Feeling Way Better but need off the list for the Summer

[Guest guest]

Hello, hoping someone can help me. I have been on this onelist for a

while and would like to thank Heidi for creating this and her website.

I have found a wealth of information from this list as well as support

in reading all of your very worthwhile contributions.

I have vulvadynia and had I not discovered this onelist I would never

have known the magnitude of women whose lives this awful condition has

touched. I am on a very low dosage of 10 mg of amitripyline and calcium

citrate and a product that is manufactured by a company called

Mannatec. The product is called ambrotose, and it is a glyconutrional

dietary supplement. The gest of how this product works is that with

certain illnesses, cells begin to lose communication with each other and

this product gets those cells communicating again. We have something in

our bodies naturally called NK cells (natural killer cells) that work

with our immunity system to ward off disease and illness. Due to toxins

and pollutants, the amount of NK cells our bodies produce is reducing.

Stress in another negative impacter on these NK cells. When a normal

healthy person takes Glyconutritionals like Ambitrose, their level of NK

cells improve by 50%. In the case of someone who has an advanced

degenerative condition, it can improve as much as 800%. *This study was

conducted by Dr Darryl See, who is an associate professor of Medicine at

the Univerisity of California, Irvine Medical School.

I originally starting taking Ambitrose for Fibromyalgia, something else

I suffer from. Exercise, is important for patients with Fibromyalgia.

Ambitrose seems to give patients the energy to exercise, while combating

the condition. Since I have been on the combination of these

products, I am able to have sex again with very little or no soreness

afterwards. I do find that stress causes " flare-ups, so I have really

changed my outlook on life and don't sweat the small stuff. If anyone

is interested in trying this product, Mannatec does have a website and

there is probably someone that markets it in your area. I however, do

not know if this has attributed to my condition lessening, or if it the

combination of things.

Heidi, or any one of you ladies, I would like to know how I can

unsubscribe to the list for the summer, as I will be out of the country

and will not be able to keep up with the influx of mail.

I will re-subscribe in the fall and let you know how my health is

progressing. Pls let me know who I e-mail to unsubscribe.

My thoughts are with all of you and I pray for a cure that works for all

of us,

Jane

ione scovel wrote:

>

>

>

> Hi , Haven't ever sent you a post before; but know how you feel,

> somewhat. of course I'm older, no kids home; but all this can sure get

> depressing. So honey, try your best to keep hanging in there; and eventually

> you will find a dr. with some sense; who can help you. sure hope some of

> the gals do raise enough cain, they get more research going on this VV mess.

> WE ALL NEED HELP!! Sounds like you do at least have a good, understanding

> husband; which is wonderful. can't understand your friend not replying or

> something. My few women friends, (4 or 5 perhaps) are real sweet and

> understanding and have 3 grown daughters who support and pray for me etc.

> Also have a good husband who does the same; so those things i'm sure

> grateful for. You sound more mature than a lot of these youngsters. So maybe

> we can correspond a little. Believe I have a pretty good lady GYN now, who

> is trying to help me figure out what to do next. TAke care; . Many

> warm and loving thoughts, Ione Scovel aoniel@...

> Rough day

>

> >

> >

> >Hi,

> > It's been one of those days so I thought I would

> >sound off a bit. I had a rough week. My problems keep

> >getting worse and worse. Last night my husband and I

> >went out and had a good time. Then this morning I was

> >going to take the kids and him to the air show in

> >town but of course I get my period and awful cramps

> >along with the burning and pain that I suspect is

> >vvs. I could barely even move. My husband was so

> >terrific about not going anywhere but I am so tired

> >of this. He even took the kids to a friends house for

> >a water party so I could rest. For 2 years now this

> >has run my life and now it is getting even worse. I

> >just want to be able to do what everyone else does. I

> >get so envious sometimes when I see everyone else out

> >and having fun. My kids ages 2-8 have no idea what's

> >wrong with mom just that she doesn't feel well. I

> >finally shared this with my best friend and I haven't

> >heard from her since. I feel so alone and angry and

> >depressed all at the same time.

> > It's 2 more months until I see the specialist and

> >because of the way my period's been coming I will

> >have to reschedule because I will be in the middle of

> >it when my appointment rolls around. I can't go to

> >the GYN then can I?

> > Anyways, sorry this is so depressing I just don't

> >know where else to turn.

> > Hope you all are well,

> >

> >

> >

> >

> >

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