Hi, I am Cindy

[Guest guest]

Hi, I am new to this site. However I am not new to pain, meds, and

doctors. I will make a long 17 years as short as I can. I had a

heart attack at 29 (1987). After years of Doctors telling me it was

anxiety …. in 1993 they found I have Mitral Valve Prolapse and have

been having TIA's ….After years of Doctors and them thinking I was

crazy…listening to much to my body and reacting to every heartbeat…

every pain….although they had diagnosed, irregular heart beat, (I

can't think how to spell the diagnosed names for these but you get

what I mean), too fast heart beat, to slow heart beat….some times it

would be as low as 40 and sometimes as high as 180….within the same

hour…and on and on….well, as you would guess my meds started in 87,

more in 93 and changes in the next 10 years as more TIA's and small

stoke. In 2003 (a year ago last month) I had surgery …. a cysts

removed from the side of my neck….it was quite big….as at first my

Doctor told me not to worry about it….by the time I got to an ENT

Doctor and got into surgery… it hurt to swallow and turn my

head…..well….4 hours after the surgery I had an other small stoke

(this being a little big then the last… I got my smile back after a

few months…and I thank God everyday)….anyway ….in my stay in the

hospital and battery of tests….they find PFO….whole in the inter

wall of my heart…little blood clot going straight to my brain...

(think that could be why all the bad head aches)…..this being kind

of a new thing to fix….they send me off to St. Louis…I was his 201

PFO…..I had a very hard breathing after that …I had that before it

just became more of a problem….with all the pain I have been in over

the years…they assured me it was not CHF…and the patch they put in

my heart was still place….the muscle has attaching to and growing

around it nicely and was not leaking….I am looking for answers….as I

have been since 1993….anyway it keep ring in the back of my head

….one of the many Doctors I seen over the years would say maybe you

have RA…..this being the same Doctor that said we can't tell women

with MVP that there are crazy anymore! He is not my doctor anymore.

Anyway finally I got my doctor to run the test …well my RA factor is

198…..I can not get in to see a rheumatolist…..until April……my wrist

hurts so bad sometimes….I already have a lump on the side of

it….here are the symptoms besides all the pain I been in for

years….shortness of breathe, carpal tunnel in both hands and pain

all over my body….in the same spots on both sides….Thanks for the

out…..