Re: Colonoscopy Prep

September 1, 1999

When I had my colonoscopy, they had me drink a gallon of " Golytely " . I

honestly believe that stuff should be outlawed! LOL! The test itself was a

piece of cake, and didn't bother me a bit. But, drinking that stuff was

horrible!

Love,

September 1, 1999

I got the stuff called " GoLytely " at the Pharmacy and opted for the

unflavored. I didn't think it was all that bad. I think it took about an

hour to work and it wasn't so bad. I did get a little sore from wiping

though. It's way different to have induced diarrhea than having it when you

are sick. Just my opinion.

Dianne A.

September 1, 1999

Dan,

That's awful you had to go through all of that with the GoLytely!! Compared

to drinking contrast it wasn't as bad I thought. Did you have the plain or a

flavored variety of GoLytely?

Also, while we're discussing such things, I posted a question about light

yellowish stools. Have you ever had that? It would sound like bile must be

getting loose but my urine is normal. I suppose I should call my doc.

Anyway, thanks for writing

Dianne

September 1, 1999

hi i got the pineapple golytely and it was bad. watch t.v. the time goes

faster!!!! marsha

September 1, 1999

Dianne A,

Only here can we share such details. : )

Last time I went in for my pre-colonoscopy appt. the nurse was very

sympathetic. She said that no matter what they do, the stuff is *always*

terrible!

The two bottles of stuff that I drink are small, and easy to take. The

Cholyte, (I think a standard name for the " GoLytely " ) made me throw up

continually. Needless to say, since it went up instead of down, I had to

have an alternate method.

Dan (In the trenches with the rest of you)

Re: Colonoscopy Prep

I got the stuff called " GoLytely " at the Pharmacy and opted for the

unflavored. I didn't think it was all that bad. I think it took

about an

hour to work and it wasn't so bad. I did get a little sore from

wiping

though. It's way different to have induced diarrhea than having it

when you

are sick. Just my opinion.

Dianne A.

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September 1, 1999

Hi everybody - been reading your comments about prep for colonoscopy. Having

had a screening colonoscopy (my mom had colon cancer) last June, I can truly

say that the prep was far worse than the test itself or it's aftermath. I

truly felt guilty that as a nurse I encouraged so many people to " drink it,

it's not that bad " . Paybacks truly are a you know what! I have new found

empathy for the pre-colonoscopy patient, that is for sure. Best of luck to

those of you going for one soon. My husband, who has yet to show any

symptoms of UC to go along with his PSC, has to have one soon. I hope he

tolerates that prep better than I did! Liz

September 1, 1999

Dianne,

I had the plain kind. I'm not absolutely sure it is the same thing. It got

thicker the longer it took to drink. As for the yellow stools, I've had

them in the past, but associated it with UC.

Dan

Re: Colonoscopy Prep

Dan,

That's awful you had to go through all of that with the GoLytely!!

Compared

to drinking contrast it wasn't as bad I thought. Did you have the

plain or a

flavored variety of GoLytely?

Also, while we're discussing such things, I posted a question about

light

yellowish stools. Have you ever had that? It would sound like bile

must be

getting loose but my urine is normal. I suppose I should call my

doc.

Anyway, thanks for writing

Dianne

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September 1, 1999

Hi everyone,

I want to apologize for " flipping out " This is all new to me. It seems that

most of you here have been dealing with, blood levels and colonoscopies and

all of the " wonderful " things assoicated with PSC for quite sometime. I will

try to " take it easy " while I learn and live with this disease. Thanks for

all of your support. And as for the Fleets Phospho soda, are they sure they

wern't trying to clean out the top half. Thats stuff really make me sick. Why

couldn't you just go without eating for a day or so and take laxitives and

enemas??

September 1, 1999

Thanks, Dan,

I'm supposed to take " Go Lightly " , is that the cholyte stuff? Things did go

rather well for the last colonsocopy; however, I felt that " Go Lightly " should

have been renamed to " Go Constantly " ....not much fun.

