tethered Cord. Hope that made sense. Just some personal advice from what I have discovered, if you will, along the way. Good luck with everything. Me Nebraska, USA mymocha@... ... will be having this test June 9th to decided if and when he will have his tethered cord released. He also has slight scoliosis and clipping the T.C could stop it from getting any worse is this true?? Quote Link to comment Share on other sites More sharing options...
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