Re: is knee pain chiari or teathered cord related?

[Guest guest]

.

My now 6 year old daughter had ACM and TCS since birth, we're

convinced. However, she was only diagnosed with TCS at around 4 years

of age and had release of the cord 2 months later. She's had leg pains

and weakness since infancy. She was diagnosed with ACM1 at 5 years of

age and had decompression surgery at 5-1/2 years of age. The only

symptoms which have not really been fully resolved from these 2

surgeries are bladder/bowel control problems and, to a certain extent,

leg pains/weakness. When I put her down after carrying her on my

shoulders for too long (a few minutes), she squats because she has

pain/discomfort behind her knees.

The latter symptoms (leg) seem to fluctuate but do seem a bit better

since decompression surgery. Her leg pains got worse about 1 month

after ACM surgery, but it lasted one or two months and then got better.

Very strange. During this one or two month period, she would have

occasional episodes where she would scream with pain in her legs

lasting a few minutes and then would stop. It hasn't happened since

then (some 5 months ago or so). She walks for much longer now (she did

a 3 hour hike up and down a mountain in NH not too long ago without

complaining of leg pains/weakness - she didn't even ask me to carry

her!).

She recently had a urodynamics test at Boston Children's and they

noticed that there was weakness in her left leg - they put some

electrosensory needle (don't know the real name) on her leg and

determined this. The urologist thinks the bladder/leg issues are

probably TCS related (but not sure) and the GI specialist (only

specializes in bowel problems) thinks her bowel problem could be either

TCS or ACM. She will be doing a test here, at their request, and will

be going to Boston shortly to do 3 more tests to see if they can

pinpoint her problems.

Eurico

> i have not posted for a while, my boss is keeping me busy at work ,my

kids

> keep me busy at home! i have been havbing pain in my right knee that

seems to

> be get†ing worse. sometimes i have a lot of cracking, sometimes pain,

and

> sometimes it just gives out. i have had surgery for chiari, been

diagnosed

> with teathered cord. but no surgery for teather. do any of you have

this? i

> wonder if it is related or if my knees are just getting bad, i am 41

years

> old.

>

> karen in indiana

[Guest guest]

is knee pain chiari or teathered cord related?

hi all

i have not posted for a while, my boss is keeping me busy at work ,my kids

keep me busy at home! i have been havbing pain in my right knee that seems

to

be get?ing worse. sometimes i have a lot of cracking, sometimes pain, and

sometimes it just gives out. i have had surgery for chiari, been diagnosed

with teathered cord. but no surgery for teather. do any of you have this? i

wonder if it is related or if my knees are just getting bad, i am 41 years

old.

,

I am no expert in any medical field so I put this possibility up to you

without trying to give it to you as an answer. eople with more knowledge of

Chiari may be able to tell you if what I say is right or wrong. That being

said, I have say that I learned to adjust my own neck by going to a

chiropractor for some time and taking note what he does and how. My neck

cracks and pops all the time but when the headaches come, a quick CRACK by

me and most of the time, the pain goes down or goes away. While it may not

be your answer, it may hold SOME relief.

chows@... Australia

Chow Addiction Society Founder and Lifetime Member #1

Are you OLD when you enjoy a good headbanger song with others over 40??