Dan Bertles wrote:

> ,

>

> I haven't sent this in a while, but would like to let all know who have to

> suffer through colonoscopies that this is a piece of cake compared to the

> cholyte (sp?) prep. I have one scheduled for next month. The doc has me

> taking the cholyte, but as before, I am going to opt for the following:

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> Purchase two (1-1/2 oz.) bottles of Fleet's Phosphosoda from your pharmacy.

>

> ON THE DAY BEFORE YOUR COLONOSCOPY:

>

> You need to be on clear liquids only for this entire day. This means

> liquids you can see through such as apple juice, water, 7-Up, Jello, broth.

>

> Take 1-1/2 oz. Fleet's Phosphosoda with 4 oz. of water at 7:00 p.m. and

> again at 9:00 p.m.. Follow each dose of Fleet's Phosphosoda with at least 8

> oz. of clear liquid, more if desired.

>

> You should have nothing to eat or drink after midnight.

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> If you have UC, print this out and save it for the future.

>

> Re: Problems after procedures

>

> Penny,

> I've got a colonoscopy coming up next week. Yikes!

>

> PR Weller wrote:

>

> > Hi, I've just finished my work in our home office and checked my

> mail before

> > heading out into the great sunny day.............. I had HORRIBLE

> problems after

> > my colonoscopy. Terrible diarrhea. It turns out that I got

> giardia from the

> > scope. Are you sure they shielded the scope? You might consider

> getting checked

> > for giardia if you don't get better soon--I was a mess. Don't

> presume that the

> > latex question referred to the scope; it may have been because

> they use latex

> > gloves. I live in the suburbs of a major city and had not

> traveled anywhere

> > (except England six months earlier) so the doc was astounded to

> find that I had

> > giardia! Now we all know that scopes carry illnesses so anything

> is possible.

> > My sister goes salmon fishing in Alaska and I'M the one to get

> giardia...go

> > figure.

> > Penny

> >

> > Dpa1228@... wrote:

> >

> > > Hi All

> > >

> > > I had an endoscopy and colonoscopy a month or two ago (Brain Fog

> - can't

> > > remember when it was). Anyway, I have been having more

> intestinal and bowel

> > > problems since the colonoscopy, at least I think so. I never

> did ask if they

> > > used a sheath over the scope. Hmmm. The nurse did ask if I was

> allergic to

> > > latex or anything so I presume that's why she asked me (the

> sheath is

> > > probably latex).

> > >

> > > Also about a month ago I came down with the stomach flu or

> something. I

> > > started out feeling nauseated and then progressed to diarrhea.

> Then came

> > > the vomiting. Tons of it! I don't know where it all came from

> cuz I hadn't

> > > eaten much since the previous night. I was up and down from my

> bed a lot of

> > > the night. I couldn't get comfortable either cuz my body ached.

> The next

> > > morning I took my temp (around 3:45 A.M. and it was 102.6 F.

> = That blew

> > > my mind. I took some aspirin and eventually it came down.

> Amazingly, my PCP

> > > (who is a G.I. and has PSC patients) called that morning. I

> told him about

> > > it and I asked about cholangitis. He said I don't really have

> strictures,

> > > but ductopenia instead. I think that means my duct is dilated

> at the liver

> > > end but I don't know for sure. Does anyone else know?

> > >

> > > " Stool Watcher " revisited... mine have been a light yellowish

> color. Anyone

> > > else had that? My urine is normal looking though.

> > >

> > > Guess I've rambled long enough. I hope everyone is as well as

> can be.

> > >

> > > Take Care,

> > > Dianne A.

> > >

> ------------------------------------------------------------------------

> > >

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> > > - Simplifying group communications

> >

> ------------------------------------------------------------------------

> >

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>

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September 1, 1999

Diane,

I have light colored stools when I have a flare -up (lose energy, hard time

concentrating)...my urine color does not always correlate with the stool color.

Dpa1228@... wrote:

> Dan,

>

> That's awful you had to go through all of that with the GoLytely!! Compared

> to drinking contrast it wasn't as bad I thought. Did you have the plain or a

> flavored variety of GoLytely?

