Guest guest Posted March 25, 2001 Report Share Posted March 25, 2001 I am so glad for you, !! I know what a terrible fight it can be to get SS! I wasn't eligible because I didn't have enough " credits " in because of attending college (at middle age), but I did get my college loans erased because of disability, so I know how you must feel! It is a big weight off the shoulders! Congratulations and party on!! B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2008 Report Share Posted June 6, 2008 Sherry, That's great to hear! Enjoy every moment of the ice cream event! " Sherry UpNorth " <upnorth@... > To Sent by: <LBDcaregivers > LBDcaregivers@yah cc oogroups.com Subject Good news! 06/06/2008 02:10 PM Please respond to LBDcaregivers@yah oogroups.com My mom's medicaid was approved today - YAY! That means she can go out for visits or to get an ice cream, or whatever; this will THRILL her no end. Heck, it thrills ME no end! I'm going to start small, with an ice cream cone outing this evening. Then maybe a ramble around a Dollar Store later this weekend, since shopping has always been important to her...I can give her a $10 bill or something. But I'm planning on the first few outings to be short. I know she'll want to go past her house; I have the $4/gallon for gas and it's too far away (30 miles) excuse, but is one of the reasons I want to keep visits short - " I wish I had more time, mom... " But I am so happy and excited, it's almost as if *I* were the one just handed the keys - lol! I'm celebrating and looking forward to seeing her this evening, she hasn't had an ice cream cone from the Custard Cup yet and it's the best ice cream (well, frozen custard) in town!! This morning she had her piano tuned, Pete went there to pay the man, and she was right there, beaming and happy and excited - and they tell me that normally mornings are her worst times! But these meds, and also I think her on the road to acceptance of her life there, are really turning the tables. And now that she can go on outings, that will help as well. ( did warn me that, once gets out the doors and her new security is gone, she may not have an easy time of it at first.) I'm SO much hoping that she can learn to enjoy her life while she's able, in spite of her illness and living arrangements... His, Sherry ('s daughter) www.owly.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Hi Kristy, I would really love Sienna to have a swab test with Dr. -Cook, but I only ticked the questionnaire section of the research part, what should I do? can I just turn up on the day she's doing it? or can I email her? Ta, Seph & Sienna (11 months, MDS) Perth, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Hi Seph will contact you and help you set up an appointment for the research on that Friday. Don't worry about it, we will make sure you get to do the cheek swab Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE Subject: Re:Good News! To: MosaicDS Date: Wednesday, June 10, 2009, 10:43 AM Hi Kristy, I would really love Sienna to have a swab test with Dr. -Cook, but I only ticked the questionnaire section of the research part, what should I do? can I just turn up on the day she's doing it? or can I email her? Ta, Seph & Sienna (11 months, MDS) Perth, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 sorry probably off topic but could someone please tell what exactly should i be worried about right now an what testings i should have done on my 3 month old to make sure she is developing ok or somewhat on track for her age?shes 3 months (14 wks) was 4 wks early. From: Seph Mackinnon <sephhiinet (DOT) net.au> Subject: Re:Good News! To: MosaicDS@yahoogroup s.com Date: Wednesday, June 10, 2009, 10:43 AM Hi Kristy, I would really love Sienna to have a swab test with Dr. -Cook, but I only ticked the questionnaire section of the research part, what should I do? can I just turn up on the day she's doing it? or can I email her? Ta, Seph & Sienna (11 months, MDS) Perth, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 Can schedule one for too? Please? I NEVER believed that 66% that I was given. Darlene > > > Hi Kristy, > > I would really love Sienna to have a swab test with Dr. -Cook, > but I only ticked the questionnaire section of the research part, what > should I do? can I just turn up on the day she's doing it? or can I > email her? > > Ta, > Seph & Sienna (11 months, MDS) > Perth, Australia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 yes, will be contacting everyone who has signed up for the conference no matter what you answered on the question for research just to be sure. Darlene.... You have never participated in the research? Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE > > > Hi Kristy, > > I would really love Sienna to have a swab test with Dr. -Cook, > but I only ticked the questionnaire section of the research part, what > should I do? can I just turn up on the day she's doing it? or can I > email her? > > Ta, > Seph & Sienna (11 months, MDS) > Perth, Australia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 No - We were going to do the first conference, but we ran out of time and said - we could just drive down to VA and get it done - of course, we never did. Life happens! Darlene > > > yes, will be contacting everyone who has signed up for the conference > no matter what you answered on the question for research just to be sure. > > Darlene.... You have never participated in the research? > > Kristy Colvin > IMDSA President > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > International Mosaic Down Syndrome Association > PH: > Toll Free: 1-888-MDS-LINK > http://www.imdsa.org > http://www.mosaicmoments.today.com > SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA > BUILDING BRIDGES FOR DOWN SYNDROME > RESEARCH & AWARENESS CONFERENCE > > > > > > > > > > > Hi Kristy, > > > > > > I would really love Sienna to have a swab test with Dr. -Cook, > > > but I only ticked the questionnaire section of the research part, what > > > should I do? can I just turn up on the day she's doing it? or can I > > > email her? > > > > > > Ta, > > > Seph & Sienna (11 months, MDS) > > > Perth, Australia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2009 Report Share Posted June 10, 2009 oh ok! Well, you can do it this time! I figured you did it at least in 2007 at our last conference. Kristy Colvin IMDSA President ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ International Mosaic Down Syndrome Association PH: Toll Free: 1-888-MDS-LINK http://www.imdsa.org http://www.mosaicmoments.today.com SAVE THE DATE! JULY 10-12 Cincinnati, Ohio USA BUILDING BRIDGES FOR DOWN SYNDROME RESEARCH & AWARENESS CONFERENCE > > > > > > > > > Hi Kristy, > > > > > > I would really love Sienna to have a swab test with Dr. -Cook, > > > but I only ticked the questionnaire section of the research part, what > > > should I do? can I just turn up on the day she's doing it? or can I > > > email her? > > > > > > Ta, > > > Seph & Sienna (11 months, MDS) > > > Perth, Australia > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2012 Report Share Posted February 4, 2012 -- Good news about Beth! lia Leite- MD Palm Beach Hello Health Quote Link to comment Share on other sites More sharing options...
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