Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Kirsten, Sorry that the Rituxan didn't seem to help. Just out of curiosity, are you strongly RF-positive? I see nothing wrong with trying " alternative " therapies, but urge caution if you are thinking of entirely abandoning conventional medicine. I wouldn't go back to Enbrel or either of the other TNF blockers if you have an MS diagnosis. Have you tried Kineret (anakinra)? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Wondering about holistic docs in Chicago area? > > > Hi, I don't post often but I do have a question and I know some of > you folks are in the Chicago area. I recently left an experimental > trial for Rituxan (I've had RA for 7 years). I was on the trial > because all other drugs were failing me or I failed them. I had to go > off Enbrel because was dx with MS also (have very few symptoms if > any). Anyway, Rituxan did very little good for me--still swollen and > in pain! My aunt suggested a holistic doc in the Oak Park area by the > name of Hauser. I know my insurance won't cover me seeing him, but > wondered if anyone had gone that route (hypoallegenic diets, > nutritionals, photoluminesce...). I've balked at it in the past, but > 4 people have mentioned trying an alternative route this week and i > thought i should look into it. I would LOVE to go back on Enbrel > since it worked so well but not sure if docs will let me due to MS > involvement. > > THank you > Kirsten in Chicagoland Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2004 Report Share Posted October 28, 2004 Kirsten, Sorry that the Rituxan didn't seem to help. Just out of curiosity, are you strongly RF-positive? I see nothing wrong with trying " alternative " therapies, but urge caution if you are thinking of entirely abandoning conventional medicine. I wouldn't go back to Enbrel or either of the other TNF blockers if you have an MS diagnosis. Have you tried Kineret (anakinra)? I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Wondering about holistic docs in Chicago area? > > > Hi, I don't post often but I do have a question and I know some of > you folks are in the Chicago area. I recently left an experimental > trial for Rituxan (I've had RA for 7 years). I was on the trial > because all other drugs were failing me or I failed them. I had to go > off Enbrel because was dx with MS also (have very few symptoms if > any). Anyway, Rituxan did very little good for me--still swollen and > in pain! My aunt suggested a holistic doc in the Oak Park area by the > name of Hauser. I know my insurance won't cover me seeing him, but > wondered if anyone had gone that route (hypoallegenic diets, > nutritionals, photoluminesce...). I've balked at it in the past, but > 4 people have mentioned trying an alternative route this week and i > thought i should look into it. I would LOVE to go back on Enbrel > since it worked so well but not sure if docs will let me due to MS > involvement. > > THank you > Kirsten in Chicagoland Quote Link to comment Share on other sites More sharing options...
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