Re: Re:about

[Guest guest]

Sorry to hear it took quite a bit out of her. But glad to hear she is

getting better.

It sounds similar to my situation. I am glad to hear that in her case she

was able to get more intensive therapy. In my case, it was hard, from the

way I see it, for Therapists and such to picture what I was before Surgery,

and what I was looking at getting back (to some extent,

atleast)........because, technically, even before my last Surgery, I

shouldn't have been doing as good as I was. And my Dr.'s were even perplexed

at what must have happened during Surgery..........so that was never figured

out, thus how to " treat " it was never figured out either.

I always found those Abdominal Binders helped with pain.........sorry to

hear that is not the case for her. Yes, it does make that figure alittle

better, doesn't it?

Hopefully she is home by now.

Me

Nebraska, USA

mymocha@...

!She was very weak, and

could barely walk. She really is unstable on her feet.

She had lost a lot of mobility before surgery, and

this is to get her back to baseline, hopefully it will

work. Otherwise her pain has been a lot lower then

usual, and I think it is from that Clonidine, and she

never really complains of the Neuropathic pain

either!! She says her back is bothering her, but it is

probably from the abdominal binder that Dr. Frim is

making her wear. It does do a lot for her figure

though...

[Guest guest]

The binders also help keep the scar smaller per Dr.

Frim. Yeah, and that was the problem they looked at

her like she had some strength, however I knew she was

far from baseline. I think she is now getting around

better, not as good as before surgery, but better. Dr.

Frim did tell her she will probably need the surgery

again, and maybe again.... and that between the ages

of 18-40 she should not need the surgery as often, and

after 40 he would be retired, and he didn't care!

So only time will tell, hopefully her laying flat on

her belly for 5 days will give her more time in

between de-tetherings.

This last time was about a year and a half. Well,

thanks for you input it is always so helpful.

Thanks,

Tommi

--- Brande wrote:

> Sorry to hear it took quite a bit out of her. But

> glad to hear she is

> getting better.

>

> It sounds similar to my situation. I am glad to hear

> that in her case she

> was able to get more intensive therapy. In my case,

> it was hard, from the

> way I see it, for Therapists and such to picture

> what I was before Surgery,

> and what I was looking at getting back (to some

> extent,

> atleast)........because, technically, even before my

> last Surgery, I

> shouldn't have been doing as good as I was. And my

> Dr.'s were even perplexed

> at what must have happened during

> Surgery..........so that was never figured

> out, thus how to " treat " it was never figured out

> either.

>

> I always found those Abdominal Binders helped with

> pain.........sorry to

> hear that is not the case for her. Yes, it does make

> that figure alittle

> better, doesn't it?

>

> Hopefully she is home by now.

>

> Me

> Nebraska, USA

> mymocha@...

>

> !She was very weak, and

> could barely walk. She really is unstable on her

> feet.

> She had lost a lot of mobility before surgery, and

> this is to get her back to baseline, hopefully it

> will

> work. Otherwise her pain has been a lot lower then

> usual, and I think it is from that Clonidine, and

> she

> never really complains of the Neuropathic pain

> either!! She says her back is bothering her, but it

> is

> probably from the abdominal binder that Dr. Frim is

> making her wear. It does do a lot for her figure

> though...

>

>

Tommi

's Mom

Chicago, IL. USA

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