Re: Advice on neuropathic modulators

[Guest guest]

In a message dated 99-09-10 11:15:12 EDT, you write:

<< The bigger question is she also suggestd using " neuropathic modulators, "

such as Neurontin, Dilantin or Tegretol, to depress the nerve endings

down there (I guess it's the same idea as the Elvail). Has anyone used

any of these, or have any information about them, or heard of using them

for VV?

>>

_____________________

Hi

I am on this path right now (400mgs of neurontin every four hours). I'm not

noticing a whole lot of relief, if any. The neurontin itself doesn't cause

me any side-effect problems, with the exception of when you first start. I

got a day of dreamy, spacey, sleepy nap time--which was ok with me, because I

was finding it hard to get any sleep because of the excruciating nature of

the burning. And then, after that one day--I was fine, in that respect.

According to the literature, the side effects as you move up in dosage should

never be worse than the side effects from the starting dose. This has been

my experience. My Doc sent me an incredibly informative article on the use

of neurontin--other wholistic Docs are using it to treat many chronic pain

syndromes and environmental illness problems...also for people with many

allergies... and find it safe and effective up to 6400mgs over a

day...reading on the chronic pain forum message boards...some people get

relief on 300mgs a day...others go higher...and the key thing seems to be

stick with it for a month or two, increasing the levels to see the benefits.

Also the article talked about it's " healing effect " on damaged nerves (from

EI, candida etc.) and that most patients are able to titrate off completely

after two years.

I hope and pray.

Hope this is of some help to you.

Ann

My only other med course at the moment is lamisil and diflucan every day and

the sugar/yeast free diet...and possibly back to nizoral...again...hoping and

praying some combination works for this...

And one more thing...I did read somewhere that you can combine elavil and

neurontin...ask your Doc...

[Guest guest]

In a message dated 9/10/99 11:14:59 AM Eastern Daylight Time,

.Goldberg@... writes:

> Again, I'm not crazy about taking these or an antidepressant b/c it's

> not a cure but rather a way to mask the symptoms. I'd rather have a

> cure. But maybe using the Elavil only when sex is anticipated and still

> search for a cure.....?

Hi ,

I don't think Elavil is one of those drugs you can just start and stop. It

could lead to seizures if you stop abruptly. The dosage has to be carefully

tapered up and down.

I am currently on 50 mg of Elavil and am feeling 75% better but am not sure

what is responsible for this relief. I also take 250 mg of Depakote, an

antiseizure drug. I was on 900 mg of neurontin but that did nothing for me.

I think biofeedback has helped me the most.

Good luck,

Sandi