>

> Also, while we're discussing such things, I posted a question about light

> yellowish stools. Have you ever had that? It would sound like bile must be

> getting loose but my urine is normal. I suppose I should call my doc.

>

> Anyway, thanks for writing

>

> Dianne

>

> ------------------------------------------------------------------------

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>

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September 1, 1999

Dan & group:

Have you all heard of NuLytely prep for colonoscopy ? This was prescribed for

me this time and I just picked it up at the pharmacy...4 liters to be downed in

a couple of hours for my colonoscopy on Friday ! Ugh ! Used the prep you

describe here the first time(Fleets Phospho-soda etc) and I know that is what

my GI usually uses and has prescribed for everyone else having the procedure

this week. I think this new thing might be kind of a trial as he knows I

don't mind being a guinea pig if it's not too risky. He also knows I'll give

him a detailed report afterwards. We'll see....

-

How are you doing ? You have a colonoscopy upcoming too? Too bad we couldn't

car pool for some of this stuff.(the NH/Boston PSC shuttle...Hope you don't mind

my stupid jokes!)

I think of you often, especially when I drive through Manchester or light a

candle. Take good care of yourself.

H.

Re: Problems after procedures

Penny,

I've got a colonoscopy coming up next week. Yikes!

PR Weller wrote:

> Hi, I've just finished my work in our home office and checked my

mail before

> heading out into the great sunny day.............. I had HORRIBLE

problems after

> my colonoscopy. Terrible diarrhea. It turns out that I got

giardia from the

> scope. Are you sure they shielded the scope? You might consider

getting checked

> for giardia if you don't get better soon--I was a mess. Don't

presume that the

> latex question referred to the scope; it may have been because

they use latex

> gloves. I live in the suburbs of a major city and had not

traveled anywhere

> (except England six months earlier) so the doc was astounded to

find that I had

> giardia! Now we all know that scopes carry illnesses so anything

is possible.

> My sister goes salmon fishing in Alaska and I'M the one to get

giardia...go

> figure.

> Penny

>

> Dpa1228@... wrote:

>

> > Hi All

> >

> > I had an endoscopy and colonoscopy a month or two ago (Brain Fog

- can't

> > remember when it was). Anyway, I have been having more

intestinal and bowel

> > problems since the colonoscopy, at least I think so. I never

did ask if they

> > used a sheath over the scope. Hmmm. The nurse did ask if I was

allergic to

> > latex or anything so I presume that's why she asked me (the

sheath is

> > probably latex).

> >

> > Also about a month ago I came down with the stomach flu or

something. I

> > started out feeling nauseated and then progressed to diarrhea.

Then came

> > the vomiting. Tons of it! I don't know where it all came from

cuz I hadn't

> > eaten much since the previous night. I was up and down from my

bed a lot of

> > the night. I couldn't get comfortable either cuz my body ached.

The next

> > morning I took my temp (around 3:45 A.M. and it was 102.6 F.

= That blew

> > my mind. I took some aspirin and eventually it came down.

Amazingly, my PCP

> > (who is a G.I. and has PSC patients) called that morning. I

told him about

> > it and I asked about cholangitis. He said I don't really have

strictures,

> > but ductopenia instead. I think that means my duct is dilated

at the liver

> > end but I don't know for sure. Does anyone else know?

> >

> > " Stool Watcher " revisited... mine have been a light yellowish

color. Anyone

> > else had that? My urine is normal looking though.

> >

> > Guess I've rambled long enough. I hope everyone is as well as

can be.

> >

> > Take Care,

> > Dianne A.

> >

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> >

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> > - Simplifying group communications

>

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September 1, 1999

H.

I wouldn't mess with a good thing.

Dan

Re:

Problems after procedures

Penny,

I've got a colonoscopy coming up

next week. Yikes!

