Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 Thanks for your reply grey. It helps to know such a simple thing....we will "turn up the o2". I'm on 2L on the treadmill, continuous flow and 2L "puff" thing on the portable tank. I'm still adjusting to the BOA (backpack of air). You be healthy too! Sher Question from Sher Will those of you who feel comfortable please tell me what the different "stages" are. I am at mild stage...what is moderate stage, or severe stage, or end stage? When one progresses, what literally is changing? I know many of us are on oxygen (not all the same usage) and I'm sure we are not at the same "stage" so oxygen is apparently not the determining factor of a "stage". I'm of course wondering what is yet to come and what changes will happen as I progress. I know we all do it differently but is there any typical progression? I do not intend to be morbid or intrusive and I can't imagine any better place for information than right here. Thanks. Sher ipf 5-06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Grey...my heavens! I've never even heard of a 14 hour procedure for a kidney stent swap out. I hope you are out cold. It sounds dreadful. Oh no, you added "spinal". I'm so sorry you have to go through that Grey. How often do you have that done? Does it help? God Bless you. Sher ipf 5-06 Newbie here.... intro and a few questionsHello all,I am a newbie here. I, myself, do not have PF but my brother in law was diagnosed with PF a few days ago. I joined the group to learn more and for support. My sister is not ready to join as of yet. I think everyone is still a little shocked right now and may be a little in denial too. I'm trying to be as supportive as I can, but I just don't know what to say, I'm stunned. I don't know a lot about PF as I didn't encounter it while I was working at the hospital, so I am hoping to learn more through this group.I don't know much right now because they don't live in the same state that I do. They are in NC and I am in Indiana. I know that his pulmonologist wants to do another round of tests in October to see how it's progressing and to identify which type it is?I really don't have many details right now and my sister has been pretty distraught, so I haven't asked much more. I thought I'd let her try to process this before I ask any more questions.I do have a few questions though and I'm sure that you guys know a lot more about it than I. Can some of you tell me what testing they did on you to confirm it was PF? My BIL never even had a biopsy done. I'm just curious what testing you all went through before you got a diagnosis.I'm sorry if I sound totally ignorant, but this is all new to me and I'm trying to understand it all so that I can be as supportive and as informed as possible.My BIL is 49 and my sister is 50. They've been together since they were 17 and I know that they are both going through a lot of pain right now and I'm just trying to help.Thanks for any info that you can share with me.Millie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 When I said 14 hrs I meant thats how long we were away from the house and thats too long for a little dog to be shut up. Talked to the surgeon thursday of last week about my options. they put stent in about the 10th of may and it improved kidney functions. He talked about going in with a lazer to try and clear up the obstruction but there was a chance that the lazer could burn a hole in tube and if that happened, he would have to open me up to fix it so I chose to get a new stent every 6 months. Procedure does not take long. Waiting for legs to thaw out took a long time. That means 2 nights for molly at the vet. They want you there at 5:30A.M. Nuff said Grey IPF 10/05 Newbie here.... intro and a few questionsHello all,I am a newbie here. I, myself, do not have PF but my brother in law was diagnosed with PF a few days ago. I joined the group to learn more and for support. My sister is not ready to join as of yet. I think everyone is still a little shocked right now and may be a little in denial too. I'm trying to be as supportive as I can, but I just don't know what to say, I'm stunned. I don't know a lot about PF as I didn't encounter it while I was working at the hospital, so I am hoping to learn more through this group.I don't know much right now because they don't live in the same state that I do. They are in NC and I am in Indiana. I know that his pulmonologist wants to do another round of tests in October to see how it's progressing and to identify which type it is?I really don't have many details right now and my sister has been pretty distraught, so I haven't asked much more. I thought I'd let her try to process this before I ask any more questions.I do have a few questions though and I'm sure that you guys know a lot more about it than I. Can some of you tell me what testing they did on you to confirm it was PF? My BIL never even had a biopsy done. I'm just curious what testing you all went through before you got a diagnosis.I'm sorry if I sound totally ignorant, but this is all new to me and I'm trying to understand it all so that I can be as supportive and as informed as possible.My BIL is 49 and my sister is 50. They've been together since they were 17 and I know that they are both going through a lot of pain right now and I'm just trying to help.Thanks for any info that you can share with me.Millie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Thanks Grey, what you describe does sound a WEE bit better. God's Blessings! Sher ipf 5-06 Newbie here.... intro and a few questionsHello all,I am a newbie here. I, myself, do not have PF but my brother in law was diagnosed with PF a few days ago. I joined the group to learn more and for support. My sister is not ready to join as of yet. I think everyone is still a little shocked right now and may be a little in denial too. I'm trying to be as supportive as I can, but I just don't know what to say, I'm stunned. I don't know a lot about PF as I didn't encounter it while I was working at the hospital, so I am hoping to learn more through this group.I don't know much right now because they don't live in the same state that I do. They are in NC and I am in Indiana. I know that his pulmonologist wants to do another round of tests in October to see how it's progressing and to identify which type it is?I really don't have many details right now and my sister has been pretty distraught, so I haven't asked much more. I thought I'd let her try to process this before I ask any more questions.I do have a few questions though and I'm sure that you guys know a lot more about it than I. Can some of you tell me what testing they did on you to confirm it was PF? My BIL never even had a biopsy done. I'm just curious what testing you all went through before you got a diagnosis.I'm sorry if I sound totally ignorant, but this is all new to me and I'm trying to understand it all so that I can be as supportive and as informed as possible.My BIL is 49 and my sister is 50. They've been together since they were 17 and I know that they are both going through a lot of pain right now and I'm just trying to help.Thanks for any info that you can share with me.Millie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.