Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Meg Welcome to the family, I work as the Weekend Manager at a drug and alcohol treatment center of women, and women with children under the age of six. It really wipes me out. If my job was any harder on my body I would have to quit. Most of the time all I have do do is think, listen, talk, and keep what every child that running down the hall from her/his mother form escaping. I get a lot of support from my partner, and the people on this list. Hope you find what I have here. JoyGet your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Oh sorry , OZ, is just what a lot of people in the US say and I suppose we use it to identify Australians, just slang. I live in Queensland, Australia. Hervey Bay to be precise. Hugs Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Sandy, And just where is OZ?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Thanks Sandy. I was wondering where Over the Rainbow might be. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Thanks, Barb, Sandy and All -- I did get the directions and video for the flutter valve. (Haven't had time to watch the video yet, partly because I need my kids to show me how to play it on the complex hook-up of TV/DVD/VCR/sub- woofer/who knows what else). I just didn't want to knock myself out only to find you need a therapist to tell you if you're doing it right. Also I have no point of comparison yet to tell if I am coughing up enough to make it worthwhile. It is definitely inspiring to hear that you've been infection and mucus-free for so long, Sandy. More questions: What is a Pari Pep? What is the role of high protein, calcium and magnesium? Is it possible to do all the maintenance required AND work full-time AND raise teenagers AND keep a house going? I can't even handle all of that WITHOUT a serious chronic disease! I'm getting within reach of retirement -- maybe I'd better seriously consider it despite the fact that we have two boys heading to college in the next three years. Yikes! Thanks to whoever shared the " Anagrams " -- I hadn't seen that one before. I have a funny one about " useful Latin phrases " if anyone is interested. Is it better to include something in a message, or can you send attachments to these posts? (Example: " Catapultam habeo. Nisi pecuniam omnem mihi dabris, ad caput tuum saxum immane mittam. " " I have a catapult. Give me all of your money, or I will fling an enormous rock at your head. " ) Take care, Vicki -- In bronchiectasis , " sandy taylor " <sillysandy82@h...> wrote: > Vicki and Barb, isn,t it great to be able to swap ideas, and information, I > just think so many people miss out on learning so much from each other. lots > of good money wasted in some cases. > We are all on some kind of benefit, ot have our jobs part time etc, > sometimes because of our ill health. > And there are so many products, devises etc, that work and some that don,t. > Just as some work okay for some and not for others, the trial and error with > devises can be so costly. > This is a wonderful site to find out more about anything you may be > contemplating purchasing, then have the time and the info to weigh up the > pros and cons. > This cannot be done with meds etc, but it often can be a guide, and > something to ask your doctors about too. > What a great arena/ forum for sharing and again caring. > Love to all > Sandy from OZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 Vicki, The instructions really are easy to follow. You’ll actually be able to feel your lungs vibrate if you’re using it correctly. It’s most effective for me when I have an active infection. It really helps to get the garbage out. I haven’t had much luck with it preventing infections though, but we’re all different. It’s my opinion that anything you cough out of your lungs is worthwhile, so give it a good try. When I was diagnosed nearly eight years ago, all five of my kids lived at home and I worked (and still do) full-time. We’ll be moving our youngest son up to college at the end of the week. That means two in college for at least the next few years, so I can’t even think about a life of leisure. I’ve found that I just can’t do it all. If the housework doesn’t get done, then it just doesn’t get done. And if I’m too tired to cook when I get home, take-out pizza fills everyone up. So, my advice is do what you can but don’t feel guilty about what you can’t do. And, save a little energy to enjoy your kids while they’re still home. If your kids don’t already do their own laundry, teach them how to work the washer (and pretend that you don’t notice when they do a load that’s only a shirt and a pair of socks). You and your doctor will figure out what your maintenance routine will be. Sometimes it take a while to get it all working—and just when you think that you’ve got it down, it’ll have to be changed for one reason or another. Don’t get discouraged when that happens, just go with the flow. The only things that you can count on with this disease are that you’ll be tired and infections happen. Re: new member Thanks, Barb, Sandy and All -- I did get the directions and video for the flutter valve. (Haven't had time to watch the video yet, partly because I need my kids to show me how to play it on the complex hook-up of TV/DVD/VCR/sub- woofer/who knows what else). I just didn't want to knock myself out only to find you need a therapist to tell you if you're doing it right. Also I have no point of comparison yet to tell if I am coughing up enough to make it worthwhile. It is definitely inspiring to hear that you've been infection and mucus-free for so long, Sandy. More questions: What is a Pari Pep? What is the role of high protein, calcium and magnesium? Is it possible to do all the maintenance required AND work full-time AND raise teenagers AND keep a house going? I can't even handle all of that WITHOUT a serious chronic disease! I'm getting within reach of retirement -- maybe I'd better seriously consider it despite the fact that we have two boys heading to college in the next three years. Yikes! Thanks to whoever shared the " Anagrams " -- I hadn't seen that one before. I have a funny one about " useful Latin phrases " if anyone is interested. Is it better to include something in a message, or can you send attachments to these posts? (Example: " Catapultam habeo. Nisi pecuniam omnem mihi dabris, ad caput tuum saxum immane mittam. " " I have a catapult. Give me all of your money, or I will fling an enormous rock at your head. " ) Take care, Vicki -- In bronchiectasis , " sandy taylor " <sillysandy82@h...> wrote: > Vicki and Barb, isn,t it great to be able to swap ideas, and information, I > just think so many people miss out on learning so much from each other. lots > of good money wasted in some cases. > We are all on some kind of benefit, ot have our jobs part time etc, > sometimes because of our ill health. > And there are so many products, devises etc, that work and some that don,t. > Just as some work okay for some and not for others, the trial and error with > devises can be so costly. > This is a wonderful site to find out more about anything you may be > contemplating purchasing, then have the time and the info to weigh up the > pros and cons. > This cannot be done with meds etc, but it often can be a guide, and > something to ask your doctors about too. > What a great arena/ forum for sharing and again caring. > Love to all > Sandy from OZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2005 Report Share Posted August 23, 2005 LOL, , well over the rain bow, is cold today where I live, and my group is expanding. We are having chicken cor don bleau, with mushroom and broccoli in white wine sauce, served with pasta, with roasted garlic and bacon . They are really becoming good cooks and using a variety of foods. Must go, as I am being picked up soon, and I have the old gent to shower and give his porridge. Bye for now, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Hi everyone and thanks for letting me join. I was dx Chiari Malformation in Dec 'o1 and had my decompression, laminectomy,duraplasty and a few other things done in Dec '02 in Toronto Ontarion. I live in Saskatchewan Canada. I have not improved and its been a long three and a half years. I finally took matters into my own hands and went to The Chiari Institute in New York last week. Wow ! What a positive experience that was !! Dr B dx me with tethered cord. I'm new to it so am learning all I can and welcome comments ok. Are there any Canadians on this site ? Regardless what Country you live in, I'm interested in hearing from you and how you've delt with the lower back & leg pain. I'm not handling it well and am wanting relief - if you have tips, I'm all ears !! I look forward to hearing from you and hearing your stories. Thanks, Mojo Quote Link to comment Share on other sites More sharing options...
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