PR Weller wrote:

> Hi, I've just finished my work in

our home office and checked my

mail before

> heading out into the great sunny

day.............. I had HORRIBLE

problems after

> my colonoscopy. Terrible

diarrhea. It turns out that I got

giardia from the

> scope. Are you sure they shielded

the scope? You might consider

getting checked

> for giardia if you don't get

better soon--I was a mess. Don't

presume that the

> latex question referred to the

scope; it may have been because

they use latex

> gloves. I live in the suburbs of

a major city and had not

traveled anywhere

> (except England six months

earlier) so the doc was astounded to

find that I had

> giardia! Now we all know that

scopes carry illnesses so anything

is possible.

> My sister goes salmon fishing in

Alaska and I'M the one to get

giardia...go

> figure.

> Penny

>

> Dpa1228@... wrote:

>

> > Hi All

> >

> > I had an endoscopy and

colonoscopy a month or two ago (Brain Fog

- can't

> > remember when it was). Anyway,

I have been having more

intestinal and bowel

> > problems since the colonoscopy,

at least I think so. I never

did ask if they

> > used a sheath over the scope.

Hmmm. The nurse did ask if I was

allergic to

> > latex or anything so I presume

that's why she asked me (the

sheath is

> > probably latex).

> >

> > Also about a month ago I came

down with the stomach flu or

something. I

> > started out feeling nauseated

and then progressed to diarrhea.

Then came

> > the vomiting. Tons of it! I

don't know where it all came from

cuz I hadn't

> > eaten much since the previous

night. I was up and down from my

bed a lot of

> > the night. I couldn't get

comfortable either cuz my body ached.

The next

> > morning I took my temp (around

3:45 A.M. and it was 102.6 F.

= That blew

> > my mind. I took some aspirin

and eventually it came down.

Amazingly, my PCP

> > (who is a G.I. and has PSC

patients) called that morning. I

told him about

> > it and I asked about

cholangitis. He said I don't really have

strictures,

> > but ductopenia instead. I think

that means my duct is dilated

at the liver

> > end but I don't know for sure.

Does anyone else know?

> >

> > " Stool Watcher " revisited...

mine have been a light yellowish

color. Anyone

> > else had that? My urine is

normal looking though.

> >

> > Guess I've rambled long enough.

I hope everyone is as well as

can be.

> >

> > Take Care,

> > Dianne A.

> >

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/group/

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Simplifying group communications

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September 1, 1999

Dan-

You may be right, but I think " good " might be a little strong for the

Phospho-soda thing. It tasted like detergent and I was so thirsty, I would have

done just about anything for a drink of water by the morning of my procedure.

This prep(NuLytely) allows 8 oz of water up to an hour before the procedure, so

that and my curiosity is keeping me open to giving it a try. My guess is this

one may not taste much better, and 4 liters is a lot to put away. Will " share "

my experience when it's complete. I'd really like to try the pineapple one

that Marsha had...probably not available here in New England....Where else but

California would they make a " tropical fruit " colonoscopy prep?! And where

else, but in this group would I ramble on about such things. Thanks for

everything.

H.

Re:

Problems after procedures

Penny,

I've got a colonoscopy coming up

next week. Yikes!

PR Weller wrote:

> Hi, I've just finished my work in

our home office and checked my

mail before

> heading out into the great sunny

day.............. I had HORRIBLE

problems after

> my colonoscopy. Terrible

diarrhea. It turns out that I got

giardia from the

> scope. Are you sure they shielded

the scope? You might consider

getting checked

> for giardia if you don't get

better soon--I was a mess. Don't

presume that the

> latex question referred to the

scope; it may have been because

they use latex

> gloves. I live in the suburbs of

a major city and had not

traveled anywhere

> (except England six months

earlier) so the doc was astounded to

find that I had

> giardia! Now we all know that

scopes carry illnesses so anything

is possible.

> My sister goes salmon fishing in

Alaska and I'M the one to get

giardia...go

> figure.

> Penny

>

> Dpa1228@... wrote:

>

> > Hi All

> >

> > I had an endoscopy and

colonoscopy a month or two ago (Brain Fog

- can't

> > remember when it was). Anyway,

I have been having more

intestinal and bowel

> > problems since the colonoscopy,

at least I think so. I never

did ask if they

> > used a sheath over the scope.

