Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hi again, Priscilla I too am on advair, spiriva and albut. I live on anti's for the frequent infections. I too am retired, and have been, but not due to my Bronchiactasis. I was originally dx'd w/Alpha1 Antitrypsin Deficiency in 1998..a rare genetic liver/lung disorder. Bronchiactasis is a secondary complication to my A1ATD. My dr is pushing me for TX, but I think, after careful observation and research, that's not the route for me. Currently my PFT is at 32%..upon resting my O2 sats range in the 90s..I'm not on O2, yet. ..........and life goes on..slower than before..quality of life isnt as good as it used to be..I'm missing alot..but one way or another I do the best I can with what I have..I'm still having a hard time letting go and ' accepting ' what is..I thought I had..I've a long way yet to go..I'll get there one day, I suppose. Keep posting..and take care Sandie Never Look Down on SomeoneUnless You're Gonna Help Them Up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hi Sandie! Haven't tried Spiriva yet, but may mention it to my docs when I next visit. I am on advair and albuterol, inhaler and nebulizer. I am in a respiratory group at the hospital and was tested on the treatmill with my O2 at 94 ... when I went to see the doctor a couple of months ago in the middle of a bad flareup, my O2 was 68. Was told that it has to be 55 before I need oxygen, thank goodness! Hopefully I will never have to use any. What is the "normal" range for O2? You said yours was in the nineties, is that normal and OK? I probably should ask my therapist that question. JanetSunniesback55@... wrote: Hi again, Priscilla I too am on advair, spiriva and albut. I live on anti's for the frequent infections. I too am retired, and have been, but not due to my Bronchiactasis. I was originally dx'd w/Alpha1 Antitrypsin Deficiency in 1998..a rare genetic liver/lung disorder. Bronchiactasis is a secondary complication to my A1ATD. My dr is pushing me for TX, but I think, after careful observation and research, that's not the route for me. Currently my PFT is at 32%..upon resting my O2 sats range in the 90s..I'm not on O2, yet. .........and life goes on..slower than before..quality of life isnt as good as it used to be..I'm missing alot..but one way or another I do the best I can with what I have..I'm still having a hard time letting go and ' accepting ' what is..I thought I had..I've a long way yet to go..I'll get there one day, I suppose. Keep posting..and take care Sandie Never Look Down on SomeoneUnless You're Gonna Help Them Up Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2006 Report Share Posted November 18, 2006 Hi Priscilla and welcome! I joined the group earlier this year so I am fairly new too. I have learned a lot and it is nice to know there are others out there with this nasty disease we have although there are many forms, primary and secondary, certain fungus strains, etc. Dealing with it usually does mean inhalers to keep the airways open, I, too, am on Advair and Albuterol but haven't yet tried Spiriva. I do have a nebulizer too which you might want to ask your docs about. Yes, Mucinex does work I have taken it too .. right now I am in the middle of righting a flareup with antibiotics in the mix ... my docs change them around [and I don't have allergies to them] but usually I am on for 2-3 weeks at a time. Now especially in this time of year I guess I am getting flareups more frequently even though I do live in a fairly mild climate like California! Brrr you should consider a move to a warmer climate, I would hate all that wet cold snow! Although I love the mountains and was an avid skier, but alas the thin air would now compromise my lungs, so my skiing days are over... Do read my posting to Sandie in Australia about how I keep the mucus clear especially at night ... might want to try it along with your Mucinix. Take care, Janet misugar121 wrote: Hello again! I'm a newby. My current medications are Advair, Spiriva and Albuterol as a rescue inhaler. I also take Mucinex which has helped me alot. My doc put me on a prescription, I believe it was Humidid LA, but Mucinex is cheaper and works just as well. Infection has always been a huge issue for me and finally , they decided after several hospitilizaions and a lung which would not reinflate to remove it. Living in MI isn't helpful. The cold long winters cause me to stay in alot and that's not healthy either mentally. I was forced to retire early by my employer and/or take a medical. I'm looking forward to learning alot in this group. I already have and I thank you for that. Priscilla/MI Quote Link to comment Share on other sites More sharing options...
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