Re: ERCP is over, and I don't have PSC

[Guest guest]

Glad your ERCP went well. Did you say you don't have PSC? I've had symtoms of

so many things and not the real thing. I know exactly where you are coming from

it's sooo frustrating. But if you don't have PSC be glad because this is a

disease with no cure. Hope you can find a solution. Peg

L Rosenberg wrote:

> Thank you everyone for the info about the ERCP. It went fine, and I don't

> remember a thing! The worst part for me was that numbing spray and having

> the sensation that I couldn't swallow... but once I got the happy drugs I

> was out.

>

> The specialist was soooo sure he'd find PSC because of my past medical

> history. I was also sure of it from everything that I'd read. I have all of

> the symptoms down the line, and this has been going on for 10+ years. If I

> didn't have the supporting lab work and biopsy to back it up, I'd feel like

> a hypocondriac.

>

> He's going to remove my gallbladder in two weeks, although I don't know why.

> I've never had any problems with it that I know of, although he did say

> there was " sludge " in there.

>

> So..... I'm back to square one of not knowing what is wrong with me. This

> also means I'll get the speech from the doctor of " I don't know what's

> causing this, have a nice life " . Grrrrrr

>

> I wish you all well, and think this list and the support you all show each

> other is fantastic!!

>

> Lori

>

> ------------------------------------------------------------------------

> eGroups Spotlight:

> " Vietnam Survivors " - If you survived Viet Nam, this is a good

> place to talk to others who share your experiences.

> http://clickhere./click/122

>

> eGroups.com home: /group/

> - Simplifying group communications

------------------------------------------------------------------------

eGroups.com home: /group/

- Simplifying group communications

[Guest guest]

Lori,

I don't know whether to congratulate, or send my condolences. I'm happy

that it isn't PSC that you have, but I know what it's like to have Dr's tell

you that they don't know what is wrong. How did you get the original

diagnosis of PSC? DId you have a liver biopsy?

Love,

------------------------------------------------------------------------

eGroups.com home: /group/

- Simplifying group communications

[Guest guest]

Hi Lori!

Oh my God what in the world are these docs trying to do to you? You

sound like me -- no answers from doctors! It is maddening. I cannot give you

any suggestions because I don't have any.

All of the doctors, I believe, are like lawyers -- they really know how

to give someone the " go around. " And who pays for all of this -- our

insurance companies! It is no wonder that insurance is so very expensive!

Is there anyway you can change docs? I can't because I have no

insurance, but if you have insurance you can certainly do this!

Please take care of yourself and try not to get down -- easier said than

done -- I know.

Hugs,

Biddy

ERCP is over, and I don't have PSC

>Thank you everyone for the info about the ERCP. It went fine, and I don't

>remember a thing! The worst part for me was that numbing spray and having

>the sensation that I couldn't swallow... but once I got the happy drugs I

>was out.

>

>The specialist was soooo sure he'd find PSC because of my past medical

>history. I was also sure of it from everything that I'd read. I have all of

>the symptoms down the line, and this has been going on for 10+ years. If I

>didn't have the supporting lab work and biopsy to back it up, I'd feel like

>a hypocondriac.

>

>He's going to remove my gallbladder in two weeks, although I don't know

why.

>I've never had any problems with it that I know of, although he did say

>there was " sludge " in there.

>

>So..... I'm back to square one of not knowing what is wrong with me. This

>also means I'll get the speech from the doctor of " I don't know what's

>causing this, have a nice life " . Grrrrrr

>

>I wish you all well, and think this list and the support you all show each

>other is fantastic!!

>

>Lori

>

>

>

>

>------------------------------------------------------------------------

>eGroups Spotlight:

> " Vietnam Survivors " - If you survived Viet Nam, this is a good

>place to talk to others who share your experiences.

>http://clickhere./click/122

>

>

>eGroups.com home: /group/

> - Simplifying group communications

>

>

>

>

>

------------------------------------------------------------------------

eGroups.com home: /group/

- Simplifying group communications

[Guest guest]

Lori -

I would recommend that you think twice before having your gall bladder out.

Sludge that is asymptomatic is not adequate reason for the surgery and

your gallbladder should not interfere with dilation. This may be an

indication that you doctor is not adequately trained in ERCP.

During the process of my diagnosis I found out my gallbladder had sludge

and stones. The first doctor wanted to remove my gallbladder even though

it didn't cause me any problems. I declined the surgery and used

acupuncture and a series of liver flushes to help clean it out and I

haven't shown either one for a couple of years now. My current doctor

tells me that abdominal surgery is to be avoided if possible.

Another doctor told me the primary reason people have their gallbladders

out is that they still have one. I don't think I would want to have mine

out just to see if it was causing the problems.

Russ

------------------------------------------------------------------------

eGroups.com home: /group/

- Simplifying group communications