Hmmm. The nurse did ask if I was

allergic to

> > latex or anything so I presume

that's why she asked me (the

sheath is

> > probably latex).

> >

> > Also about a month ago I came

down with the stomach flu or

something. I

> > started out feeling nauseated

and then progressed to diarrhea.

Then came

> > the vomiting. Tons of it! I

don't know where it all came from

cuz I hadn't

> > eaten much since the previous

night. I was up and down from my

bed a lot of

> > the night. I couldn't get

comfortable either cuz my body ached.

The next

> > morning I took my temp (around

3:45 A.M. and it was 102.6 F.

= That blew

> > my mind. I took some aspirin

and eventually it came down.

Amazingly, my PCP

> > (who is a G.I. and has PSC

patients) called that morning. I

told him about

> > it and I asked about

cholangitis. He said I don't really have

strictures,

> > but ductopenia instead. I think

that means my duct is dilated

at the liver

> > end but I don't know for sure.

Does anyone else know?

> >

> > " Stool Watcher " revisited...

mine have been a light yellowish

color. Anyone

> > else had that? My urine is

normal looking though.

> >

> > Guess I've rambled long enough.

I hope everyone is as well as

can be.

> >

> > Take Care,

> > Dianne A.

> >

------------------------------------------------------------------------

> >

> > eGroups.com home:

/group/

> > -

Simplifying group communications

>

------------------------------------------------------------------------

>

> eGroups.com home:

/group/

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group communications

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September 1, 1999

GOOD QUESTION! I've been reading all these and saying nothing but for

(9) He just had to take a laxative two nights before and the night before

and had to take in just clear liquids for the 24 hours prior to his

colonoscopy. Then the a.m. of his procedure, the nurse gave him an enema.

(He HATED that more than anything)

I've heard of the horrible drink that others have had to drink and was very

relieved that didn't have to do that. Maybe it's just different for

children.

Jodi, 's mom

From: Sleepy5916@...

Reply-To: egroups

To: egroups

Subject: Re: Colonoscopy Prep

Date: Wed, 1 Sep 1999 21:09:26 EDT

Hi everyone,

I want to apologize for " flipping out " This is all new to me. It seems that

most of you here have been dealing with, blood levels and colonoscopies and

all of the " wonderful " things assoicated with PSC for quite sometime. I will

try to " take it easy " while I learn and live with this disease. Thanks for

all of your support. And as for the Fleets Phospho soda, are they sure they

wern't trying to clean out the top half. Thats stuff really make me sick.

Why

couldn't you just go without eating for a day or so and take laxitives and

enemas??

September 2, 1999

In a message dated 9/1/99 4:14:02 PM Mountain Daylight Time,

shcpinna@... writes:

> Have you all heard of NuLytely prep for colonoscopy ?

When I had my colonoscopy I was given the choice of GoLytely or NuLytely.

For some reason I chose GoLytely. I take it that it (NuLytely) is commonly

used also. But who knows?

Dianne A.

September 2, 1999

Well I have news for them, I will do just about anything they ask, except

drink that stuff again. ( I guess maybe it's like having a baby, you forget

how awful it is til you do it again LOL) I don't know why it would be

different for a child.

Vicki

September 2, 1999

YES IT WOUL.D PENNY!!! I DRANK IT FAST. FOR SOME REASON AFTER A WHILE I

GOT COLD SO I TOOK A FEW BATHS! MARSHA

September 2, 1999

I think I had the Lemon-Lime flavoring in mine. It made me so nauseated

though, that I was getting shots of Phenergan in my IV along with it. I

definately feel for those of you that have UC and have to have this done

several times. Hopefully I will never have UC.

Love,

September 2, 1999

I had mine cold..then it got warm from setting...and neither way was any

better. Pinch your nose, hold your head back...and pour it down is about the

best way that I found.... that is, if it can get past the gag reflex.

Love,

September 2, 1999

Would it do any good to make sure all of these liquids are really cold when you

drink them? Sometimes things taste better when cold.

Penny

Hilton Cowmeadow wrote:

> Dan-

> You may be right, but I think " good " might be a little strong for the